2.50
Hdl Handle:
http://hdl.handle.net/10755/161052
Type:
Presentation
Title:
Grandparents' Perceptions of Raising Their Grandchildren Affected by HIV/AIDS
Abstract:
Grandparents' Perceptions of Raising Their Grandchildren Affected by HIV/AIDS
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2007
Author:Ungerleider, Linda, PhD
P.I. Institution Name:Saint Xavier University
Contact Address:Nursing, Chicago, IL, 60610-8683, USA
When parents living with HIV/AIDS cannot care for their children, grandparents often become the primary caretaker. Purpose: To explore the grandparents' perceptions of parenting their grandchildren in an HIV/AIDS affected family guided by an adaptation of the Family Management System conceptual framework (Knafl & Deatrik, 2000) and the Double ABCX Model (McCubbin & Patterson, 1983). Method: A qualitative descriptive analysis of in-depth interviews of 9 grandparents raising 27 grandchildren (4 living with HIV), whose parent/parents had AIDS or died from it. Results: Keeping grandchildren "out of the system" was main reason grandparents assumed their care. They feared losing the children into the social agency system that often separated siblings. Conflict with their adult children, often related to substance abuse preceded HIV/AIDS diagnosis and remains a family concern. HIV/AIDS stigma still exists and disclosure is mainly within the family. Many grandparent families report multiple violent events and losses. The grandparents rely on their faith to help survive the day. Family members were their major support, and some also received support from the clinic and grandparent support groups. Most expressed concern about surviving personal health problems until grandchildren matured. The majority of the grandchildren had problems in school and relationships. All grandparents stressed the importance of an education for their grandchildren's future. Conclusion: Despite all the problems grandparents face, they are on balance, an important alternative for children in families affected by HIV/AIDS. They evidenced great commitment and love for their grandchildren. Grandparents would benefit from additional financial support, health care for the grandparents' 1-3 chronic illnesses, counseling to manage their grandchildren and surviving adult children, and help negotiating the legal and social systems. Acknowledgement: Sigma Theta Tau, Kappa Nu Research Grant, T32 Primary Health Care Research Training Grant.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleGrandparents' Perceptions of Raising Their Grandchildren Affected by HIV/AIDSen_GB
dc.identifier.urihttp://hdl.handle.net/10755/161052-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Grandparents' Perceptions of Raising Their Grandchildren Affected by HIV/AIDS</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Ungerleider, Linda, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Saint Xavier University</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Nursing, Chicago, IL, 60610-8683, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">lungerleider@sbcglobal.net</td></tr><tr><td colspan="2" class="item-abstract">When parents living with HIV/AIDS cannot care for their children, grandparents often become the primary caretaker. Purpose: To explore the grandparents' perceptions of parenting their grandchildren in an HIV/AIDS affected family guided by an adaptation of the Family Management System conceptual framework (Knafl &amp; Deatrik, 2000) and the Double ABCX Model (McCubbin &amp; Patterson, 1983). Method: A qualitative descriptive analysis of in-depth interviews of 9 grandparents raising 27 grandchildren (4 living with HIV), whose parent/parents had AIDS or died from it. Results: Keeping grandchildren &quot;out of the system&quot; was main reason grandparents assumed their care. They feared losing the children into the social agency system that often separated siblings. Conflict with their adult children, often related to substance abuse preceded HIV/AIDS diagnosis and remains a family concern. HIV/AIDS stigma still exists and disclosure is mainly within the family. Many grandparent families report multiple violent events and losses. The grandparents rely on their faith to help survive the day. Family members were their major support, and some also received support from the clinic and grandparent support groups. Most expressed concern about surviving personal health problems until grandchildren matured. The majority of the grandchildren had problems in school and relationships. All grandparents stressed the importance of an education for their grandchildren's future. Conclusion: Despite all the problems grandparents face, they are on balance, an important alternative for children in families affected by HIV/AIDS. They evidenced great commitment and love for their grandchildren. Grandparents would benefit from additional financial support, health care for the grandparents' 1-3 chronic illnesses, counseling to manage their grandchildren and surviving adult children, and help negotiating the legal and social systems. Acknowledgement: Sigma Theta Tau, Kappa Nu Research Grant, T32 Primary Health Care Research Training Grant.</td></tr></table>en_GB
dc.date.available2011-10-26T23:15:07Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:15:07Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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