2.50
Hdl Handle:
http://hdl.handle.net/10755/161350
Type:
Presentation
Title:
End of Life Care for Persons with Heart Failure
Abstract:
End of Life Care for Persons with Heart Failure
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2004
Author:Pierce, Patricia, DNS, CNS, RN,
Title:Assistant Professor
Contact Address:Nursing, 1700 Mishawaka Ave., PO Box 7111, South Bend, IN, 46634-7111 , USA
Co-Authors:
End of Life Care for Persons with Heart Failure The goal of palliative care is to achieve the best possible quality of life for persons with incurable, progressive illnesses (Last Acts, 1997). Recent studies support the idea that people who are dying and their families experience numerous unmet needs (Desbiens, Mueller-Rizner, Conners, Wenger, & Lynn, 1999; Franks et al., 2000; The SUPPORT Study, 1995). To treat persons at the end-of-life without attention to quality of life neglects a central component of care. For many patients and their families, quality of life is more important than length of life. Heart failure affects nearly 5 million Americans with mortality averaging 250,000 annually (AHA, 2001). However, there is a dearth of research focused on end of life issues/concerns. The purposes of this project were to identify and evaluate the research articles relevant to quality of life at the end-of-life for persons with heart failure such that a model that described care at the end-of-life for this population might be developed. Arcs© software, a computer program for storing, organizing, and building graphical models of knowledge from the scientific literature, was used to develop the model. CINAHL and Medline (1990-2003) databases were searched for relevant research studies. The majority of the research was descriptive in design. Twenty-five dependent variables (care preferences, communication, and quality of life) and 26 independent variables (demographics, functional ability, and emotions) were studied. Many of the studies had sampling limits making generalization difficult. The model represents associational links between the variables and the limited breadth of outcomes that were studied. Several suggestions for future research can be derived: consistent use of a relevant theoretical framework to underpin the study, sampling issues, increased diversity, tool development, and studies designed to test interventions to enhance quality of life at the end of life
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleEnd of Life Care for Persons with Heart Failureen_GB
dc.identifier.urihttp://hdl.handle.net/10755/161350-
dc.description.abstract<table><tr><td colspan="2" class="item-title">End of Life Care for Persons with Heart Failure </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Pierce, Patricia, DNS, CNS, RN,</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Nursing, 1700 Mishawaka Ave., PO Box 7111, South Bend, IN, 46634-7111 , USA</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value"> </td></tr><tr><td colspan="2" class="item-abstract">End of Life Care for Persons with Heart Failure The goal of palliative care is to achieve the best possible quality of life for persons with incurable, progressive illnesses (Last Acts, 1997). Recent studies support the idea that people who are dying and their families experience numerous unmet needs (Desbiens, Mueller-Rizner, Conners, Wenger, &amp; Lynn, 1999; Franks et al., 2000; The SUPPORT Study, 1995). To treat persons at the end-of-life without attention to quality of life neglects a central component of care. For many patients and their families, quality of life is more important than length of life. Heart failure affects nearly 5 million Americans with mortality averaging 250,000 annually (AHA, 2001). However, there is a dearth of research focused on end of life issues/concerns. The purposes of this project were to identify and evaluate the research articles relevant to quality of life at the end-of-life for persons with heart failure such that a model that described care at the end-of-life for this population might be developed. Arcs&copy; software, a computer program for storing, organizing, and building graphical models of knowledge from the scientific literature, was used to develop the model. CINAHL and Medline (1990-2003) databases were searched for relevant research studies. The majority of the research was descriptive in design. Twenty-five dependent variables (care preferences, communication, and quality of life) and 26 independent variables (demographics, functional ability, and emotions) were studied. Many of the studies had sampling limits making generalization difficult. The model represents associational links between the variables and the limited breadth of outcomes that were studied. Several suggestions for future research can be derived: consistent use of a relevant theoretical framework to underpin the study, sampling issues, increased diversity, tool development, and studies designed to test interventions to enhance quality of life at the end of life</td></tr></table>en_GB
dc.date.available2011-10-26T23:19:57Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:19:57Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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