2.50
Hdl Handle:
http://hdl.handle.net/10755/161548
Type:
Presentation
Title:
Womens' Experiences Living with Rheumatoid Arthritis
Abstract:
Womens' Experiences Living with Rheumatoid Arthritis
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2002
Author:Schweitzer, Roberta
P.I. Institution Name:Indiana University-Kokomo
Title:Assistant Professor
Contact Address:School of Nursing, 2300 South Washington Street, PO Box 9003, Kokomo, IN, 46904-9003, USA
Contact Telephone:765.455.9326
Purpose: RA affects more than 2 million Americans and is 2 to 3 times more prevalent in women. The experience of women living with the pain of Rheumatoid Arthritis (RA) can be overwhelming. The purpose of this study was to explore women's perspectives on their experiences of living with severe, debilitating RA. The objectives included: 1) exploring individual meanings and experiences associated with RA pain, and 2) better understanding how these women maintain/enhance a satisfactory quality of life. Conceptual Framework: A Quality of Life model proposed by Spilker includes 5 dimensions (physical, psychological, social, economic, and spiritual) relevant to living with chronic disease. Sample & Method: Seven English-speaking and 5 Spanish-speaking women (Stage 3 or 4 RA) were interviewed 3 times in their homes. The semi-structured audio taped interviews focused on experiences of living with RA pain, and the impact of these experiences on their quality of life. Descriptive, phenomenological methods were used for data generation and analysis. Results: Eight overall patterns included: 1) Everything hurts but my hair"; 2) Living on a roller coaster; 3) Living in a shrinking world - betrayal of the body; 4) Perseverance; 5) Maintaining self in the midst of pain & suffering; 6) Transcending pain and uncertainty; 7) Creating meaning; 8) Cultural diversity and pain. Conclusions: Seeing the experience of pain from the perspective of women with RA is important for clinical practice and knowledge development. Appreciating the realities of lives punctuated by tides of pain and suffering helps nurses to enhance clinical practice by highlighting the "human" perspective. These findings are also important for the development and testing of nursing interventions to increase coping with RA pain and suffering.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleWomens' Experiences Living with Rheumatoid Arthritisen_GB
dc.identifier.urihttp://hdl.handle.net/10755/161548-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Womens' Experiences Living with Rheumatoid Arthritis</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Schweitzer, Roberta</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Indiana University-Kokomo</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 2300 South Washington Street, PO Box 9003, Kokomo, IN, 46904-9003, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">765.455.9326</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">roschwei@iuk.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose: RA affects more than 2 million Americans and is 2 to 3 times more prevalent in women. The experience of women living with the pain of Rheumatoid Arthritis (RA) can be overwhelming. The purpose of this study was to explore women's perspectives on their experiences of living with severe, debilitating RA. The objectives included: 1) exploring individual meanings and experiences associated with RA pain, and 2) better understanding how these women maintain/enhance a satisfactory quality of life. Conceptual Framework: A Quality of Life model proposed by Spilker includes 5 dimensions (physical, psychological, social, economic, and spiritual) relevant to living with chronic disease. Sample &amp; Method: Seven English-speaking and 5 Spanish-speaking women (Stage 3 or 4 RA) were interviewed 3 times in their homes. The semi-structured audio taped interviews focused on experiences of living with RA pain, and the impact of these experiences on their quality of life. Descriptive, phenomenological methods were used for data generation and analysis. Results: Eight overall patterns included: 1) Everything hurts but my hair&quot;; 2) Living on a roller coaster; 3) Living in a shrinking world - betrayal of the body; 4) Perseverance; 5) Maintaining self in the midst of pain &amp; suffering; 6) Transcending pain and uncertainty; 7) Creating meaning; 8) Cultural diversity and pain. Conclusions: Seeing the experience of pain from the perspective of women with RA is important for clinical practice and knowledge development. Appreciating the realities of lives punctuated by tides of pain and suffering helps nurses to enhance clinical practice by highlighting the &quot;human&quot; perspective. These findings are also important for the development and testing of nursing interventions to increase coping with RA pain and suffering.</td></tr></table>en_GB
dc.date.available2011-10-26T23:23:10Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:23:10Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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