American Indian Family Caregivers' Perceptions of the Quality of Health Care Information

2.50
Hdl Handle:
http://hdl.handle.net/10755/161588
Type:
Presentation
Title:
American Indian Family Caregivers' Perceptions of the Quality of Health Care Information
Abstract:
American Indian Family Caregivers' Perceptions of the Quality of Health Care Information
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2002
Author:Garwick, Ann
P.I. Institution Name:University of Minnesota
Title:Associate Professor
Contact Address:School of Nursing, 6-112 Weaver-Densford Hall, 308 Harvard Street SE, Minneapolis, MN, 55455, USA
Contact Telephone:612.624.1141
The national model of care for children with special health care needs calls for care to be family-centered and culturally competent. However, there are little data available about the quality of information that American Indian families receive regarding their children's chronic condition. To reduce health disparities and ensure that information is culturally relevant, it is important to evaluate American Indian family caregivers' perceptions of the quality of information as well as their satisfaction with information provided about their child's condition. This community-based project aims to identify rural American Indian family caregivers' perceptions of the quality of information received concerning their children's chronic condition. Utilizing participatory action research and the principles of family-centered care as the conceptual framework, this project involves a secondary analysis of data collected from the Indian Family Stories project. The sample included 41 Ojibwe family caregivers from a Midwest reservation who have a school-aged child with a chronic condition. Data were obtained through the administration of the 100-item "What Do You Think?" needs assessment survey. Major findings include the need to: 1) provide more useful information regarding children's conditions and available resources, 2) develop more culturally relevant educational materials, 3) increase satisfaction with health care information, and 4) provide adequate training and education of health care professionals, school personnel, and family and community members about childhood chronic conditions. Results from this study indicate that more needs to be done to ensure that American Indian families who care for children with chronic conditions in rural areas receive quality health care information. This study suggests that more education and training is also needed for health care providers that would enable them to provide more culturally competent care and develop quality educational information and programs for families.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleAmerican Indian Family Caregivers' Perceptions of the Quality of Health Care Informationen_GB
dc.identifier.urihttp://hdl.handle.net/10755/161588-
dc.description.abstract<table><tr><td colspan="2" class="item-title">American Indian Family Caregivers' Perceptions of the Quality of Health Care Information</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Garwick, Ann</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Minnesota</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 6-112 Weaver-Densford Hall, 308 Harvard Street SE, Minneapolis, MN, 55455, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">612.624.1141</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">garwi001@umn.edu</td></tr><tr><td colspan="2" class="item-abstract">The national model of care for children with special health care needs calls for care to be family-centered and culturally competent. However, there are little data available about the quality of information that American Indian families receive regarding their children's chronic condition. To reduce health disparities and ensure that information is culturally relevant, it is important to evaluate American Indian family caregivers' perceptions of the quality of information as well as their satisfaction with information provided about their child's condition. This community-based project aims to identify rural American Indian family caregivers' perceptions of the quality of information received concerning their children's chronic condition. Utilizing participatory action research and the principles of family-centered care as the conceptual framework, this project involves a secondary analysis of data collected from the Indian Family Stories project. The sample included 41 Ojibwe family caregivers from a Midwest reservation who have a school-aged child with a chronic condition. Data were obtained through the administration of the 100-item &quot;What Do You Think?&quot; needs assessment survey. Major findings include the need to: 1) provide more useful information regarding children's conditions and available resources, 2) develop more culturally relevant educational materials, 3) increase satisfaction with health care information, and 4) provide adequate training and education of health care professionals, school personnel, and family and community members about childhood chronic conditions. Results from this study indicate that more needs to be done to ensure that American Indian families who care for children with chronic conditions in rural areas receive quality health care information. This study suggests that more education and training is also needed for health care providers that would enable them to provide more culturally competent care and develop quality educational information and programs for families.</td></tr></table>en_GB
dc.date.available2011-10-26T23:23:52Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:23:52Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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