2.50
Hdl Handle:
http://hdl.handle.net/10755/161764
Type:
Presentation
Title:
Adult issues for persons with neural tube defects
Abstract:
Adult issues for persons with neural tube defects
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2001
Author:Nehring, Wendy, PhD
P.I. Institution Name:Southern Illinois University
Title:Professor
Contact Address:School of Nursing, Alumni Hall Room 2120, Box 1066, Edwardsville, IL, 62026-1066, USA
Contact Telephone:618.650.3934
The majority of what we know about childhood chronic illnesses is contained in the pediatric years. Much less is known about the trajectory of these chronic illnesses in adulthood. This is no less true for neural tube defects, of which spina bifida is most prevalent. Cohen's (1993) theory of diagnostic closure and the spread of uncertainty is being used as the conceptual framework. The purpose of this descriptive, qualitative research study is to retrospectively examine the transition to adulthood and further examine the current developmental and health care management issues, and future plans and concerns of Caucasian, Mexican-American, and African-American adults with neural tube defects, aged 20 to 50 years, and their mothers. All participants have been asked to complete a semi-structured interview, the Quality of Life Index, and the Beck Depression Inventory. An acculturation scale is completed by participants with a minority background. Preliminary results will be presented. Themes to date include teasing during the school years, skin and urinary concerns, ambulatory concerns for the present and future, intimacy issues, and primary health care concerns. Results from this study will greatly assist nurses in providing knowledgeable and optimal care to adults with neural tube defects and their families.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleAdult issues for persons with neural tube defectsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/161764-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Adult issues for persons with neural tube defects</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Nehring, Wendy, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Southern Illinois University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, Alumni Hall Room 2120, Box 1066, Edwardsville, IL, 62026-1066, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">618.650.3934</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">wnehrin@siue.edu</td></tr><tr><td colspan="2" class="item-abstract">The majority of what we know about childhood chronic illnesses is contained in the pediatric years. Much less is known about the trajectory of these chronic illnesses in adulthood. This is no less true for neural tube defects, of which spina bifida is most prevalent. Cohen's (1993) theory of diagnostic closure and the spread of uncertainty is being used as the conceptual framework. The purpose of this descriptive, qualitative research study is to retrospectively examine the transition to adulthood and further examine the current developmental and health care management issues, and future plans and concerns of Caucasian, Mexican-American, and African-American adults with neural tube defects, aged 20 to 50 years, and their mothers. All participants have been asked to complete a semi-structured interview, the Quality of Life Index, and the Beck Depression Inventory. An acculturation scale is completed by participants with a minority background. Preliminary results will be presented. Themes to date include teasing during the school years, skin and urinary concerns, ambulatory concerns for the present and future, intimacy issues, and primary health care concerns. Results from this study will greatly assist nurses in providing knowledgeable and optimal care to adults with neural tube defects and their families.</td></tr></table>en_GB
dc.date.available2011-10-26T23:26:58Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:26:58Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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