Using an Evidence-Based Approach to Improve Care for Children with Special Health Care Needs

2.50
Hdl Handle:
http://hdl.handle.net/10755/162128
Category:
Abstract
Type:
Presentation
Title:
Using an Evidence-Based Approach to Improve Care for Children with Special Health Care Needs
Author(s):
Havener, Jeanne-Marie E.; Fullington, Cynthia; Cassasa, Rita
Author Details:
Jeanne-Marie E. Havener, PhD, CNS, FNP, Bassett Healthcare, Cooperstown, New York, USA, email: havenerj@hartwick.edu; Cynthia Fullington, RN, AD; Rita Cassasa, HCSN, Hartwick College
Abstract:
Purpose: To better understand the particular needs of a rural pediatric population with special health care needs from both a family and provider perspective. Background: Children with special health care needs (CSHCN) are "those who have or are at elevated risk for a chronic, physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children in general" (McPherson, 2000). As many as 18% of the children in the United States could be described as CSHCN. The concept of the "medical home" recognizes the need for care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective (Sia et al., 2002, p. 184). In this conceptual model all levels of care are provided by a primary care provider, working in concert with the patient and family, from birth through adolescence. Methods (Design, Participants, Setting, Data Collection, Analytic approach): Design: qualitative. Participants: 3 groups; parents/guardians of CSHCN, primary care providers of CSHCN, and staff working in support of providers of CSHCN. Setting: rural, Upstate New York. Data Collection: 1-2 hour focus groups using a script with open-ended questions. Analytic approach: thematic analysis and q-sorting. Results: Overall, the results indicated that points of transition are particularly difficult for parents/guardians and the children. The care of a CSHCN in a rural area is complicated by issues of geography, time, and distance which translates into greater personal and economic costs. Staff and providers are particularly challenged to provide care consistent with the medical home model in a rural underserved area. Ideas for system improvements are explored. Conclusions and Implications: CSHCN provide particular challenges in a managed care environment that is layered upon a rural health care system; these challenges may translate into health disparities that need to be addressed through system changes.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2007
Conference Name:
19th Annual Scientific Sessions
Conference Host:
Eastern Nursing Research Society
Conference Location:
Providence, Rhode Island, USA
Description:
Conference theme: Building Communities of Scholarship and Research, held April 12-14, 2007 at The Westin Providence.
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleUsing an Evidence-Based Approach to Improve Care for Children with Special Health Care Needsen_GB
dc.contributor.authorHavener, Jeanne-Marie E.en_US
dc.contributor.authorFullington, Cynthiaen_US
dc.contributor.authorCassasa, Ritaen_US
dc.author.detailsJeanne-Marie E. Havener, PhD, CNS, FNP, Bassett Healthcare, Cooperstown, New York, USA, email: havenerj@hartwick.edu; Cynthia Fullington, RN, AD; Rita Cassasa, HCSN, Hartwick Collegeen_US
dc.identifier.urihttp://hdl.handle.net/10755/162128-
dc.description.abstractPurpose: To better understand the particular needs of a rural pediatric population with special health care needs from both a family and provider perspective. Background: Children with special health care needs (CSHCN) are "those who have or are at elevated risk for a chronic, physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children in general" (McPherson, 2000). As many as 18% of the children in the United States could be described as CSHCN. The concept of the "medical home" recognizes the need for care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective (Sia et al., 2002, p. 184). In this conceptual model all levels of care are provided by a primary care provider, working in concert with the patient and family, from birth through adolescence. Methods (Design, Participants, Setting, Data Collection, Analytic approach): Design: qualitative. Participants: 3 groups; parents/guardians of CSHCN, primary care providers of CSHCN, and staff working in support of providers of CSHCN. Setting: rural, Upstate New York. Data Collection: 1-2 hour focus groups using a script with open-ended questions. Analytic approach: thematic analysis and q-sorting. Results: Overall, the results indicated that points of transition are particularly difficult for parents/guardians and the children. The care of a CSHCN in a rural area is complicated by issues of geography, time, and distance which translates into greater personal and economic costs. Staff and providers are particularly challenged to provide care consistent with the medical home model in a rural underserved area. Ideas for system improvements are explored. Conclusions and Implications: CSHCN provide particular challenges in a managed care environment that is layered upon a rural health care system; these challenges may translate into health disparities that need to be addressed through system changes.en_GB
dc.date.available2011-10-27T11:01:23Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T11:01:23Z-
dc.conference.date2007en_US
dc.conference.name19th Annual Scientific Sessionsen_US
dc.conference.hostEastern Nursing Research Societyen_US
dc.conference.locationProvidence, Rhode Island, USAen_US
dc.descriptionConference theme: Building Communities of Scholarship and Research, held April 12-14, 2007 at The Westin Providence.en_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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