Enhancing Information Technology for Children and Parents: Genetic Information for Testing-Diabetes (GIFT-D)

2.50
Hdl Handle:
http://hdl.handle.net/10755/163341
Category:
Abstract
Type:
Presentation
Title:
Enhancing Information Technology for Children and Parents: Genetic Information for Testing-Diabetes (GIFT-D)
Author(s):
Dorman, Janice; Charron-Prochownik, Denise; Siminerio, Linda; Ryan, Christopher; Conley, Yvette; Poole, Cathy; Bashira, Charles
Author Details:
Janice Dorman, PhD, Associate Dean, University of Pittsburgh School of Nursing, Pittsburgh, Pennsylvania, USA, email: jsd@pitt.edu; Denise Charron-Prochownik; Linda Siminerio; Christopher Ryan; Yvette Conley; Cathy Poole; Charles Bashira
Abstract:
Purpose: This presentation will describe the GIFT-D program for parents and children. We will focus on the health care delivery mode, genetics, ethics, and telemedicine aspects of the program. Theoretical Framework: Type 1 diabetes (T1D) is one of the most common chronic diseases of childhood. Our team has been investigating the etiology and epidemiology of this life-threatening disorder in Allegheny County, PA, and many other countries in collaboration with the World Health Organization (WHO). In addition, the Human Genome Project has increased our understanding of the genetics of T1D. This has created challenges for health professionals and their patients, many of whom are being recruited for genetic research. Methods (Design, Sample, Setting, Measures, Analysis): These challenges can be met by using information technology to design genetic education programs, which can be integrated into clinical practice. As part of the GIFT-D (Genetic Information for Testing - Diabetes) Project, an interdisciplinary team of nurse researchers, genetic epidemiologists, and psychologists developed parallel comprehensive interactive web-based genetic education/ counseling programs for health professionals, parents, and children involved in genetic studies of T1D. Results: The genetic education programs consists of: 1) basic human genetics, 2) the genetic of diabetes, and 3) genetic testing and receiving results. Conclusions and Implications: This model can serve as a prototype for type 2 diabetes and other diseases. Genetic education programs for health are becoming increasingly important as the results of the Human Genome Project begin to change the practice of health care. Internet technology offers an ideal solution for health professionals. [Symposium presentation]
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2006
Conference Name:
18th Annual Scientific Sessions
Conference Host:
Eastern Nursing Research Society
Conference Location:
Cherry Hill, New Jersey
Description:
�New Momentum for Nursing Research: Multidisciplinary Alliances�, held on April 20th -22nd at the Hilton in Cherry Hill, New Jersey
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleEnhancing Information Technology for Children and Parents: Genetic Information for Testing-Diabetes (GIFT-D)en_GB
dc.contributor.authorDorman, Janiceen_US
dc.contributor.authorCharron-Prochownik, Deniseen_US
dc.contributor.authorSiminerio, Lindaen_US
dc.contributor.authorRyan, Christopheren_US
dc.contributor.authorConley, Yvetteen_US
dc.contributor.authorPoole, Cathyen_US
dc.contributor.authorBashira, Charlesen_US
dc.author.detailsJanice Dorman, PhD, Associate Dean, University of Pittsburgh School of Nursing, Pittsburgh, Pennsylvania, USA, email: jsd@pitt.edu; Denise Charron-Prochownik; Linda Siminerio; Christopher Ryan; Yvette Conley; Cathy Poole; Charles Bashiraen_US
dc.identifier.urihttp://hdl.handle.net/10755/163341-
dc.description.abstractPurpose: This presentation will describe the GIFT-D program for parents and children. We will focus on the health care delivery mode, genetics, ethics, and telemedicine aspects of the program. Theoretical Framework: Type 1 diabetes (T1D) is one of the most common chronic diseases of childhood. Our team has been investigating the etiology and epidemiology of this life-threatening disorder in Allegheny County, PA, and many other countries in collaboration with the World Health Organization (WHO). In addition, the Human Genome Project has increased our understanding of the genetics of T1D. This has created challenges for health professionals and their patients, many of whom are being recruited for genetic research. Methods (Design, Sample, Setting, Measures, Analysis): These challenges can be met by using information technology to design genetic education programs, which can be integrated into clinical practice. As part of the GIFT-D (Genetic Information for Testing - Diabetes) Project, an interdisciplinary team of nurse researchers, genetic epidemiologists, and psychologists developed parallel comprehensive interactive web-based genetic education/ counseling programs for health professionals, parents, and children involved in genetic studies of T1D. Results: The genetic education programs consists of: 1) basic human genetics, 2) the genetic of diabetes, and 3) genetic testing and receiving results. Conclusions and Implications: This model can serve as a prototype for type 2 diabetes and other diseases. Genetic education programs for health are becoming increasingly important as the results of the Human Genome Project begin to change the practice of health care. Internet technology offers an ideal solution for health professionals. [Symposium presentation]en_GB
dc.date.available2011-10-27T11:05:47Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T11:05:47Z-
dc.conference.date2006en_US
dc.conference.name18th Annual Scientific Sessionsen_US
dc.conference.hostEastern Nursing Research Societyen_US
dc.conference.locationCherry Hill, New Jerseyen_US
dc.description�New Momentum for Nursing Research: Multidisciplinary Alliances�, held on April 20th -22nd at the Hilton in Cherry Hill, New Jerseyen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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