2.50
Hdl Handle:
http://hdl.handle.net/10755/163350
Category:
Abstract
Type:
Presentation
Title:
Caring Connection: Developing a Web Resource for Parents of Children with Cancer
Author(s):
Lewis, Deborah
Author Details:
Deborah Lewis, University of Pittsburgh School of Nursing, Pittsburgh, Pennsylvania, USA, email: deblewis@pitt.edu
Abstract:
Purpose: This presentation will describe the development of a family-focused, web-based resource, the Caring Connection, designed to provide individualized clinical information, patient-centered information resources, and access to online family-provider and family-to-family communication groups for caregivers of children with cancer. Background: When a child is diagnosed with cancer his/her family caregivers are faced with a myriad of decisions often made while the family deals with overwhelming stresses related to the diagnosis, treatment and uncertainty of outcomes. It is difficult to achieve the level of face-to-face information exchange desired by families and providers. With increasing frequency today's families are turning to the Internet for answers to their unmet health information needs. However, evidence suggests that they may have little confidence in the information they are finding and may become even more confused as a result. Methods (Design, Participants, Setting, Data Collection, Analytic approach): This study is using mixed methods of collecting and analyzing data. Currently we are conducting ethnographic participant interviews and content analysis of Caring Connection communication group interactions. In addition, we are using quantitative techniques to assess patterns of use of the web-based resource. Results: Ethnographic interview data and Internet use data are currently being analyzed, early results suggest that usage declines when a child's illness worsens, we are exploring this theme to understand its meaning (time vs information overload vs fear of finding more "bad" news). Other preliminary results suggest that parents use Internet resources to reduce stress (online shopping, travel planning, etc.). Conclusions and Implications: The family caregivers and oncology healthcare providers who are participating are active users of Internet health information. The preliminary data they have provided support the feasibility and usability of the "Caring Connection" prototype. Ongoing development of the "Caring Connection" will provide evidence regarding "best practice" in design and development of Internet resources to support communication and information sharing. [Symposium presentation]
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2006
Conference Name:
18th Annual Scientific Sessions
Conference Host:
Eastern Nursing Research Society
Conference Location:
Cherry Hill, New Jersey
Description:
�New Momentum for Nursing Research: Multidisciplinary Alliances�, held on April 20th -22nd at the Hilton in Cherry Hill, New Jersey
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleCaring Connection: Developing a Web Resource for Parents of Children with Canceren_GB
dc.contributor.authorLewis, Deborahen_US
dc.author.detailsDeborah Lewis, University of Pittsburgh School of Nursing, Pittsburgh, Pennsylvania, USA, email: deblewis@pitt.eduen_US
dc.identifier.urihttp://hdl.handle.net/10755/163350-
dc.description.abstractPurpose: This presentation will describe the development of a family-focused, web-based resource, the Caring Connection, designed to provide individualized clinical information, patient-centered information resources, and access to online family-provider and family-to-family communication groups for caregivers of children with cancer. Background: When a child is diagnosed with cancer his/her family caregivers are faced with a myriad of decisions often made while the family deals with overwhelming stresses related to the diagnosis, treatment and uncertainty of outcomes. It is difficult to achieve the level of face-to-face information exchange desired by families and providers. With increasing frequency today's families are turning to the Internet for answers to their unmet health information needs. However, evidence suggests that they may have little confidence in the information they are finding and may become even more confused as a result. Methods (Design, Participants, Setting, Data Collection, Analytic approach): This study is using mixed methods of collecting and analyzing data. Currently we are conducting ethnographic participant interviews and content analysis of Caring Connection communication group interactions. In addition, we are using quantitative techniques to assess patterns of use of the web-based resource. Results: Ethnographic interview data and Internet use data are currently being analyzed, early results suggest that usage declines when a child's illness worsens, we are exploring this theme to understand its meaning (time vs information overload vs fear of finding more "bad" news). Other preliminary results suggest that parents use Internet resources to reduce stress (online shopping, travel planning, etc.). Conclusions and Implications: The family caregivers and oncology healthcare providers who are participating are active users of Internet health information. The preliminary data they have provided support the feasibility and usability of the "Caring Connection" prototype. Ongoing development of the "Caring Connection" will provide evidence regarding "best practice" in design and development of Internet resources to support communication and information sharing. [Symposium presentation]en_GB
dc.date.available2011-10-27T11:05:57Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T11:05:57Z-
dc.conference.date2006en_US
dc.conference.name18th Annual Scientific Sessionsen_US
dc.conference.hostEastern Nursing Research Societyen_US
dc.conference.locationCherry Hill, New Jerseyen_US
dc.description�New Momentum for Nursing Research: Multidisciplinary Alliances�, held on April 20th -22nd at the Hilton in Cherry Hill, New Jerseyen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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