From Sadness to action: FathersÆ reflections on parenting young children with type 1 diabetes

2.50
Hdl Handle:
http://hdl.handle.net/10755/163571
Category:
Abstract
Type:
Presentation
Title:
From Sadness to action: FathersÆ reflections on parenting young children with type 1 diabetes
Author(s):
Sullivan-Bolyai, Susan; Rosenberg, Rachel; Bayard, Micaela
Author Details:
Susan Sullivan-Bolyai, DNSc, CNS, RN, Assistant Professor, University of Massachusetts, Worcester, Massachusetts, USA, email: susan.sullivan-bolyai@umassmed.edu; Rachel Rosenberg; Micaela Bayard
Abstract:
Purpose: Although much has been written about mothers and their distress and burden of care when a child is newly diagnosed with a chronic condition, and that they are usually identified as the primary caregiver and decision-maker, fathers also play an important and powerful role in nurturing and supporting these children. Fathers have reported feeling totally unprepared for not only the illness-related care required, but the time devoted to illness management and its affect on family. From a family perspective, it is important to explore fathers' experiences after a child is diagnosed and how they participate in the day-to-day management. No studies were found that specifically described the father's experience raising young children with type 1 diabetes. Therefore, the purpose of this study was to describe how fathers emotionally processed the new diagnosis, learned the care, and what types of strategies they used to incorporate illness management into their daily lives. Methods: A qualitative descriptive design was used with open- ended in-depth interviews of purposively selected involved fathers (14 fathers, 16 interviews) who had at least one young child (2-8 years old) with type 1 diabetes. Data were managed (NVivo software) and analyzed using principles of naturalistic inquiry. Results: Fathers' data revealed 6 themes: 1). "Shock and awe" (after the diagnosis); 2). followed by their quick response to the situation and learning the care: "suck it up and do it"; 3) "staying in the loop" (in regards to practicing the skills, tasks, and responsibilities associated with diabetes management); 4)"partnerships in care" (sometimes referred to as tag teaming or co-parenting); 5)"motherly fathers" (descriptions of their involvement in parenting their children), and finally, 6)"my mantra for living with it: Child 1st, diabetes 2nd." Descriptions and illustrations of each theme will be presented as well as strategies they used to help them deal with the diagnosis and illness management. Conclusions and Implications: Fathers described the process they experienced in becoming involved participants in their children's day-to-day management. Their recommendations and 'tricks of the trade" are being incorporated into a father mentor intervention for parents of young children newly diagnosed with type 1 diabetes.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2005
Conference Name:
17th Annual Scientific Sessions
Conference Host:
Eastern Nursing Research Society
Conference Location:
New York, New York, USA
Description:
�Translational Research for Quality Health Outcomes: Affecting Practice and Healthcare Policy�, held on April 7th -9th at the Roosevelt Hotel, New York
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleFrom Sadness to action: FathersÆ reflections on parenting young children with type 1 diabetesen_GB
dc.contributor.authorSullivan-Bolyai, Susanen_US
dc.contributor.authorRosenberg, Rachelen_US
dc.contributor.authorBayard, Micaelaen_US
dc.author.detailsSusan Sullivan-Bolyai, DNSc, CNS, RN, Assistant Professor, University of Massachusetts, Worcester, Massachusetts, USA, email: susan.sullivan-bolyai@umassmed.edu; Rachel Rosenberg; Micaela Bayarden_US
dc.identifier.urihttp://hdl.handle.net/10755/163571-
dc.description.abstractPurpose: Although much has been written about mothers and their distress and burden of care when a child is newly diagnosed with a chronic condition, and that they are usually identified as the primary caregiver and decision-maker, fathers also play an important and powerful role in nurturing and supporting these children. Fathers have reported feeling totally unprepared for not only the illness-related care required, but the time devoted to illness management and its affect on family. From a family perspective, it is important to explore fathers' experiences after a child is diagnosed and how they participate in the day-to-day management. No studies were found that specifically described the father's experience raising young children with type 1 diabetes. Therefore, the purpose of this study was to describe how fathers emotionally processed the new diagnosis, learned the care, and what types of strategies they used to incorporate illness management into their daily lives. Methods: A qualitative descriptive design was used with open- ended in-depth interviews of purposively selected involved fathers (14 fathers, 16 interviews) who had at least one young child (2-8 years old) with type 1 diabetes. Data were managed (NVivo software) and analyzed using principles of naturalistic inquiry. Results: Fathers' data revealed 6 themes: 1). "Shock and awe" (after the diagnosis); 2). followed by their quick response to the situation and learning the care: "suck it up and do it"; 3) "staying in the loop" (in regards to practicing the skills, tasks, and responsibilities associated with diabetes management); 4)"partnerships in care" (sometimes referred to as tag teaming or co-parenting); 5)"motherly fathers" (descriptions of their involvement in parenting their children), and finally, 6)"my mantra for living with it: Child 1st, diabetes 2nd." Descriptions and illustrations of each theme will be presented as well as strategies they used to help them deal with the diagnosis and illness management. Conclusions and Implications: Fathers described the process they experienced in becoming involved participants in their children's day-to-day management. Their recommendations and 'tricks of the trade" are being incorporated into a father mentor intervention for parents of young children newly diagnosed with type 1 diabetes.en_GB
dc.date.available2011-10-27T11:09:53Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T11:09:53Z-
dc.conference.date2005en_US
dc.conference.name17th Annual Scientific Sessionsen_US
dc.conference.hostEastern Nursing Research Societyen_US
dc.conference.locationNew York, New York, USAen_US
dc.description�Translational Research for Quality Health Outcomes: Affecting Practice and Healthcare Policy�, held on April 7th -9th at the Roosevelt Hotel, New Yorken_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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