Experiences of Cancer Patients, Survivors, and Caregivers with Healthcare Providers in the Context of Online Health Information and Resources

2.50
Hdl Handle:
http://hdl.handle.net/10755/164591
Category:
Abstract
Type:
Presentation
Title:
Experiences of Cancer Patients, Survivors, and Caregivers with Healthcare Providers in the Context of Online Health Information and Resources
Author(s):
Dolce, Maria
Author Details:
Maria Dolce, MA, RN, CNAA-BC, New York University College of Nursing, New York, New York, USA, email: maria.dolce@yahoo.com
Abstract:
Research Study: Data from the Health Information National Trends Survey revealed an increase in seeking cancer information on the Internet. Cancer patients reported a healthcare provider as their preferred source of information during the first year of a cancer diagnosis; whereas, Internet usage exceeded healthcare providers as the preferred source of information for cancer survivors two years and beyond post-diagnosis. Little is known about how the Internet, as a source of health information and resources, impacts the clinical encounter between patients and healthcare providers in cancer care. The purpose of this qualitative descriptive study was to discover recurring themes regarding the healthcare consumer-provider relationship in the context of cancer online health information and resources. This research endeavor is aligned with the Oncology Nursing Society's research priority addressing the transformative health experiences of cancer survivors and family members. A qualitative descriptive approach was used to describe the experiences of cancer patients, survivors, and caregivers with healthcare providers in the context of online health information and resources. A secondary analysis of existing data from the Pew Internet and American Life Project. These data were analyzed using Krippendorff's method of qualitative content analysis. Study sample (N = 1,680) included participants of online cancer support groups or mailing lists. Thematic clustering of these data resulted in the emergence of recurring patterns: disenchantment with healthcare providers and failed expectations related to best research evidence, clinical expertise, informational support, and therapeutic interpersonal communication; consumers exercising freedom through collaboration, confrontation, verification, and being expert; and consumer values and preferences. Findings are contextualized within Roger's Diffusion of Innovations Theory and Bandura's Social Cognitive Theory. Diffusion of health information is communicated through a social system of online cancer support groups or mailing lists and impacts the consumer-provider relationship as a decision-making unit. Consumers exercise their freedom or autonomy by exerting power and influence in their relationship with healthcare providers. Clinical encounters between consumers and providers are characterized by patterns of convergence and divergence related to cancer care decisions. Results inform a model of the ideal consumer-provider relationship in supporting cancer survivors and caregivers throughout their journey.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2009
Conference Name:
34th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
San Antonio, Texas, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleExperiences of Cancer Patients, Survivors, and Caregivers with Healthcare Providers in the Context of Online Health Information and Resourcesen_GB
dc.contributor.authorDolce, Mariaen_US
dc.author.detailsMaria Dolce, MA, RN, CNAA-BC, New York University College of Nursing, New York, New York, USA, email: maria.dolce@yahoo.comen_US
dc.identifier.urihttp://hdl.handle.net/10755/164591-
dc.description.abstractResearch Study: Data from the Health Information National Trends Survey revealed an increase in seeking cancer information on the Internet. Cancer patients reported a healthcare provider as their preferred source of information during the first year of a cancer diagnosis; whereas, Internet usage exceeded healthcare providers as the preferred source of information for cancer survivors two years and beyond post-diagnosis. Little is known about how the Internet, as a source of health information and resources, impacts the clinical encounter between patients and healthcare providers in cancer care. The purpose of this qualitative descriptive study was to discover recurring themes regarding the healthcare consumer-provider relationship in the context of cancer online health information and resources. This research endeavor is aligned with the Oncology Nursing Society's research priority addressing the transformative health experiences of cancer survivors and family members. A qualitative descriptive approach was used to describe the experiences of cancer patients, survivors, and caregivers with healthcare providers in the context of online health information and resources. A secondary analysis of existing data from the Pew Internet and American Life Project. These data were analyzed using Krippendorff's method of qualitative content analysis. Study sample (N = 1,680) included participants of online cancer support groups or mailing lists. Thematic clustering of these data resulted in the emergence of recurring patterns: disenchantment with healthcare providers and failed expectations related to best research evidence, clinical expertise, informational support, and therapeutic interpersonal communication; consumers exercising freedom through collaboration, confrontation, verification, and being expert; and consumer values and preferences. Findings are contextualized within Roger's Diffusion of Innovations Theory and Bandura's Social Cognitive Theory. Diffusion of health information is communicated through a social system of online cancer support groups or mailing lists and impacts the consumer-provider relationship as a decision-making unit. Consumers exercise their freedom or autonomy by exerting power and influence in their relationship with healthcare providers. Clinical encounters between consumers and providers are characterized by patterns of convergence and divergence related to cancer care decisions. Results inform a model of the ideal consumer-provider relationship in supporting cancer survivors and caregivers throughout their journey.en_GB
dc.date.available2011-10-27T12:03:26Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:03:26Z-
dc.conference.date2009en_US
dc.conference.name34th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationSan Antonio, Texas, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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