2.50
Hdl Handle:
http://hdl.handle.net/10755/164676
Category:
Abstract
Type:
Presentation
Title:
Cancer Pain Experience as Expressed By Patients Through an Online Forum
Author(s):
Neumann, J; Page, R; Im, EO
Author Details:
J Neumann, The University of Texas at Austin, Austin, Texas, USA; R. Page; E. O. Im
Abstract:
A lack of knowledge and respect for the cancer patients’ own views and lived experience with cancer pain and its management are reasons for frequent miscommunication. It is imperative to explore how cancer patients themselves experience cancer pain assessment and management in order to provide healthcare professionals with additional information. Purpose: The purpose of this study was to explore cancer patients’ own experiences with pain and pain management processes through an online forum. Theoretical/Scientific Framework: This study was based on a feminist approach that seeks to gather information from the views, perspectives, opinions, and experiences of the research participants. Methods: This is a cross-sectional feminist qualitative study through an online forum. Twenty-five self-identified White cancer pain patients were recruited using a convenience sampling. Nine topics on cancer pain experience, assessment and management were used for the online forum. The participants were provided an access code to enter the site and asked to post their responses. One to two topics were posted every month, and data collection occurred over 6 months. All information about the study including the informed consent was shared through a secured website. Data Analysis: Thematic data analysis was performed, beginning with line-by-line coding using N-6. Then, categorization of the codes and idea categories were identified. Research group discussions were also conducted to extract categories and themes. Findings and Implications: Four major themes were identified. The first was “emotional pain” that they and their families experienced related to the disease processes. The second was uncertainty related to diagnosis, future, and significance of the pain. The third was “stigma” associated with the diagnosis and chronic pain. A related theme was “indifference or lack of acknowledgement” by friends and family. The fourth theme was “defining the cancer experience.” Most participants indicated their acceptance of their diagnoses and desire to confront the facts. The findings suggest that health care providers need to respect cancer patients’ own experiences related to pain, and consider contextual factors circumscribing cancer pain experiences. The findings also suggest that online forums are an excellent method for qualitative data collection among cancer patients and serves as a support network for the shared experience of cancer patients with pain.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2005
Conference Name:
30th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Orlando, Florida, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleCancer Pain Experience as Expressed By Patients Through an Online Forumen_GB
dc.contributor.authorNeumann, Jen_US
dc.contributor.authorPage, Ren_US
dc.contributor.authorIm, EOen_US
dc.author.detailsJ Neumann, The University of Texas at Austin, Austin, Texas, USA; R. Page; E. O. Imen_US
dc.identifier.urihttp://hdl.handle.net/10755/164676-
dc.description.abstractA lack of knowledge and respect for the cancer patients’ own views and lived experience with cancer pain and its management are reasons for frequent miscommunication. It is imperative to explore how cancer patients themselves experience cancer pain assessment and management in order to provide healthcare professionals with additional information. Purpose: The purpose of this study was to explore cancer patients’ own experiences with pain and pain management processes through an online forum. Theoretical/Scientific Framework: This study was based on a feminist approach that seeks to gather information from the views, perspectives, opinions, and experiences of the research participants. Methods: This is a cross-sectional feminist qualitative study through an online forum. Twenty-five self-identified White cancer pain patients were recruited using a convenience sampling. Nine topics on cancer pain experience, assessment and management were used for the online forum. The participants were provided an access code to enter the site and asked to post their responses. One to two topics were posted every month, and data collection occurred over 6 months. All information about the study including the informed consent was shared through a secured website. Data Analysis: Thematic data analysis was performed, beginning with line-by-line coding using N-6. Then, categorization of the codes and idea categories were identified. Research group discussions were also conducted to extract categories and themes. Findings and Implications: Four major themes were identified. The first was “emotional pain” that they and their families experienced related to the disease processes. The second was uncertainty related to diagnosis, future, and significance of the pain. The third was “stigma” associated with the diagnosis and chronic pain. A related theme was “indifference or lack of acknowledgement” by friends and family. The fourth theme was “defining the cancer experience.” Most participants indicated their acceptance of their diagnoses and desire to confront the facts. The findings suggest that health care providers need to respect cancer patients’ own experiences related to pain, and consider contextual factors circumscribing cancer pain experiences. The findings also suggest that online forums are an excellent method for qualitative data collection among cancer patients and serves as a support network for the shared experience of cancer patients with pain.en_GB
dc.date.available2011-10-27T12:04:59Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:04:59Z-
dc.conference.date2005en_US
dc.conference.name30th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationOrlando, Florida, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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