2.50
Hdl Handle:
http://hdl.handle.net/10755/164984
Category:
Abstract
Type:
Presentation
Title:
Mycosis Fungoides: Development of Patient Education Material
Author(s):
Horace, Patricia; Dabaja, Bouthaina
Author Details:
Patricia Horace, RN, BSN, MSN, Outpatient Clinical Nurse, UT MD Anderson Cancer Center, Houston, Texas, USA, email: Phorace@MDAnderson.org; Bouthaina Dabaja, MD
Abstract:
Education: Mycosis Fungoides, a rare skin disorder often misdiagnosed for many years. One of the most effective therapies is Total Skin Electron Beam. This is a complex treatment over 8 weeks, it is associated with serious short and long term side effects including: debilitating pain, especially in the extremities, skin ulcers, infection, and fatigue. Education about the disease, treatment, and treatment related side effects should be initiated immediately before treatment and continue throughout and after completion of therapy. The complexity in managing side effects requires a well structured team effort between the oncologist and the oncology nurse to provide the appropriate care. The purpose of this project was to develop a brochure presenting key information to patients and their families, including: nature of the disease, treatment details, short and long term side effects of the disease and the treatment, managing side effects, and finally the prognosis. A patient education brochure was developed in collaboration with the Radiation Oncologist, the radiation oncology nurse, and the radiation therapists. The brochure outlines the treatment sessions, the awkward and incommodious positions during treatment, expected side effects, and an overview of care and precautions to be taken. The brochure was submitted and accepted as part of the education teaching for Mycosis Fungoides patients. It is a teaching material used by the nurse primarily, and later by the therapist as a reinforcement teaching tool during treatment. Many patients expressed their satisfaction and peace of mind regarding the educational material and the explanations about the treatment plan. Patients are reporting side effects much sooner since they know now what to look for during and after treatment. In addition, physicians, nurses, and therapists have a common information tool to refer to. Mycosis Fungoides is a skin cancer that is rarely addressed in the nursing community, including oncology nurses, who have little experience in dealing with the disease especially managing the serious side effects of treatment. Patients are now less apprehensive about the disease and therapy as they cope with the disease and the treatment side effects.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2009
Conference Name:
34th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
San Antonio, Texas, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleMycosis Fungoides: Development of Patient Education Materialen_GB
dc.contributor.authorHorace, Patriciaen_US
dc.contributor.authorDabaja, Bouthainaen_US
dc.author.detailsPatricia Horace, RN, BSN, MSN, Outpatient Clinical Nurse, UT MD Anderson Cancer Center, Houston, Texas, USA, email: Phorace@MDAnderson.org; Bouthaina Dabaja, MDen_US
dc.identifier.urihttp://hdl.handle.net/10755/164984-
dc.description.abstractEducation: Mycosis Fungoides, a rare skin disorder often misdiagnosed for many years. One of the most effective therapies is Total Skin Electron Beam. This is a complex treatment over 8 weeks, it is associated with serious short and long term side effects including: debilitating pain, especially in the extremities, skin ulcers, infection, and fatigue. Education about the disease, treatment, and treatment related side effects should be initiated immediately before treatment and continue throughout and after completion of therapy. The complexity in managing side effects requires a well structured team effort between the oncologist and the oncology nurse to provide the appropriate care. The purpose of this project was to develop a brochure presenting key information to patients and their families, including: nature of the disease, treatment details, short and long term side effects of the disease and the treatment, managing side effects, and finally the prognosis. A patient education brochure was developed in collaboration with the Radiation Oncologist, the radiation oncology nurse, and the radiation therapists. The brochure outlines the treatment sessions, the awkward and incommodious positions during treatment, expected side effects, and an overview of care and precautions to be taken. The brochure was submitted and accepted as part of the education teaching for Mycosis Fungoides patients. It is a teaching material used by the nurse primarily, and later by the therapist as a reinforcement teaching tool during treatment. Many patients expressed their satisfaction and peace of mind regarding the educational material and the explanations about the treatment plan. Patients are reporting side effects much sooner since they know now what to look for during and after treatment. In addition, physicians, nurses, and therapists have a common information tool to refer to. Mycosis Fungoides is a skin cancer that is rarely addressed in the nursing community, including oncology nurses, who have little experience in dealing with the disease especially managing the serious side effects of treatment. Patients are now less apprehensive about the disease and therapy as they cope with the disease and the treatment side effects.en_GB
dc.date.available2011-10-27T12:10:29Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:10:29Z-
dc.conference.date2009en_US
dc.conference.name34th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationSan Antonio, Texas, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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