Which quality of life issues are rated by patients as being the most important: Results of a survey of 3860 patients with breast, lung and prostate cancer?

2.50
Hdl Handle:
http://hdl.handle.net/10755/164985
Category:
Abstract
Type:
Presentation
Title:
Which quality of life issues are rated by patients as being the most important: Results of a survey of 3860 patients with breast, lung and prostate cancer?
Author(s):
Horigan, Jennifer; Hollen, Patricia; Davis, Beverly; Petersen, Judith; Burg, Kendra; Belland, Angela; Gralla, Richard
Author Details:
Jennifer Horigan, CRNP, Nurse Practitioner, North Shore-LIJ Health System, Lake Success, New York, USA, email: feiljen@yahoo.com; Patricia Hollen, PhD, RN, FAAN, U. of Virginia, Charlottesville; Beverly Davis, RN, MSN, AOCN; Judith Petersen, RN, MN, AOCN; Kenda Burg; Angela Belland, Nex Cura, Seattle, Washington; Richard Gralla
Abstract:
Research Study: Identifying issues of importance for patients with cancer is central to assessing health- related quality of life (QL) and patient reported outcomes. These data are critical for patients to be able to communicate effectively with oncology nurses. Validated QL instruments aid in evaluating the effectiveness of interventions and in assuring that appropriate goals are met. To determine among the many issues, which are considered to be the most important, and whether the ratings differ by cancer type, gender, age group or other key factors, as assessed with the patient-rated: Lung Cancer Symptom Scale (LCSS), Prostate Cancer Symptom Scale (PCSS), and Breast Cancer Symptom Scale (BCSS). The underpinning framework of these instruments is based on a published conceptual model. This model indicates that areas of change are captured in detail, while those dimensions less likely to vary are captured more globally. We utilized the established web-based patient information resource, NexCura, to electronically survey registered patients with lung (660 patients), prostate (2128 patients), or breast cancer (1072 patients). Surveys were completed anonymously online. Characteristics included disease stage, age, gender, and treatment history. Patients ranked issues (20-lung, 18-prostate, 21-breast) on 5-point scales assessing the importance of each item. For all three malignancies, the two highest-rated items in the top-ranked category were: 1) good QL (78%-82%), and 2) maintaining independence (71%-75%). The order remained constant across all diseases, genders, and stages. Other issues rated most highly were: able to perform normal activities, ability to sleep, fatigue, and depression (all in the 40-64% range). These results represent one of the largest surveys of patient concerns in these cancers. This study provides support for the content validity of the LCSS, BCSS and PCSS QL and indicates that these items should be part of any QL instrument in these malignancies and warrants testing in patients with other cancers.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2009
Conference Name:
34th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
San Antonio, Texas, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleWhich quality of life issues are rated by patients as being the most important: Results of a survey of 3860 patients with breast, lung and prostate cancer?en_GB
dc.contributor.authorHorigan, Jenniferen_US
dc.contributor.authorHollen, Patriciaen_US
dc.contributor.authorDavis, Beverlyen_US
dc.contributor.authorPetersen, Judithen_US
dc.contributor.authorBurg, Kendraen_US
dc.contributor.authorBelland, Angelaen_US
dc.contributor.authorGralla, Richarden_US
dc.author.detailsJennifer Horigan, CRNP, Nurse Practitioner, North Shore-LIJ Health System, Lake Success, New York, USA, email: feiljen@yahoo.com; Patricia Hollen, PhD, RN, FAAN, U. of Virginia, Charlottesville; Beverly Davis, RN, MSN, AOCN; Judith Petersen, RN, MN, AOCN; Kenda Burg; Angela Belland, Nex Cura, Seattle, Washington; Richard Grallaen_US
dc.identifier.urihttp://hdl.handle.net/10755/164985-
dc.description.abstractResearch Study: Identifying issues of importance for patients with cancer is central to assessing health- related quality of life (QL) and patient reported outcomes. These data are critical for patients to be able to communicate effectively with oncology nurses. Validated QL instruments aid in evaluating the effectiveness of interventions and in assuring that appropriate goals are met. To determine among the many issues, which are considered to be the most important, and whether the ratings differ by cancer type, gender, age group or other key factors, as assessed with the patient-rated: Lung Cancer Symptom Scale (LCSS), Prostate Cancer Symptom Scale (PCSS), and Breast Cancer Symptom Scale (BCSS). The underpinning framework of these instruments is based on a published conceptual model. This model indicates that areas of change are captured in detail, while those dimensions less likely to vary are captured more globally. We utilized the established web-based patient information resource, NexCura, to electronically survey registered patients with lung (660 patients), prostate (2128 patients), or breast cancer (1072 patients). Surveys were completed anonymously online. Characteristics included disease stage, age, gender, and treatment history. Patients ranked issues (20-lung, 18-prostate, 21-breast) on 5-point scales assessing the importance of each item. For all three malignancies, the two highest-rated items in the top-ranked category were: 1) good QL (78%-82%), and 2) maintaining independence (71%-75%). The order remained constant across all diseases, genders, and stages. Other issues rated most highly were: able to perform normal activities, ability to sleep, fatigue, and depression (all in the 40-64% range). These results represent one of the largest surveys of patient concerns in these cancers. This study provides support for the content validity of the LCSS, BCSS and PCSS QL and indicates that these items should be part of any QL instrument in these malignancies and warrants testing in patients with other cancers.en_GB
dc.date.available2011-10-27T12:10:30Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:10:30Z-
dc.conference.date2009en_US
dc.conference.name34th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationSan Antonio, Texas, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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