SUPPORTING COMMUNITY EDUCATION: A COLLABORATIVE EFFORT BETWEEN VOLUNTEER ORGANIZATIONS TO DEVELOP A HEMATOPOIETIC STEM CELL TRANSPLANT PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIUM

2.50
Hdl Handle:
http://hdl.handle.net/10755/165198
Category:
Abstract
Type:
Presentation
Title:
SUPPORTING COMMUNITY EDUCATION: A COLLABORATIVE EFFORT BETWEEN VOLUNTEER ORGANIZATIONS TO DEVELOP A HEMATOPOIETIC STEM CELL TRANSPLANT PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIUM
Author(s):
Castro, Kathleen; Sampl, Katherina; Grasmeder, Sophia; Miller, Beatrice; Mitchell, Sandra; Singer, Sarah; Soho, Claudia
Author Details:
Kathleen Castro, RN MS AOCN, Oncology Clinical Nurse Specialist, National Institutes of Health Clinical Center, Bethesda, Maryland, USA, email: castrok@mail.nih.gov; Katherina Sampl, RN, MSN, AOCNP; Sophia Grasmeder, RN, BSN, OCN; Beatrice Miller, RN, MS, OCN; Sandra Mitchell, CRNP, MScN, AOCN; Sarah Singer, BCD, LICSW; Claudia Soho, RN, BSN, OCN, CCRP
Abstract:
Hematopoietic Stem Cell Transplantation (SCT) is a potentially curative yet highly intensive treatment for a variety of hematologic and oncologic diagnosis. With improved supportive care and reduced-intensity conditioning regimens, this option is available to an expanded number of patients. A forum for patient and caregiver education concerning SCT and the effective self-management of early and late effects of treatment was identified as a need in our community. Oncology Nursing Society (ONS) chapters have a history of providing outreach education and support to local communities. Partnering with the local chapter of the Leukemia and Lymphoma Society (LLS), our ONS chapter developed a one-day symposium designed to educate SCT recipients and caregivers about optimal self-care during and following transplant. A planning committee of Washington, DC ONS chapter members and LLS staff was formed. Evaluations obtained from LLS-sponsored support groups and patient education programs were reviewed to determine needs. The target audience was identified as patients and caregivers pre and post SCT. The symposium kicked off with a keynote presentation by two cancer survivors on positive reframing and courageous problem-solving. Participants were then offered a variety of breakout sessions (addressing topics such as fatigue, nutrition, symptom management, medication management, caregiving, graft-versus-host disease (GVHD) and complementary therapies) and chose those sessions most relevant to their circumstances. Demonstrations of complementary therapies were available for participants throughout the day. The symposium ended with an Expert Panel comprised of a post-transplant patient and two physicians. Thirty-five people attended the symposium, 23 completed an evaluation (approximately half patients and half caregivers). The majority of respondents had completed their SCT procedure. Approximately 85% reported that the symposium was beneficial and the content was appropriate and comprehensible. The Expert Panel and breakout sessions on fatigue and GVHD were identified as most helpful. Many participants asked for future symposiums and gave suggestions for topics of interest. Our partnership capitalized on the supportive care expertise of oncology nurses and the advocacy and program planning skills of LLS. This program offers a model that other chapters may apply in developing community outreach initiatives.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2007
Conference Name:
32nd Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Las Vegas, Nevada, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleSUPPORTING COMMUNITY EDUCATION: A COLLABORATIVE EFFORT BETWEEN VOLUNTEER ORGANIZATIONS TO DEVELOP A HEMATOPOIETIC STEM CELL TRANSPLANT PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIUMen_GB
dc.contributor.authorCastro, Kathleenen_US
dc.contributor.authorSampl, Katherinaen_US
dc.contributor.authorGrasmeder, Sophiaen_US
dc.contributor.authorMiller, Beatriceen_US
dc.contributor.authorMitchell, Sandraen_US
dc.contributor.authorSinger, Sarahen_US
dc.contributor.authorSoho, Claudiaen_US
dc.author.detailsKathleen Castro, RN MS AOCN, Oncology Clinical Nurse Specialist, National Institutes of Health Clinical Center, Bethesda, Maryland, USA, email: castrok@mail.nih.gov; Katherina Sampl, RN, MSN, AOCNP; Sophia Grasmeder, RN, BSN, OCN; Beatrice Miller, RN, MS, OCN; Sandra Mitchell, CRNP, MScN, AOCN; Sarah Singer, BCD, LICSW; Claudia Soho, RN, BSN, OCN, CCRPen_US
dc.identifier.urihttp://hdl.handle.net/10755/165198-
dc.description.abstractHematopoietic Stem Cell Transplantation (SCT) is a potentially curative yet highly intensive treatment for a variety of hematologic and oncologic diagnosis. With improved supportive care and reduced-intensity conditioning regimens, this option is available to an expanded number of patients. A forum for patient and caregiver education concerning SCT and the effective self-management of early and late effects of treatment was identified as a need in our community. Oncology Nursing Society (ONS) chapters have a history of providing outreach education and support to local communities. Partnering with the local chapter of the Leukemia and Lymphoma Society (LLS), our ONS chapter developed a one-day symposium designed to educate SCT recipients and caregivers about optimal self-care during and following transplant. A planning committee of Washington, DC ONS chapter members and LLS staff was formed. Evaluations obtained from LLS-sponsored support groups and patient education programs were reviewed to determine needs. The target audience was identified as patients and caregivers pre and post SCT. The symposium kicked off with a keynote presentation by two cancer survivors on positive reframing and courageous problem-solving. Participants were then offered a variety of breakout sessions (addressing topics such as fatigue, nutrition, symptom management, medication management, caregiving, graft-versus-host disease (GVHD) and complementary therapies) and chose those sessions most relevant to their circumstances. Demonstrations of complementary therapies were available for participants throughout the day. The symposium ended with an Expert Panel comprised of a post-transplant patient and two physicians. Thirty-five people attended the symposium, 23 completed an evaluation (approximately half patients and half caregivers). The majority of respondents had completed their SCT procedure. Approximately 85% reported that the symposium was beneficial and the content was appropriate and comprehensible. The Expert Panel and breakout sessions on fatigue and GVHD were identified as most helpful. Many participants asked for future symposiums and gave suggestions for topics of interest. Our partnership capitalized on the supportive care expertise of oncology nurses and the advocacy and program planning skills of LLS. This program offers a model that other chapters may apply in developing community outreach initiatives.en_GB
dc.date.available2011-10-27T12:14:15Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:14:15Z-
dc.conference.date2007en_US
dc.conference.name32nd Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationLas Vegas, Nevada, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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