A FEASIBILITY STUDY OF ONLINE SELF-REPORTING OF TOXICITIES, PERFORMANCE STATUS, AND QUALITY OF LIFE INFORMATION BY PATIENTS RECEIVING CHEMOTHERAPY

2.50
Hdl Handle:
http://hdl.handle.net/10755/165261
Category:
Abstract
Type:
Presentation
Title:
A FEASIBILITY STUDY OF ONLINE SELF-REPORTING OF TOXICITIES, PERFORMANCE STATUS, AND QUALITY OF LIFE INFORMATION BY PATIENTS RECEIVING CHEMOTHERAPY
Author(s):
Dulko, Dorothy; Basch, Ethan; McCabe, Mary; Schrag, Deborah
Author Details:
Dorthy Dulko, RN, MS, AOCN, Memorial Sloan Kettering Cancer Center, New York, New York, USA; Ethan Basch, MD; Mary McCabe, RN; Deborah Schrag, MD
Abstract:
Chemotherapy often causes distressing side effects in cancer patients. Monitoring of symptoms and performance status during treatment is a cornerstone of oncology nursing. Patients who suffer from the side effects of chemotherapy frequently have difficulty in adequately monitoring their symptom experience which can result in unmet needs. The use of computer based technology can improve communication of chemotherapy toxicity and result in improved symptom control. As patients experience side effects of cancer treatment, their need for therapy alteration, supportive care, or informational services often change. There is limited literature on patients' willingness and ability to accurately self-record toxicity related symptoms and performance status during chemotherapy. This feasibility study investigates patient interest and willingness to report symptoms via a computer based program. A two-page questionnaire using NCI CTCAE v 3.0 toxicity criteria was designed to evaluate the feasibility of a computer based self-reporting system. A convenience sample of 100 patients with cancer of the cervix, ovary, uterus, prostate, and lung were shown a paper version of the CTCAE toxicity criteria converted into patient language for seven symptoms: (1) nausea; (2) vomiting; (3) diarrhea; (4) constipation; (5) fatigue; (6) pain and; (7) dyspnea. ECOG performance status, available internet access, and willingness to use a computer to report symptoms were also evaluated. The survey revealed that 83% of outpatients have access to a computer (95%CI; 72-90%) and 73% use the internet regularly (95%CI; 61-82%). Among those without internet access, 50% live with a regular internet user (95%CI; 39-61%). 100% of patients surveyed stated that they would like to report symptoms perpetually using the internet. The most frequently reported symptom was fatigue with 61% of patients reporting either mild or moderate fatigue. Online self-reporting of symptoms during chemotherapy can empower patients to become active participants in their care experience. Data from our feasibility survey indicates that patients are receptive to reporting symptoms online. Based on the results of this survey, we are testing STAR (Symptom Tracking and Reporting for Patients) a system developed at Memorial Sloan Kettering Cancer Center that allows patients to self record toxicity symptoms, performance status, and global QoL online (www.mskcc.org/STAR).
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2005
Conference Name:
30th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Orlando, Florida, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleA FEASIBILITY STUDY OF ONLINE SELF-REPORTING OF TOXICITIES, PERFORMANCE STATUS, AND QUALITY OF LIFE INFORMATION BY PATIENTS RECEIVING CHEMOTHERAPYen_GB
dc.contributor.authorDulko, Dorothyen_US
dc.contributor.authorBasch, Ethanen_US
dc.contributor.authorMcCabe, Maryen_US
dc.contributor.authorSchrag, Deborahen_US
dc.author.detailsDorthy Dulko, RN, MS, AOCN, Memorial Sloan Kettering Cancer Center, New York, New York, USA; Ethan Basch, MD; Mary McCabe, RN; Deborah Schrag, MDen_US
dc.identifier.urihttp://hdl.handle.net/10755/165261-
dc.description.abstractChemotherapy often causes distressing side effects in cancer patients. Monitoring of symptoms and performance status during treatment is a cornerstone of oncology nursing. Patients who suffer from the side effects of chemotherapy frequently have difficulty in adequately monitoring their symptom experience which can result in unmet needs. The use of computer based technology can improve communication of chemotherapy toxicity and result in improved symptom control. As patients experience side effects of cancer treatment, their need for therapy alteration, supportive care, or informational services often change. There is limited literature on patients' willingness and ability to accurately self-record toxicity related symptoms and performance status during chemotherapy. This feasibility study investigates patient interest and willingness to report symptoms via a computer based program. A two-page questionnaire using NCI CTCAE v 3.0 toxicity criteria was designed to evaluate the feasibility of a computer based self-reporting system. A convenience sample of 100 patients with cancer of the cervix, ovary, uterus, prostate, and lung were shown a paper version of the CTCAE toxicity criteria converted into patient language for seven symptoms: (1) nausea; (2) vomiting; (3) diarrhea; (4) constipation; (5) fatigue; (6) pain and; (7) dyspnea. ECOG performance status, available internet access, and willingness to use a computer to report symptoms were also evaluated. The survey revealed that 83% of outpatients have access to a computer (95%CI; 72-90%) and 73% use the internet regularly (95%CI; 61-82%). Among those without internet access, 50% live with a regular internet user (95%CI; 39-61%). 100% of patients surveyed stated that they would like to report symptoms perpetually using the internet. The most frequently reported symptom was fatigue with 61% of patients reporting either mild or moderate fatigue. Online self-reporting of symptoms during chemotherapy can empower patients to become active participants in their care experience. Data from our feasibility survey indicates that patients are receptive to reporting symptoms online. Based on the results of this survey, we are testing STAR (Symptom Tracking and Reporting for Patients) a system developed at Memorial Sloan Kettering Cancer Center that allows patients to self record toxicity symptoms, performance status, and global QoL online (www.mskcc.org/STAR).en_GB
dc.date.available2011-10-27T12:15:23Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:15:23Z-
dc.conference.date2005en_US
dc.conference.name30th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationOrlando, Florida, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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