2.50
Hdl Handle:
http://hdl.handle.net/10755/165343
Category:
Abstract
Type:
Presentation
Title:
Internet Resource for Parents of Children With Cancer
Author(s):
Lewis, D.; Gunawardena, S.; Harrison, J.; Eckroth, V.
Author Details:
D. Lewis, University of Pittsburgh, Pittsburgh, Pennsylvania, USA; S. Gunawardena; J. Harrison; V. Eckroth
Abstract:
Concrete information needs are the number one needs expressed by family members and patients with cancer. With advances in information technology patients and families now have many different ways to access healthcare information. Oncology nurses are challenged to understand how to best utilize these innovative approaches to support patient and families’ information and communication needs. Purpose: Few studies examine the use or impact of Internet information resources for parents of children with cancer. Consequently, little is know about how Internet information and communication resources would be used in the context of daily information access and healthcare decision-making for these parents. The goal for this research is to understand how parents of children with cancer use the Internet to seek health information and to inform the design of a web based resource that will provide family-centered information. Theoretical/Scientific Framework: Consumer Health Informatics is the integration of consumer health information and information technology. Family-centered care emphasizes the importance of provider-caregiver information sharing. This research is based on a philosophy of family-centered information sharing utilizing information technology. Methods: To determine parent Internet use we utilized a 34 question structured interview. Next, three prototype websites were designed and usability testing was completed with both parent’s and oncology clinic providers. Trained facilitators presented the websites and elicited feedback using think-aloud procedures and formal task analysis using scripted scenarios. Field notes were taken. Data Analysis: The research employed ethnographic methods of analysis for the purpose of understanding the need and usability of the prototype designs. Descriptive statistics, content and task analysis were completed. Findings and Implications: One hundred seventeen parents completed the Internet use interviews. Most have access to the Internet from home and have searched for information regarding their child. Few have used use e-mail to communicate with care providers. User testing: parents (N=17) and oncology clinic staff (N=12) expressed a preference for prototype website designs that were graphically pleasing and simple to navigate. A specialized search engine was noted as an important component. Currently the final website prototype is being implemented with 30 families to further understand “best practice” in healthcare website design and the impact of this Internet resource on family-caregiver information sharing.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2005
Conference Name:
30th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Orlando, Florida, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleInternet Resource for Parents of Children With Canceren_GB
dc.contributor.authorLewis, D.en_US
dc.contributor.authorGunawardena, S.en_US
dc.contributor.authorHarrison, J.en_US
dc.contributor.authorEckroth, V.en_US
dc.author.detailsD. Lewis, University of Pittsburgh, Pittsburgh, Pennsylvania, USA; S. Gunawardena; J. Harrison; V. Eckrothen_US
dc.identifier.urihttp://hdl.handle.net/10755/165343-
dc.description.abstractConcrete information needs are the number one needs expressed by family members and patients with cancer. With advances in information technology patients and families now have many different ways to access healthcare information. Oncology nurses are challenged to understand how to best utilize these innovative approaches to support patient and families’ information and communication needs. Purpose: Few studies examine the use or impact of Internet information resources for parents of children with cancer. Consequently, little is know about how Internet information and communication resources would be used in the context of daily information access and healthcare decision-making for these parents. The goal for this research is to understand how parents of children with cancer use the Internet to seek health information and to inform the design of a web based resource that will provide family-centered information. Theoretical/Scientific Framework: Consumer Health Informatics is the integration of consumer health information and information technology. Family-centered care emphasizes the importance of provider-caregiver information sharing. This research is based on a philosophy of family-centered information sharing utilizing information technology. Methods: To determine parent Internet use we utilized a 34 question structured interview. Next, three prototype websites were designed and usability testing was completed with both parent’s and oncology clinic providers. Trained facilitators presented the websites and elicited feedback using think-aloud procedures and formal task analysis using scripted scenarios. Field notes were taken. Data Analysis: The research employed ethnographic methods of analysis for the purpose of understanding the need and usability of the prototype designs. Descriptive statistics, content and task analysis were completed. Findings and Implications: One hundred seventeen parents completed the Internet use interviews. Most have access to the Internet from home and have searched for information regarding their child. Few have used use e-mail to communicate with care providers. User testing: parents (N=17) and oncology clinic staff (N=12) expressed a preference for prototype website designs that were graphically pleasing and simple to navigate. A specialized search engine was noted as an important component. Currently the final website prototype is being implemented with 30 families to further understand “best practice” in healthcare website design and the impact of this Internet resource on family-caregiver information sharing.en_GB
dc.date.available2011-10-27T12:16:51Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:16:51Z-
dc.conference.date2005en_US
dc.conference.name30th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationOrlando, Florida, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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