Perceptions of the Caregiving Experience and Quality of Life of Mexican/Mexican American Caregivers Providing Care to Adults With Advanced Cancer

2.50
Hdl Handle:
http://hdl.handle.net/10755/165421
Category:
Abstract
Type:
Presentation
Title:
Perceptions of the Caregiving Experience and Quality of Life of Mexican/Mexican American Caregivers Providing Care to Adults With Advanced Cancer
Author(s):
Juarez, G.; Ferrell, B.
Author Details:
G. Juarez, City of Hope National Medical Center, Duarte, California, USA; B. Ferrell
Abstract:
Hispanic family members embark on the caregiving journey from the perspective of Hispanic cultural values. These values and beliefs in family solidarity motivate them to provide the best care for their family member who has been diagnosed with cancer. However, these same values and potential language barriers often contribute to miscommunications in the health care delivery arena. Thus Hispanic caregivers must face many culturally based issues in addition to the usual obstacles encountered by patients and families as they cope with the cancer experience. The purpose of this study was to describe the caregiving experience, cultural beliefs and practices, and perceptions of quality of life of Mexican/Mexican American family caregivers providing care to adults with advanced cancer. The sample included twenty Mexican/Mexican American family caregivers recruited from a cancer center in the Western United States. An ethnographic approach was to gain insight into the caregiving experience and QOL of Mexican/Mexican American caregivers. A demographic instrument and an acculturation scale were also administered. The researcher seeks to understand the cultural perspective of the caregivers using participant observation recorded in written notes and tape-recorded interviews. Qualitative content analysis was used to analyze the data obtained from the interviews. Statements reflecting the caregiving experience and quality of life were then evaluated. The participants were consulted for validation of the final description of their experiences and perceptions. Descriptive statistics were used to analyze quantitative data. The results suggest that cultural background, family beliefs and support, religion, and language contribute significantly to the caregiving experience and the meaning of quality of life of Mexican/Mexican-American caregivers. Specific needs were also identified such as Spanish educational literature, more competent Spanish interpreters, and caregiver education. Knowledge of the influence of culture on the meaning of QOL and the caregiving experience can enhance and expand the current knowledge base in nursing and ultimately lead to the construction and testing of nursing interventions with larger samples that will enable nurses to improve the QOL of Hispanic caregivers and patients.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2003
Conference Name:
28th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Denver, Colorado, USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titlePerceptions of the Caregiving Experience and Quality of Life of Mexican/Mexican American Caregivers Providing Care to Adults With Advanced Canceren_GB
dc.contributor.authorJuarez, G.en_US
dc.contributor.authorFerrell, B.en_US
dc.author.detailsG. Juarez, City of Hope National Medical Center, Duarte, California, USA; B. Ferrellen_US
dc.identifier.urihttp://hdl.handle.net/10755/165421-
dc.description.abstractHispanic family members embark on the caregiving journey from the perspective of Hispanic cultural values. These values and beliefs in family solidarity motivate them to provide the best care for their family member who has been diagnosed with cancer. However, these same values and potential language barriers often contribute to miscommunications in the health care delivery arena. Thus Hispanic caregivers must face many culturally based issues in addition to the usual obstacles encountered by patients and families as they cope with the cancer experience. The purpose of this study was to describe the caregiving experience, cultural beliefs and practices, and perceptions of quality of life of Mexican/Mexican American family caregivers providing care to adults with advanced cancer. The sample included twenty Mexican/Mexican American family caregivers recruited from a cancer center in the Western United States. An ethnographic approach was to gain insight into the caregiving experience and QOL of Mexican/Mexican American caregivers. A demographic instrument and an acculturation scale were also administered. The researcher seeks to understand the cultural perspective of the caregivers using participant observation recorded in written notes and tape-recorded interviews. Qualitative content analysis was used to analyze the data obtained from the interviews. Statements reflecting the caregiving experience and quality of life were then evaluated. The participants were consulted for validation of the final description of their experiences and perceptions. Descriptive statistics were used to analyze quantitative data. The results suggest that cultural background, family beliefs and support, religion, and language contribute significantly to the caregiving experience and the meaning of quality of life of Mexican/Mexican-American caregivers. Specific needs were also identified such as Spanish educational literature, more competent Spanish interpreters, and caregiver education. Knowledge of the influence of culture on the meaning of QOL and the caregiving experience can enhance and expand the current knowledge base in nursing and ultimately lead to the construction and testing of nursing interventions with larger samples that will enable nurses to improve the QOL of Hispanic caregivers and patients.en_GB
dc.date.available2011-10-27T12:18:14Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:18:14Z-
dc.conference.date2003en_US
dc.conference.name28th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationDenver, Colorado, USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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