PALLIATIVE CARE PROGRAM EFFECTIVENESS RESEARCH: DEVELOPING RIGOR IN SAMPLING DESIGN, CONDUCT, AND REPORTING

2.50
Hdl Handle:
http://hdl.handle.net/10755/165496
Category:
Abstract
Type:
Presentation
Title:
PALLIATIVE CARE PROGRAM EFFECTIVENESS RESEARCH: DEVELOPING RIGOR IN SAMPLING DESIGN, CONDUCT, AND REPORTING
Author(s):
Bakitas, Marie; Lyons, Kathleen; Dixon, Jane
Author Details:
Marie Bakitas, MS, ARNP, AOCN, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire, USA; Kathleen Lyons, ScD, OTR; Jane Dixon, PhD, RN
Abstract:
As a newer model of care, few palliative care programs have undergone rigorous testing for clinical efficacy or effectiveness. Among the methodological difficulties of palliative care research, issues of sampling are prominent. The purpose of this presentation is to analyze the unique sampling issues of palliative care program effectiveness research including: identification of the target population, operationalizing the target population through the development of eligibility criteria, and clear reporting of the elements of the sample in the research report. Comprehensive review of sampling issues and approaches to these challenges has received only scarce attention in the literature. Sampling issues are not unique to palliative care, however palliative care does have unique sampling issues. These require a rigorous approach and attention not only during study design, but also throughout data collection, data analysis, and interpretation and dissemination of study results. For example, palliative care RCTs and evaluation research have identified challenges with recruitment of appropriate types and numbers of patients; at times preventing study completion. In studies with adequate enrollment, highly selective or overly broad eligibility criteria have limited program generalizability. During design researchers must assure that appropriate types and numbers of patients are available and that eligibility criteria will represent the target population. During the study, monitoring recruitment and adherence to sample selection procedures ensures adequate accrual and detection of sample selection biases. During data analysis, identified sample imbalances may be managed via statistical means. Upon study completion, the sampling strategy and participants should be described in sufficient detail to allow the reader to evaluate the extent to which established quality criteria have been met. The steps of rigorous sampling design will be illustrated in the design and conduct of an RCT testing the integration of a palliative care program in a cancer center. Following these approaches can minimize threats to study internal and external validity, which can reduce study relevance. As the number of palliative care programs of various models increases, it is necessary that rigorous methods are applied to identify cost-effective and of high quality care models. Careful attention to sampling issues is critical to building this evidence base.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2005
Conference Name:
30th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Orlando, Florida, USA
Sponsors:
Funding Sources: NIH/NCI- 1 R01 HS013336-01
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titlePALLIATIVE CARE PROGRAM EFFECTIVENESS RESEARCH: DEVELOPING RIGOR IN SAMPLING DESIGN, CONDUCT, AND REPORTINGen_GB
dc.contributor.authorBakitas, Marieen_US
dc.contributor.authorLyons, Kathleenen_US
dc.contributor.authorDixon, Janeen_US
dc.author.detailsMarie Bakitas, MS, ARNP, AOCN, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire, USA; Kathleen Lyons, ScD, OTR; Jane Dixon, PhD, RNen_US
dc.identifier.urihttp://hdl.handle.net/10755/165496-
dc.description.abstractAs a newer model of care, few palliative care programs have undergone rigorous testing for clinical efficacy or effectiveness. Among the methodological difficulties of palliative care research, issues of sampling are prominent. The purpose of this presentation is to analyze the unique sampling issues of palliative care program effectiveness research including: identification of the target population, operationalizing the target population through the development of eligibility criteria, and clear reporting of the elements of the sample in the research report. Comprehensive review of sampling issues and approaches to these challenges has received only scarce attention in the literature. Sampling issues are not unique to palliative care, however palliative care does have unique sampling issues. These require a rigorous approach and attention not only during study design, but also throughout data collection, data analysis, and interpretation and dissemination of study results. For example, palliative care RCTs and evaluation research have identified challenges with recruitment of appropriate types and numbers of patients; at times preventing study completion. In studies with adequate enrollment, highly selective or overly broad eligibility criteria have limited program generalizability. During design researchers must assure that appropriate types and numbers of patients are available and that eligibility criteria will represent the target population. During the study, monitoring recruitment and adherence to sample selection procedures ensures adequate accrual and detection of sample selection biases. During data analysis, identified sample imbalances may be managed via statistical means. Upon study completion, the sampling strategy and participants should be described in sufficient detail to allow the reader to evaluate the extent to which established quality criteria have been met. The steps of rigorous sampling design will be illustrated in the design and conduct of an RCT testing the integration of a palliative care program in a cancer center. Following these approaches can minimize threats to study internal and external validity, which can reduce study relevance. As the number of palliative care programs of various models increases, it is necessary that rigorous methods are applied to identify cost-effective and of high quality care models. Careful attention to sampling issues is critical to building this evidence base.en_GB
dc.date.available2011-10-27T12:19:40Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:19:40Z-
dc.conference.date2005en_US
dc.conference.name30th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationOrlando, Florida, USAen_US
dc.description.sponsorshipFunding Sources: NIH/NCI- 1 R01 HS013336-01-
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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