The Neuro Center Patient Handbook: A Resource Guide for Brain Tumor Patients and Their Caregivers

2.50
Hdl Handle:
http://hdl.handle.net/10755/165609
Category:
Abstract
Type:
Presentation
Title:
The Neuro Center Patient Handbook: A Resource Guide for Brain Tumor Patients and Their Caregivers
Author(s):
Kang, Sanghee
Author Details:
Sanghee Kang, University of Texas, M.D. Anderson Cancer Center, Houston, Texas, USA
Abstract:
Less than 2% of all cancers diagnosed each year in the United States are primary brain tumors. This diagnosis is frequently made after an acute neurologic event such as a seizure, which may leave the patient with difficulty performing usual functions. Patients and families are often unprepared for the diagnosis and neurologic sequelae. Because these malignancies are rare, there are few educational and resource materials for patients and their families. To provide these critical educational materials, a committee was assembled consisting of a multidisciplinary team of physicians and healthcare professionals in nursing, social work, neuro-oncology, neurosurgery, neuropsychology, physical and occupational therapy, speech therapy, and patient education to develop The Neuro Patient Handbook, a resource manual for brain tumor patients. The handbook includes general information on the M.D. Anderson Neuro Center including instructions on making appointments, contacting staff, scheduling tests, sending diagnostic studies for review, and obtaining prescription refills. There are also educational sheets on when to call the doctor; managing common symptoms such as seizures and speaking difficulties; descriptions of common diagnostic tests, possible therapies, and support services for both the patient and caregiver; and general information on neuropsychological evaluations and cognitive rehabilitation. The handbook also includes information on coping with a brain tumor diagnosis, caring for the caregiver, applying for disability, returning to work, support groups, contact information for brain tumor organizations, websites, and helpful resource books. The first section of the handbook is for the patient's medical history, medication list, and individual treatment plan. Individualized educational materials are inserted as needed, including protocol information; chemotherapy, radiotherapy, or surgery information; laboratory and diagnostic tests; and follow-up. We will report a staff and patient satisfaction survey used to evaluate this handbook and address quality improvement issues. This resource provides patients and caregivers with an organizer for all their information and also assists other care providers with continuity of care. In addition, the handbook promotes comprehensive patient education and fosters teamwork among the multiple disciplines involved in the patient's care.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
2002
Conference Name:
27th Annual Oncology Nursing Society Congress
Conference Host:
Oncology Nursing Society
Conference Location:
Washington, D.C., USA
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleThe Neuro Center Patient Handbook: A Resource Guide for Brain Tumor Patients and Their Caregiversen_GB
dc.contributor.authorKang, Sangheeen_US
dc.author.detailsSanghee Kang, University of Texas, M.D. Anderson Cancer Center, Houston, Texas, USAen_US
dc.identifier.urihttp://hdl.handle.net/10755/165609-
dc.description.abstractLess than 2% of all cancers diagnosed each year in the United States are primary brain tumors. This diagnosis is frequently made after an acute neurologic event such as a seizure, which may leave the patient with difficulty performing usual functions. Patients and families are often unprepared for the diagnosis and neurologic sequelae. Because these malignancies are rare, there are few educational and resource materials for patients and their families. To provide these critical educational materials, a committee was assembled consisting of a multidisciplinary team of physicians and healthcare professionals in nursing, social work, neuro-oncology, neurosurgery, neuropsychology, physical and occupational therapy, speech therapy, and patient education to develop The Neuro Patient Handbook, a resource manual for brain tumor patients. The handbook includes general information on the M.D. Anderson Neuro Center including instructions on making appointments, contacting staff, scheduling tests, sending diagnostic studies for review, and obtaining prescription refills. There are also educational sheets on when to call the doctor; managing common symptoms such as seizures and speaking difficulties; descriptions of common diagnostic tests, possible therapies, and support services for both the patient and caregiver; and general information on neuropsychological evaluations and cognitive rehabilitation. The handbook also includes information on coping with a brain tumor diagnosis, caring for the caregiver, applying for disability, returning to work, support groups, contact information for brain tumor organizations, websites, and helpful resource books. The first section of the handbook is for the patient's medical history, medication list, and individual treatment plan. Individualized educational materials are inserted as needed, including protocol information; chemotherapy, radiotherapy, or surgery information; laboratory and diagnostic tests; and follow-up. We will report a staff and patient satisfaction survey used to evaluate this handbook and address quality improvement issues. This resource provides patients and caregivers with an organizer for all their information and also assists other care providers with continuity of care. In addition, the handbook promotes comprehensive patient education and fosters teamwork among the multiple disciplines involved in the patient's care.en_GB
dc.date.available2011-10-27T12:21:46Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T12:21:46Z-
dc.conference.date2002en_US
dc.conference.name27th Annual Oncology Nursing Society Congressen_US
dc.conference.hostOncology Nursing Societyen_US
dc.conference.locationWashington, D.C., USAen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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