2.50
Hdl Handle:
http://hdl.handle.net/10755/166050
Category:
Abstract
Type:
Presentation
Title:
Parent Perceptions Of Traumatic Brain Injury And Rehabilitation In Children
Author(s):
Smith, Andrea
Author Details:
Andrea Smith, PhD, University of Texas at Arlington, Arlington, Texas, USA, (updated February 2015) email: andrea.smith@cookchildrens.org
Abstract:
Each year over 100,000 children are hospitalized with traumatic brain injury (TBI). TBI is a crisis that profoundly affects the lives of the child and family. In addition to coping with the trauma of the initial injury, parents must manage the long-term rehabilitation and the physical, cognitive and behavioral difficulties many of these children are left with. Comprehensive nursing interventions must be based on an understanding of the parents needs and perspectives throughout the acute TBI and rehabilitation experience. Nonetheless limited information is available in the literature about parent perceptions and experiences in this social process. The purpose of this qualitative study was to gain insight into the needs, stressors, and coping strategies of parents of children with TBI from initial injury through rehabilitation. A purposive, theoretical quota sampling method was used to recruit 17 parents (4 fathers & 13 mothers) of 14 children (6 girls & 8 boys) ages 3-17 years with TBI. Data were collected using semi-structured tape-recorded interviews. Using grounded theory methodology, constant comparative analysis was done during data collection, coding, and categorization to develop a substantive theory of the experience of caring for a child with TBI. Preliminary data analysis of substantive codes identified clusters in the emerging framework. Themes of Transitions-Critical Stress Points, Modified Parenting -Vigilance, Advocacy, & Growth, Reorganization of Family Life/Values, Changes- "A Different Child", Negotiating Parent-Health Care Provider Relationships and Looking to the Future were identified. Parents described the difficulties of parenting "a different" child and managing the stressors of changes in their lifestyle. On-going data analysis will lead to progressively higher levels of abstraction and relationships generating the completed substantive theory Because this study examined parent perspectives from initial injury through rehabilitation, the results have implications for nurses caring for children and families in both acute care and ambulatory settings. Family support is critical to the child achieving optimal functioning through rehabilitation. Understanding the needs, stressors, and coping strategies of parents of children with TBI will enable nurses to formulate interventions that strengthen families and promote caregiving partnerships.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Host:
Southern Nursing Research Society
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleParent Perceptions Of Traumatic Brain Injury And Rehabilitation In Childrenen_GB
dc.contributor.authorSmith, Andreaen_US
dc.author.detailsAndrea Smith, PhD, University of Texas at Arlington, Arlington, Texas, USA, (updated February 2015) email: andrea.smith@cookchildrens.orgen_US
dc.identifier.urihttp://hdl.handle.net/10755/166050-
dc.description.abstractEach year over 100,000 children are hospitalized with traumatic brain injury (TBI). TBI is a crisis that profoundly affects the lives of the child and family. In addition to coping with the trauma of the initial injury, parents must manage the long-term rehabilitation and the physical, cognitive and behavioral difficulties many of these children are left with. Comprehensive nursing interventions must be based on an understanding of the parents needs and perspectives throughout the acute TBI and rehabilitation experience. Nonetheless limited information is available in the literature about parent perceptions and experiences in this social process. The purpose of this qualitative study was to gain insight into the needs, stressors, and coping strategies of parents of children with TBI from initial injury through rehabilitation. A purposive, theoretical quota sampling method was used to recruit 17 parents (4 fathers & 13 mothers) of 14 children (6 girls & 8 boys) ages 3-17 years with TBI. Data were collected using semi-structured tape-recorded interviews. Using grounded theory methodology, constant comparative analysis was done during data collection, coding, and categorization to develop a substantive theory of the experience of caring for a child with TBI. Preliminary data analysis of substantive codes identified clusters in the emerging framework. Themes of Transitions-Critical Stress Points, Modified Parenting -Vigilance, Advocacy, & Growth, Reorganization of Family Life/Values, Changes- "A Different Child", Negotiating Parent-Health Care Provider Relationships and Looking to the Future were identified. Parents described the difficulties of parenting "a different" child and managing the stressors of changes in their lifestyle. On-going data analysis will lead to progressively higher levels of abstraction and relationships generating the completed substantive theory Because this study examined parent perspectives from initial injury through rehabilitation, the results have implications for nurses caring for children and families in both acute care and ambulatory settings. Family support is critical to the child achieving optimal functioning through rehabilitation. Understanding the needs, stressors, and coping strategies of parents of children with TBI will enable nurses to formulate interventions that strengthen families and promote caregiving partnerships.en_GB
dc.date.available2011-10-27T14:39:12Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T14:39:12Z-
dc.conference.hostSouthern Nursing Research Societyen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
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