2.50
Hdl Handle:
http://hdl.handle.net/10755/166167
Category:
Abstract
Type:
Presentation
Title:
The Experience of Living with Epilepsy: From the Adolescent and ParentPerspective
Author(s):
Sawin, Kathleen
Author Details:
Kathleen Sawin, DNS/DNSc/DSN, Interim Chairperson, Virginia Commonwealth University School of Nursing and School of Medicine, Richmond, Virginia, USA, (updated 2015) email: sawin@uwm.edu
Abstract:
AIMS. The second decade of life is a pivotal transition for youth. Achieving developmental competencies such as a positive self esteem, a sense of self and the ability to interact with others is crucial for all adolescents. Researchers studying the impact of stressful events on adolescents conclude that chronic illness or disability can produce developmental vulnerability and may present unique barriers to achieving developmental competencies. Epilepsy is one of the most frequent chronic illness and there is some data to suggest it may have the strongest significant negative psychosocial outcomes. Exploring the experience of growing up with epilepsy will build an important base for developing interventions aimed at enhancing resilience in this population. QUESTIONS. SUBJECTS METHODS. The purpose of this project is to more fully delineate the mediating factors associated with developmental outcomes in adolescents with epilepsy by asking the following research question: What is the experience of living with epilepsy from both the adolescents and parents perspective? 30 adolescent-parent pairs from a larger study of adolescents with epilepsy will be interviewed using a series of 10 parallel questions. The interviews will be transcribed and analyzed using ethnograph. FINDINGS AND IMPLICATIONS. The data will be analyzed for themes and recurrent issues identified by both participant groups. The analysis will include comparison of data on patterns of coping, successful strategies used to deal with common problems, and the role of family in dealing with epilepsy to qualitative data from previous studies of adolescents with spinal cord injury, diabetes, and cancer conducted by this research team. If there are common factors identified that enhance developmental outcomes across populations the findings of this study will be critical in designing the intervention in the next phase of this program of research.
Repository Posting Date:
27-Oct-2011
Date of Publication:
27-Oct-2011
Conference Date:
Feb 29 - Mar 2, 1996
Conference Host:
Southern Nursing Research Society
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_US
dc.typePresentationen_GB
dc.titleThe Experience of Living with Epilepsy: From the Adolescent and ParentPerspectiveen_GB
dc.contributor.authorSawin, Kathleenen_US
dc.author.detailsKathleen Sawin, DNS/DNSc/DSN, Interim Chairperson, Virginia Commonwealth University School of Nursing and School of Medicine, Richmond, Virginia, USA, (updated 2015) email: sawin@uwm.eduen_US
dc.identifier.urihttp://hdl.handle.net/10755/166167-
dc.description.abstractAIMS. The second decade of life is a pivotal transition for youth. Achieving developmental competencies such as a positive self esteem, a sense of self and the ability to interact with others is crucial for all adolescents. Researchers studying the impact of stressful events on adolescents conclude that chronic illness or disability can produce developmental vulnerability and may present unique barriers to achieving developmental competencies. Epilepsy is one of the most frequent chronic illness and there is some data to suggest it may have the strongest significant negative psychosocial outcomes. Exploring the experience of growing up with epilepsy will build an important base for developing interventions aimed at enhancing resilience in this population. QUESTIONS. SUBJECTS METHODS. The purpose of this project is to more fully delineate the mediating factors associated with developmental outcomes in adolescents with epilepsy by asking the following research question: What is the experience of living with epilepsy from both the adolescents and parents perspective? 30 adolescent-parent pairs from a larger study of adolescents with epilepsy will be interviewed using a series of 10 parallel questions. The interviews will be transcribed and analyzed using ethnograph. FINDINGS AND IMPLICATIONS. The data will be analyzed for themes and recurrent issues identified by both participant groups. The analysis will include comparison of data on patterns of coping, successful strategies used to deal with common problems, and the role of family in dealing with epilepsy to qualitative data from previous studies of adolescents with spinal cord injury, diabetes, and cancer conducted by this research team. If there are common factors identified that enhance developmental outcomes across populations the findings of this study will be critical in designing the intervention in the next phase of this program of research.en_GB
dc.date.available2011-10-27T14:41:35Z-
dc.date.issued2011-10-27en_GB
dc.date.accessioned2011-10-27T14:41:35Z-
dc.conference.dateFeb 29 - Mar 2, 1996en_US
dc.conference.hostSouthern Nursing Research Societyen_US
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission. Alternatively, please contact the conference host, journal, or publisher (according to the circumstance) for further details regarding this item. If a citation is listed in this record, the item has been published and is available via open-access avenues or a journal/database subscription. Contact your library for assistance in obtaining the as-published article.-
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.