The Experience of Transition to Adulthood for Youth with a Neurological Condition

2.50
Hdl Handle:
http://hdl.handle.net/10755/202097
Category:
Full-text
Format:
Text-based Document
Type:
Presentation
Title:
The Experience of Transition to Adulthood for Youth with a Neurological Condition
Author(s):
Ridosh, Monique; Braun, Patricia; Roux, Gayle; Bellin, Melissa; Sawin, Kathleen J.
Author Details:
Monique Ridosh, MSN, RN; Patricia Braun PhD, RN, PNP; Gayle Roux PhD, RN, NP-C; Melissa Bellin PhD, MSW, LCSW; Kathleen J. Sawin PhD, CPNP-PC, FAAN
Abstract:
(41st Biennial Convention) Background. The lifespan of young adults with neurological conditions such as spina bifida (SB) has increased as a result of effective health management in developed countries. As young adults with SB live longer, their healthcare needs evolve and are dependent upon successful transition experiences. The purpose of this study was to examine the transition to adulthood in young adults with SB and identify opportunities for interventions to improve health outcomes. Methods. This qualitative study using narrative inquiry was part of a larger multi-site study. Interviews were completed on 10 participants with SB ranging in age from 18-25 years. The guided interview questions focused on specific dimensions of the transition experience: (1) self-management and (2) independence. Results. Four themes capturing different dimensions of the particiants' experiences emerged in the analysis. The themes included: 1) Struggling for independence, 2) Limited social interactions and stigma, 3) Building inner strength, and 4) Tailoring care. Conclusion. The study contributes to a better understanding of the challenges of transition to achieve self-management and social development for young adults with SB. Findings in the life stories highlighted issues that necessitate increased advocacy and interventions from professionals within the health and social system. Even though the incidence of SB in the USA is the highest in the Hispanic population, we know little about these youths' experience. Need for research and opportunities to tailor care to this popuation will be described.
Keywords:
self-management; transition; independence
Repository Posting Date:
11-Jan-2012
Date of Publication:
4-Jan-2012
Conference Date:
2011
Conference Name:
41st Biennial Convention: People and Knowledge: Connecting for Global Health
Conference Host:
Sigma Theta Tau International
Conference Location:
Grapevine, Texas USA
Sponsors:
Sigma Theta Tau International
Description:
41st Biennial Convention - 29 October-2 November 2011. Theme: People and Knowledge: Connecting for Global Health. Held at the Gaylord Texan Resort & convention Center.
Note:
Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePresentationen
dc.titleThe Experience of Transition to Adulthood for Youth with a Neurological Conditionen
dc.contributor.authorRidosh, Moniqueen
dc.contributor.authorBraun, Patriciaen
dc.contributor.authorRoux, Gayleen
dc.contributor.authorBellin, Melissaen
dc.contributor.authorSawin, Kathleen J.en
dc.author.detailsMonique Ridosh, MSN, RN; Patricia Braun PhD, RN, PNP; Gayle Roux PhD, RN, NP-C; Melissa Bellin PhD, MSW, LCSW; Kathleen J. Sawin PhD, CPNP-PC, FAANen
dc.identifier.urihttp://hdl.handle.net/10755/202097-
dc.description.abstract(41st Biennial Convention) Background. The lifespan of young adults with neurological conditions such as spina bifida (SB) has increased as a result of effective health management in developed countries. As young adults with SB live longer, their healthcare needs evolve and are dependent upon successful transition experiences. The purpose of this study was to examine the transition to adulthood in young adults with SB and identify opportunities for interventions to improve health outcomes. Methods. This qualitative study using narrative inquiry was part of a larger multi-site study. Interviews were completed on 10 participants with SB ranging in age from 18-25 years. The guided interview questions focused on specific dimensions of the transition experience: (1) self-management and (2) independence. Results. Four themes capturing different dimensions of the particiants' experiences emerged in the analysis. The themes included: 1) Struggling for independence, 2) Limited social interactions and stigma, 3) Building inner strength, and 4) Tailoring care. Conclusion. The study contributes to a better understanding of the challenges of transition to achieve self-management and social development for young adults with SB. Findings in the life stories highlighted issues that necessitate increased advocacy and interventions from professionals within the health and social system. Even though the incidence of SB in the USA is the highest in the Hispanic population, we know little about these youths' experience. Need for research and opportunities to tailor care to this popuation will be described.en
dc.subjectself-managementen
dc.subjecttransitionen
dc.subjectindependenceen
dc.date.available2012-01-11T11:09:53Z-
dc.date.issued2012-01-04en_GB
dc.date.accessioned2012-01-11T11:09:53Z-
dc.conference.date2011en
dc.conference.name41st Biennial Convention: People and Knowledge: Connecting for Global Healthen
dc.conference.hostSigma Theta Tau Internationalen
dc.conference.locationGrapevine, Texas USAen
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
dc.description41st Biennial Convention - 29 October-2 November 2011. Theme: People and Knowledge: Connecting for Global Health. Held at the Gaylord Texan Resort & convention Center.en
dc.description.noteItems submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.-
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.