FEASIBILITY AND USABILITY TESTING OF AN ELECTRONIC SYMPTOM DIARY FOR TEENS WITH CANCER

2.50
Hdl Handle:
http://hdl.handle.net/10755/211514
Type:
Research Study
Title:
FEASIBILITY AND USABILITY TESTING OF AN ELECTRONIC SYMPTOM DIARY FOR TEENS WITH CANCER
Abstract:
Rationale/Conceptual Basis/Background: The delivery of optimal supportive care depends on accurate communication between patients and their clinicians regarding disease or treatment-related symptoms. In addition, the advancement of the science of oncologic supportive care relies on the accuracy of symptom data obtained in clinical trials. Documentation of patients’ symptom experiences at clinic visits necessitates reliance on patient recall, which may be vague and imprecise. Symptom diaries with daily entries can be used to avoid data inaccuracies due to poor symptom recall. However, patient adherence to data entry in paper diaries is low. Thus our team developed an electronic diary (eDiary) for adolescent cancer patients to record their symptoms. Purposes/Aims: The specific aims of this project were to: (1) Determine participants’ adherence rates to daily symptom queries via a mobile phone application, the reliability of the mobile application, and the reasons for any missing data; and (2) Determine participants’ perceptions of the usefulness and acceptability of symptom data collection via mobile phones after a trial assessment period of an application designed for this purpose. Methods: Our team developed an electronic symptom diary based on interviews conducted with adolescent and young adult cancer patients and oncology clinicians. This diary included daily severity ratings of five disease or treatment-related sequelae (i.e., pain, nausea, vomiting, fatigue, sleep). The occurrence of selected physical sequelae (i.e., diarrhea, constipation, fever, numbness/tingling, mouth sores, dizziness, headache) was assessed daily. In addition, participants selected descriptors of their current mood. The application was named the mobile Oncology Symptom Tracker (mOST). After the application was beta-tested by clinicians and researchers, 10 adolescent cancer patients participated in a 3 week trial of the eDiary’s feasibility and usability. The participants, and their parents/guardians as appropriate, provided consent/assent for the study. Mobile phones with accessories and monthly service plans were loaned to participants who were instructed to report their symptoms daily at the end of the day. Participants were interviewed at the completion of the study to elicit their perceptions of the eDiary and any technical difficulties encountered. Participants also completed a brief usability questionnaire at the time of the interview. Results: The participants, 6 males and 4 females, ranged in age from 14 to 21 years, with a wide range of cancer diagnoses. The self-reported ethnicity was Hispanic for a majority (80%) of patients. One patient completed 13 entries before being transferred to the intensive care unit. When this patient’s adherence was calculated as 100%, the overall adherence rate for daily symptom reports among the 10 patients during the 21 day study was 96%. When the critically ill patient’s data was classified as missing, the overall daily adherence for the 10 patients was 92%. The participants experienced few technical difficulties during the study. Symptom occurrence rates were high and fluctuated frequently.  They reported that recording their symptoms daily was beneficial and that they would recommend that other patients use the application. Implications: This technology can streamline communication between patients and clinicians and promote early intervention for symptom management.
Keywords:
Electronic Symptom diaries; Adolescent cancer patients
Repository Posting Date:
20-Feb-2012
Date of Publication:
20-Feb-2012
Other Identifiers:
5344
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typeResearch Studyen_GB
dc.titleFEASIBILITY AND USABILITY TESTING OF AN ELECTRONIC SYMPTOM DIARY FOR TEENS WITH CANCERen_GB
dc.identifier.urihttp://hdl.handle.net/10755/211514-
dc.description.abstractRationale/Conceptual Basis/Background: The delivery of optimal supportive care depends on accurate communication between patients and their clinicians regarding disease or treatment-related symptoms. In addition, the advancement of the science of oncologic supportive care relies on the accuracy of symptom data obtained in clinical trials. Documentation of patients’ symptom experiences at clinic visits necessitates reliance on patient recall, which may be vague and imprecise. Symptom diaries with daily entries can be used to avoid data inaccuracies due to poor symptom recall. However, patient adherence to data entry in paper diaries is low. Thus our team developed an electronic diary (eDiary) for adolescent cancer patients to record their symptoms. Purposes/Aims: The specific aims of this project were to: (1) Determine participants’ adherence rates to daily symptom queries via a mobile phone application, the reliability of the mobile application, and the reasons for any missing data; and (2) Determine participants’ perceptions of the usefulness and acceptability of symptom data collection via mobile phones after a trial assessment period of an application designed for this purpose. Methods: Our team developed an electronic symptom diary based on interviews conducted with adolescent and young adult cancer patients and oncology clinicians. This diary included daily severity ratings of five disease or treatment-related sequelae (i.e., pain, nausea, vomiting, fatigue, sleep). The occurrence of selected physical sequelae (i.e., diarrhea, constipation, fever, numbness/tingling, mouth sores, dizziness, headache) was assessed daily. In addition, participants selected descriptors of their current mood. The application was named the mobile Oncology Symptom Tracker (mOST). After the application was beta-tested by clinicians and researchers, 10 adolescent cancer patients participated in a 3 week trial of the eDiary’s feasibility and usability. The participants, and their parents/guardians as appropriate, provided consent/assent for the study. Mobile phones with accessories and monthly service plans were loaned to participants who were instructed to report their symptoms daily at the end of the day. Participants were interviewed at the completion of the study to elicit their perceptions of the eDiary and any technical difficulties encountered. Participants also completed a brief usability questionnaire at the time of the interview. Results: The participants, 6 males and 4 females, ranged in age from 14 to 21 years, with a wide range of cancer diagnoses. The self-reported ethnicity was Hispanic for a majority (80%) of patients. One patient completed 13 entries before being transferred to the intensive care unit. When this patient’s adherence was calculated as 100%, the overall adherence rate for daily symptom reports among the 10 patients during the 21 day study was 96%. When the critically ill patient’s data was classified as missing, the overall daily adherence for the 10 patients was 92%. The participants experienced few technical difficulties during the study. Symptom occurrence rates were high and fluctuated frequently.  They reported that recording their symptoms daily was beneficial and that they would recommend that other patients use the application. Implications: This technology can streamline communication between patients and clinicians and promote early intervention for symptom management.en_GB
dc.subjectElectronic Symptom diariesen_GB
dc.subjectAdolescent cancer patientsen_GB
dc.date.available2012-02-20T11:59:35Z-
dc.date.issued2012-02-20T11:59:35Z-
dc.date.accessioned2012-02-20T11:59:35Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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