2.50
Hdl Handle:
http://hdl.handle.net/10755/211574
Type:
Research Study
Title:
PATIENT AND FAMILY PERCEPTIONS OF CARE
Abstract:
Purpose:  The purpose of this study was to compare patient and family perspectives of care provided in the hospital setting to the domains of palliative care.  Aims included the development of a written focus group meeting guide, which was used to obtain perceptions of care provided in the hospital setting from both patients and their family members.  These perceptions of care will be then compared to the domains of palliative care. Background: Palliative care ideally begins at the time of diagnosis of a serious illness and continues through the end stages of an illness, during the dying process, and through family bereavement.  During the last several years tremendous strides have been made in raising awareness that palliative care is not, and should not be, limited to end of life care. In spite of increased attention on palliative care, the voices of the patients, and their family members, remains woefully absent from the palliative care literature.  Professional organizations have endorsed clinical practice guidelines which identify the essential elements of quality palliative care, centered on eight domains.  The domains of palliative care include: structure and processes of care; physical aspects of care; psychological and psychiatric aspects of care; social aspects of care; spiritual religious and existential aspects of care; cultural aspects of care; care of the imminently dying patient; and ethical and legal aspects of care. Methods: After obtaining institutional review board (IRB) approval focus group interviews were used to collect patient and family member’s perceptions of care provided in the hospital setting.  To date two focus group meetings have been conducted.  The first group consisted of patients only and the second group consisted of patients together with family members; all patients had been hospitalized within the last year.  The third focus group, currently being recruited, will include bereaved family members who experienced the death of a family member who had been hospitalized within the last year.  The goal is to have a total of up to 24 participants across three or more focus group sessions. Results: The analysis will include qualitative methods including identification of patterns across the different focus group sessions and these patterns will be grouped into themes. The research team will initially review the transcripts independently, then meet to compare their analysis and seek consensus.  The final stage of the analysis will be to compare patient and family perceptions of hospitalized care to the domains of palliative care.  Results of the analysis will be presented. Implications: Implications based on patient and family members’ perceptions of care provided in the hospital will be presented using the words of the participants’ themselves.   Implications for nurses and other members of the interdisciplinary team will be discussed.
Keywords:
Hospital Care; Palliative Care
Repository Posting Date:
20-Feb-2012
Date of Publication:
20-Feb-2012
Other Identifiers:
4673
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typeResearch Studyen_GB
dc.titlePATIENT AND FAMILY PERCEPTIONS OF CAREen_GB
dc.identifier.urihttp://hdl.handle.net/10755/211574-
dc.description.abstractPurpose:  The purpose of this study was to compare patient and family perspectives of care provided in the hospital setting to the domains of palliative care.  Aims included the development of a written focus group meeting guide, which was used to obtain perceptions of care provided in the hospital setting from both patients and their family members.  These perceptions of care will be then compared to the domains of palliative care. Background: Palliative care ideally begins at the time of diagnosis of a serious illness and continues through the end stages of an illness, during the dying process, and through family bereavement.  During the last several years tremendous strides have been made in raising awareness that palliative care is not, and should not be, limited to end of life care. In spite of increased attention on palliative care, the voices of the patients, and their family members, remains woefully absent from the palliative care literature.  Professional organizations have endorsed clinical practice guidelines which identify the essential elements of quality palliative care, centered on eight domains.  The domains of palliative care include: structure and processes of care; physical aspects of care; psychological and psychiatric aspects of care; social aspects of care; spiritual religious and existential aspects of care; cultural aspects of care; care of the imminently dying patient; and ethical and legal aspects of care. Methods: After obtaining institutional review board (IRB) approval focus group interviews were used to collect patient and family member’s perceptions of care provided in the hospital setting.  To date two focus group meetings have been conducted.  The first group consisted of patients only and the second group consisted of patients together with family members; all patients had been hospitalized within the last year.  The third focus group, currently being recruited, will include bereaved family members who experienced the death of a family member who had been hospitalized within the last year.  The goal is to have a total of up to 24 participants across three or more focus group sessions. Results: The analysis will include qualitative methods including identification of patterns across the different focus group sessions and these patterns will be grouped into themes. The research team will initially review the transcripts independently, then meet to compare their analysis and seek consensus.  The final stage of the analysis will be to compare patient and family perceptions of hospitalized care to the domains of palliative care.  Results of the analysis will be presented. Implications: Implications based on patient and family members’ perceptions of care provided in the hospital will be presented using the words of the participants’ themselves.   Implications for nurses and other members of the interdisciplinary team will be discussed.en_GB
dc.subjectHospital Careen_GB
dc.subjectPalliative Careen_GB
dc.date.available2012-02-20T12:03:07Z-
dc.date.issued2012-02-20T12:03:07Z-
dc.date.accessioned2012-02-20T12:03:07Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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