TRANSITIONS OF PARENTS CARING FOR ADULT CHILDREN WITH INTELLECTUAL DISABILITIES

2.50
Hdl Handle:
http://hdl.handle.net/10755/211722
Type:
Research Study
Title:
TRANSITIONS OF PARENTS CARING FOR ADULT CHILDREN WITH INTELLECTUAL DISABILITIES
Abstract:
Purpose: The purpose of this study is to describe the transitions and health trajectories of aging parents caring for adult children with intellectual disabilities (IDs). Background: The number of people with IDs is increasing because of greater life expectancies. Nationally, great concern exists regarding the health disparities among this vulnerable population. Parents are essential to eliminating the health disparities because of the key roles they play in the lives of their children. One method to support parents in their ongoing caregiving role is to help them optimize their own health. Health trajectories can act as a guide to show patterns of health over time, allowing for a broader view of parental health. Very little is known about the transitions and health trajectories of parents of adult children with IDs. Methods: This narrative and life history study will use in-depth interviews and lifelines to elicit stories about raising children with IDs. In-depth interviews will be used to explore the experience of raising a child with an ID. Lifelines, drawn by participants, will depict critical events and transitions in their lives. A purposeful sample of 3-5 parental dyads will be selected for the study. All participating parents will be caring for their own adult children with mild to moderate IDs between the ages of 18-40, and all adult children with IDs will live at home with their parents. Parents will first be recruited from a previous study with parents of adult children with IDs. Then, depending on initial interviews, additional participants may be recruited from other sources using snowball sampling. Narrative analysis will be used to create cohesive stories about parents’ experiences where transitions can be examined. After analyzing the stories individually, the stories will be compared among dyads, fathers, mothers, and as a whole group. Anticipated Results: A basic description of the unique and complex transitions of parents of adult children with IDs will be produced. Depending on the data, the final product of analysis may be portrayed as one or two stories that explain how parents transition or a series of smaller transition stories. Ultimately, a new model explaining the transition process could be created or an existing one modified. Implications: This study will improve scientific understanding of transitions and health trajectories among parents of adult children with IDs. With a greater capacity to describe, anticipate, and respond to transitions, professionals may create timely and appropriate interventions to better support parents through the transitions they encounter over a lifetime. Policies may be created to give parents more support as they care for their children and are called on to assist in the elimination of health disparities among this population.
Keywords:
Aging parents; Adult children; Adult caregivers; Developmental disabilities
Repository Posting Date:
20-Feb-2012
Date of Publication:
20-Feb-2012
Other Identifiers:
4464
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typeResearch Studyen_GB
dc.titleTRANSITIONS OF PARENTS CARING FOR ADULT CHILDREN WITH INTELLECTUAL DISABILITIESen_GB
dc.identifier.urihttp://hdl.handle.net/10755/211722-
dc.description.abstractPurpose: The purpose of this study is to describe the transitions and health trajectories of aging parents caring for adult children with intellectual disabilities (IDs). Background: The number of people with IDs is increasing because of greater life expectancies. Nationally, great concern exists regarding the health disparities among this vulnerable population. Parents are essential to eliminating the health disparities because of the key roles they play in the lives of their children. One method to support parents in their ongoing caregiving role is to help them optimize their own health. Health trajectories can act as a guide to show patterns of health over time, allowing for a broader view of parental health. Very little is known about the transitions and health trajectories of parents of adult children with IDs. Methods: This narrative and life history study will use in-depth interviews and lifelines to elicit stories about raising children with IDs. In-depth interviews will be used to explore the experience of raising a child with an ID. Lifelines, drawn by participants, will depict critical events and transitions in their lives. A purposeful sample of 3-5 parental dyads will be selected for the study. All participating parents will be caring for their own adult children with mild to moderate IDs between the ages of 18-40, and all adult children with IDs will live at home with their parents. Parents will first be recruited from a previous study with parents of adult children with IDs. Then, depending on initial interviews, additional participants may be recruited from other sources using snowball sampling. Narrative analysis will be used to create cohesive stories about parents’ experiences where transitions can be examined. After analyzing the stories individually, the stories will be compared among dyads, fathers, mothers, and as a whole group. Anticipated Results: A basic description of the unique and complex transitions of parents of adult children with IDs will be produced. Depending on the data, the final product of analysis may be portrayed as one or two stories that explain how parents transition or a series of smaller transition stories. Ultimately, a new model explaining the transition process could be created or an existing one modified. Implications: This study will improve scientific understanding of transitions and health trajectories among parents of adult children with IDs. With a greater capacity to describe, anticipate, and respond to transitions, professionals may create timely and appropriate interventions to better support parents through the transitions they encounter over a lifetime. Policies may be created to give parents more support as they care for their children and are called on to assist in the elimination of health disparities among this population.en_GB
dc.subjectAging parentsen_GB
dc.subjectAdult childrenen_GB
dc.subjectAdult caregiversen_GB
dc.subjectDevelopmental disabilitiesen_GB
dc.date.available2012-02-20T12:10:30Z-
dc.date.issued2012-02-20T12:10:30Z-
dc.date.accessioned2012-02-20T12:10:30Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.