2.50
Hdl Handle:
http://hdl.handle.net/10755/243223
Category:
Full-text
Type:
Presentation
Title:
The Lifetime Influence of Families in the Lives of Women with Cerebral Palsy
Author(s):
Freeborn, Donna; Knafl, Kathleen
Lead Author STTI Affiliation:
Iota Iota Chapter-at-large
Author Details:
Freeborn, Donna, APRN, PhD, Donna_Freeborn@byu.edu; Knafl, Kathleen, PhD, FAAN;
Abstract:
Purpose: Drawing on data from a qualitative study of 8 adult women with CP, the purpose of this qualitative descriptive study was to examine their perceptions of ways their families and individual family members contributed to their overall quality of life and adaptation to CP.  

Methods: The study was based on a feminist biographical approach, which combines biographical methods with feminist principles. Participants participated in two interviews where they shared numerous stories about their family life, parents, siblings, and extended families. Interviews were transcribed verbatim, and transcriptions were analyzed for common themes according to qualitative methodology.

Results: Participants provided considerable, rich contextual data on their family life.  Four themes appeared related to supportive roles their family played in their life: 1) being an advocate, and teaching advocacy, 2) promoting inclusion and acceptance, 3) integrating therapy into daily life, and 4) being a friend and mentor.  Participants with supportive families learned positive coping methods, developed self-determination, had a broad support system that assisted them face challenges associated with growing up and living with cerebral palsy, and reported a hope for the future not expressed by participants who described unsupportive families.

Conclusion: Nurses and health care providers can contribute to the family’s ability to develop supportive roles by providing guidance on how to be advocates and teach advocacy, include the child with CP in family activities, access therapy and incorporate beneficial therapies at home, and promote healthy sibling relationships.

Keywords:
cerebral palsy; families; qualitative research
Repository Posting Date:
12-Sep-2012
Date of Publication:
12-Sep-2012 ; 12-Sep-2012
Conference Date:
2012
Conference Name:
23rd International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Brisbane, Australia

Full metadata record

DC FieldValue Language
dc.language.isoenen
dc.type.categoryFull-texten
dc.typePresentationen
dc.titleThe Lifetime Influence of Families in the Lives of Women with Cerebral Palsyen
dc.contributor.authorFreeborn, Donnaen
dc.contributor.authorKnafl, Kathleenen
dc.contributor.departmentIota Iota Chapter-at-largeen
dc.author.detailsFreeborn, Donna, APRN, PhD, Donna_Freeborn@byu.edu; Knafl, Kathleen, PhD, FAAN;en
dc.identifier.urihttp://hdl.handle.net/10755/243223-
dc.description.abstract<b>Purpose: </b> Drawing on data from a qualitative study of 8 adult women with CP, the purpose of this qualitative descriptive study was to examine their perceptions of ways their families and individual family members contributed to their overall quality of life and adaptation to CP.&nbsp;&nbsp; <p><b>Methods: </b>The study was based on a feminist biographical approach, which combines biographical methods with feminist principles. Participants participated in two interviews where they shared numerous stories about their family life, parents, siblings, and extended families. Interviews were transcribed verbatim, and transcriptions were analyzed for common themes according to qualitative methodology. <p><b>Results: </b>Participants provided considerable, rich contextual data on their family life.&nbsp; Four themes appeared related to supportive roles their family played in their life: 1) being an advocate, and teaching advocacy, 2) promoting inclusion and acceptance, 3) integrating therapy into daily life, and 4) being a friend and mentor. &nbsp;Participants with supportive families learned positive coping methods, developed self-determination, had a broad support system that assisted them face challenges associated with growing up and living with cerebral palsy, and reported a hope for the future not expressed by participants who described unsupportive families. <p><b>Conclusion: </b>Nurses and health care providers can contribute to the family&rsquo;s ability to develop supportive roles by providing guidance on how to be advocates and teach advocacy, include the child with CP in family activities, access therapy and incorporate beneficial therapies at home, and promote healthy sibling relationships.en
dc.subjectcerebral palsyen
dc.subjectfamiliesen
dc.subjectqualitative researchen
dc.date.available2012-09-12T09:19:14Z-
dc.date.issued2012-09-12-
dc.date.issued2012-09-12en
dc.date.accessioned2012-09-12T09:19:14Z-
dc.conference.date2012en
dc.conference.name23rd International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationBrisbane, Australiaen
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