2.50
Hdl Handle:
http://hdl.handle.net/10755/243364
Category:
Abstract
Type:
Presentation
Title:
Respite Care in Dementia: Australian Consumer Perspectives
Author(s):
Beattie, Elizabeth R. A.; Fielding, Elaine L.; Readford, Margaret; Neville, Christine; Gresham, Meredith
Author Details:
Beattie, Elizabeth R. A., PhD, RN, elizabeth.beattie@qut.edu.au; Fielding, Elaine L., PhD; Readford, Margaret, RN, BSN; Neville, Christine, PhD, RN; Gresham, Meredith, BAppSciOT;
Abstract:
Purpose:

The majority of people with dementia living in the community are cared for by unpaid family members, and respite is one of the key government-funded services that enables these caregivers to continue caring at home. From an Australian government perspective, providing funding for respite care is far less expensive than for residential care.  In order to better inform policy and funding, a survey of Australian caregivers was conducted recently to gauge experiences with respite care.

Methods:

A cross-sectional online or phone survey (n = 336) included a mixture of closed- and open-ended questions about general caring support; types, frequencies, and satisfaction with respite services used; reasons for using (or not using) respite; and characteristics of the caregiver and the family member with dementia.

Results:

Over three-quarters (77%) of the caregivers had used some type of respite service, including in-home, day care centre, residential, emergency, and “other” types.  Caregivers’ use of services, and their satisfaction with them, ranged widely. The majority of caregivers (85 – 94%, depending on type used) reported being satisfied with respite services from their own perspective.  The lowest satisfaction level (62%) reported was for residential respite from the person with dementia’s perspective (as reported by the caregiver).

Most caregivers who had never used respite services either had not (yet) needed to or the person with dementia had refused to participate.  Others lacked sufficient information; found it unaffordable; or too inflexible for their needs. 

Conclusion:

Some policy-relevant conclusions are possible:  1) caregivers are grateful for and mostly satisfied with respite services received; 2) caregivers would like to see increased flexibility, availability, and higher individual allocations of respite services; and 3) the current Australian system of respite care is not succeeding when the person with dementia has challenging physical or behavioral symptoms (such as incontinence or wandering).

Keywords:
health care policy; respite care; dementia
Repository Posting Date:
12-Sep-2012
Date of Publication:
12-Sep-2012
Conference Date:
2012
Conference Name:
23rd International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Brisbane, Australia

Full metadata record

DC FieldValue Language
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleRespite Care in Dementia: Australian Consumer Perspectivesen_GB
dc.contributor.authorBeattie, Elizabeth R. A.en_GB
dc.contributor.authorFielding, Elaine L.en_GB
dc.contributor.authorReadford, Margareten_GB
dc.contributor.authorNeville, Christineen_GB
dc.contributor.authorGresham, Meredithen_GB
dc.author.detailsBeattie, Elizabeth R. A., PhD, RN, elizabeth.beattie@qut.edu.au; Fielding, Elaine L., PhD; Readford, Margaret, RN, BSN; Neville, Christine, PhD, RN; Gresham, Meredith, BAppSciOT;en_GB
dc.identifier.urihttp://hdl.handle.net/10755/243364-
dc.description.abstract<b>Purpose: </b> <p>The majority of people with dementia living in the community are cared for by unpaid family members, and respite is one of the key government-funded services that enables these caregivers to continue caring at home. From an Australian government perspective, providing funding for respite care is far less expensive than for residential care.&nbsp; In order to better inform policy and funding, a survey of Australian caregivers was conducted recently to gauge experiences with respite care. <p><b>Methods: </b> <p>A cross-sectional online or phone survey (n = 336) included a mixture of closed- and open-ended questions about general caring support; types, frequencies, and satisfaction with respite services used; reasons for using (or not using) respite; and characteristics of the caregiver and the family member with dementia. <p><b>Results: </b> <p>Over three-quarters (77%) of the caregivers had used some type of respite service, including in-home, day care centre, residential, emergency, and &ldquo;other&rdquo; types.&nbsp; Caregivers&rsquo; use of services, and their satisfaction with them, ranged widely. The majority of caregivers (85 &ndash; 94%, depending on type used) reported being satisfied with respite services from their own perspective.&nbsp; The lowest satisfaction level (62%) reported was for residential respite from the person with dementia&rsquo;s perspective (as reported by the caregiver). <p>Most caregivers who had never used respite services either had not (yet) needed to or the person with dementia had refused to participate.&nbsp; Others lacked sufficient information; found it unaffordable; or too inflexible for their needs.&nbsp; <p><b>Conclusion: </b> <p>Some policy-relevant conclusions are possible:&nbsp; 1) caregivers are grateful for and mostly satisfied with respite services received; 2) caregivers would like to see increased flexibility, availability, and higher individual allocations of respite services; and 3) the current Australian system of respite care is not succeeding when the person with dementia has challenging physical or behavioral symptoms (such as incontinence or wandering).en_GB
dc.subjecthealth care policyen_GB
dc.subjectrespite careen_GB
dc.subjectdementiaen_GB
dc.date.available2012-09-12T09:21:11Z-
dc.date.issued2012-09-12-
dc.date.accessioned2012-09-12T09:21:11Z-
dc.conference.date2012en_GB
dc.conference.name23rd International Nursing Research Congressen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationBrisbane, Australiaen_GB
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