2.50
Hdl Handle:
http://hdl.handle.net/10755/263135
Category:
Abstract
Type:
Presentation
Title:
Health-Related Quality of Life for Children with Cleft Lip and/or Palate
Author(s):
Sinclair, Sandra
Lead Author STTI Affiliation:
Non-member
Author Details:
Sandra Lee Sinclair, RN, PhD, sandrals@hawaii.edu
Abstract:

Rising Stars of Scholarship Invited Poster.

Background & Purpose: A child’s health-related quality of life is a multidimensional, subjective construct that is perceived as a result of the impact that a condition has on the child’s physical, emotional, social, and cognitive functioning (WHO, 1995; Varni & Limbers, 2009).

Methods: A descriptive quantitative design was utilized. Data were collected in a multidisciplinary cleft clinic in Honolulu, Hawaii. The sample for this study included 2 to 12 year old children with a nonsyndromic oral cleft and their parents. One hundred subjects participated in the study, including 62 parents and 38 children who completed the PedsQL instrument.

Results: Parents of children with an oral cleft and the children themselves rated their Emotional Functioning, Social Functioning, School Functioning, overall Psychosocial Functioning, and Total HRQOL lower than healthy unaffected children, but higher than children with a chronic condition. Parents of children with an oral cleft rated their children’s Physical Health higher than a normative sample of parents of healthy unaffected children, which was an unexpected finding. Parent-child concordance was quite low in all domains with the highest correlation being only 0.20 on the Emotional Functioning scale. Demographic variables, speech impairment, and severity of hearing loss did not affect HRQOL scores, although wearing a hearing aid had a significant affect on School Functioning according to the parent’s perspective.

Conclusions: The PedsQL is an effective and quick measure of HRQOL for children with an oral cleft that can be utilized during the multidisciplinary cleft clinic to identify children who are at-risk for impaired HRQOL. Since parent-child agreement was low, children should be given every opportunity to rate their own HRQOL. Once individual concerns have been identified, health care providers can then implement care and treatment to maximize the child’s satisfaction with health and well-being which may result in improved patient outcomes.

Keywords:
cleft lip; cleft palate and health-related quality of life
Repository Posting Date:
18-Dec-2012
Date of Publication:
18-Dec-2012
Conference Date:
2012
Conference Name:
23rd International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Brisbane, Australia

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryAbstracten
dc.typePresentationen
dc.titleHealth-Related Quality of Life for Children with Cleft Lip and/or Palateen_US
dc.contributor.authorSinclair, Sandra-
dc.contributor.departmentNon-memberen
dc.author.detailsSandra Lee Sinclair, RN, PhD, sandrals@hawaii.eduen_GB
dc.identifier.urihttp://hdl.handle.net/10755/263135-
dc.description.abstract<p>Rising Stars of Scholarship Invited Poster.</p> <p><strong>Background &amp; Purpose:</strong> A child&rsquo;s health-related quality of life is a multidimensional, subjective construct that is perceived as a result of the impact that a condition has on the child&rsquo;s physical, emotional, social, and cognitive functioning (WHO, 1995; Varni &amp; Limbers, 2009).</p> <p><strong>Methods:</strong> A descriptive quantitative design was utilized. Data were collected in a multidisciplinary cleft clinic in Honolulu, Hawaii. The sample for this study included 2 to 12 year old children with a nonsyndromic oral cleft and their parents. One hundred subjects participated in the study, including 62 parents and 38 children who completed the PedsQL instrument.</p> <p><strong>Results:</strong> Parents of children with an oral cleft and the children themselves rated their Emotional Functioning, Social Functioning, School Functioning, overall Psychosocial Functioning, and Total HRQOL lower than healthy unaffected children, but higher than children with a chronic condition. Parents of children with an oral cleft rated their children&rsquo;s Physical Health higher than a normative sample of parents of healthy unaffected children, which was an unexpected finding. Parent-child concordance was quite low in all domains with the highest correlation being only 0.20 on the Emotional Functioning scale. Demographic variables, speech impairment, and severity of hearing loss did not affect HRQOL scores, although wearing a hearing aid had a significant affect on School Functioning according to the parent&rsquo;s perspective.</p> <p><strong>Conclusions:</strong> The PedsQL is an effective and quick measure of HRQOL for children with an oral cleft that can be utilized during the multidisciplinary cleft clinic to identify children who are at-risk for impaired HRQOL. Since parent-child agreement was low, children should be given every opportunity to rate their own HRQOL. Once individual concerns have been identified, health care providers can then implement care and treatment to maximize the child&rsquo;s satisfaction with health and well-being which may result in improved patient outcomes.</p>en_GB
dc.subjectcleft lipen_GB
dc.subjectcleft palate and health-related quality of lifeen_GB
dc.date.available2012-12-18T19:36:06Z-
dc.date.issued2012-12-18-
dc.date.accessioned2012-12-18T19:36:06Z-
dc.conference.date2012en
dc.conference.name23rd International Nursing Research Congressen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationBrisbane, Australiaen_GB
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