Suffering Had Enough: Family Caregivers' Experiences of Patients with Terminal Illness at the End-of-Life

2.50
Hdl Handle:
http://hdl.handle.net/10755/303882
Category:
Full-text
Type:
Presentation
Title:
Suffering Had Enough: Family Caregivers' Experiences of Patients with Terminal Illness at the End-of-Life
Author(s):
Shanmugasundaram, Sujatha
Lead Author STTI Affiliation:
Eta Pi
Author Details:
Sujatha Shanmugasundaram, RN, RM, BSc (Nsg), MSc (Nsg), gkpssuja@hotmail.com
Abstract:

Session presented on: Wednesday, July 24, 2013

Introduction: Many literatures proved that it is a great challenge for the family members caring for the terminally ill person at home. With an ageing population and increasing the rate of disability and incidences of cancer, and the growth in community care, the role of the caregivers has expanded and changed over the recent years. Many terminally ill patients also prefer to die at home and spend their final stage of life with their family members.' It is not surprising therefore that family caregiving has been the major focus of the research not only in Australia, but also across the world.

'

Purpose: The purpose of this study is to explore the family caregivers' experiences whilst caring for their ill relatives with terminal illness.

Methods: This study utilised a grounded theory approach. The in-depth interview technique was used to collect the data by using the semi-structured interview guide. The inclusion criteria were the primary caregivers of patients with any terminal illness; age above 18 years; family caregiver's who can read, speak and understand English; patients received palliative care services within last 6 months or currently receiving palliative care services. The convenient sampling technique was utilised to recruit the participants.

Results: Constructivist grounded theory analysis was utilised to analyse the data. This study had identified several significant findings such as caregivers' physical and emotional stress, financial burden, unable to spend time with other families and friends, social isolation, depression, and lack of family support.

Conclusion: To conclude, family caregivers undergo a lot of stress when they care for their patients with terminal illness. There is still long way to improve the family caregivers' quality of life and therefore some more researches needed in this area.


Keywords:
TYPE NEW KEYWORD HERE; TYPE NEW KEYWORD HERE; family caregivers
Repository Posting Date:
22-Oct-2013
Date of Publication:
22-Oct-2013 ; 22-Oct-2013
Conference Date:
2013
Conference Name:
24th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Prague, Czech Republic
Description:
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.language.isoenen
dc.type.categoryFull-texten
dc.typePresentationen
dc.titleSuffering Had Enough: Family Caregivers' Experiences of Patients with Terminal Illness at the End-of-Lifeen
dc.contributor.authorShanmugasundaram, Sujathaen
dc.contributor.departmentEta Pien
dc.author.detailsSujatha Shanmugasundaram, RN, RM, BSc (Nsg), MSc (Nsg), gkpssuja@hotmail.comen
dc.identifier.urihttp://hdl.handle.net/10755/303882-
dc.description.abstract<p>Session presented on: Wednesday, July 24, 2013</p><p><b>Introduction:</b> Many literatures proved that it is a great challenge for the family members caring for the terminally ill person at home. With an ageing population and increasing the rate of disability and incidences of cancer, and the growth in community care, the role of the caregivers has expanded and changed over the recent years. Many terminally ill patients also prefer to die at home and spend their final stage of life with their family members.' It is not surprising therefore that family caregiving has been the major focus of the research not only in Australia, but also across the world. <p><b>'</b><p><b><b>Purpose</b>: </b> The purpose of this study is to explore the family caregivers' experiences whilst caring for their ill relatives with terminal illness. <p><b><b>Methods</b>: </b> This study utilised a grounded theory approach. The in-depth interview technique was used to collect the data by using the semi-structured interview guide. The inclusion criteria were the primary caregivers of patients with any terminal illness; age above 18 years; family caregiver's who can read, speak and understand English; patients received palliative care services within last 6 months or currently receiving palliative care services. The convenient sampling technique was utilised to recruit the participants. <p><b><b>Results: </b> </b>Constructivist grounded theory analysis was utilised to analyse the data.<b> </b>This study had identified several significant findings such as caregivers' physical and emotional stress, financial burden, unable to spend time with other families and friends, social isolation, depression, and lack of family support. <b></b><p><b><b>Conclusion: </b></b> To conclude, family caregivers undergo a lot of stress when they care for their patients with terminal illness. There is still long way to improve the family caregivers' quality of life and therefore some more researches needed in this area. <p><b><br /="/"></b>en
dc.subjectTYPE NEW KEYWORD HEREen
dc.subjectTYPE NEW KEYWORD HEREen
dc.subjectfamily caregiversen
dc.date.available2013-10-22T20:25:06Z-
dc.date.issued2013-10-22-
dc.date.issued2013-10-22en
dc.date.accessioned2013-10-22T20:25:06Z-
dc.conference.date2013en
dc.conference.name24th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationPrague, Czech Republicen
dc.description24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.en
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