2.50
Hdl Handle:
http://hdl.handle.net/10755/304103
Category:
Full-text
Type:
Presentation
Title:
Exploring the Comfort Experience of Adolescents with Metastatic Cancer
Author(s):
Mauricio, Riza; Binder, Brenda K.; Symes, Lene; Cesario, Sandra; Mejia, Rodrigo
Lead Author STTI Affiliation:
Beta Beta
Author Details:
Riza Mauricio, PhD, RN, rmauricio@mdanderson.org; Brenda K. Binder, PhD, RN, PNP; Lene Symes, PhD, RN; Sandra Cesario, PhD, RNC, FAAN; Rodrigo Mejia, MD;
Abstract:

Session presented on: Friday, July 26, 2013

Purpose:

Adolescents with cancer are challenged not only by the biophysical and emotional changes of a normally developing person; also pain and distress from their treatment affecting their quality of life. Most of our knowledge about adolescent comfort experience is derived from parent and staff perspectives. Parents cannot speak everything about their children. There is more to know about them being the least investigated age group. This study explored the meaning and significance of comfort experienced by adolescents with metastatic or progressive cancer.'

Methods:

Descriptive phenomenology was used to uncover the comfort experience of adolescents with metastatic or progressive cancer. This qualitative study utilized purposive sampling to recruit patients who were 15-21 years old, undergoing treatment for their disease in a children's cancer hospital of a large tertiary cancer institution. Kolcaba's comfort theory was used as the framework of the study. A questionnaire identified the demographics of the participants. Semi-structured interview questionnaire designed by the research team guided the interviews and explored the depth and breadth of the participants' lived experience.

Results:

Van Manen's method was used to analyze data from thirteen ethnically diverse middle and late adolescents who mostly had progressive disease. Eight broad themes emerged from their statements. They reported distorted body image, shock from the diagnosis, uncertain future, isolation from friends, help from Higher Being, existential well -being, social support from family, friends, health providers, and the uniquely adolescent environment. Their experiences fit the definition of comfort in Kolcaba's theory. Comfort improved their wellbeing and helped them cope with the debilitating effects of cancer.'

Conclusion:

Comfort is significant to these adolescents because it gave them hope, motivation, and the will power to live. Healthcare staff should be sensitive for the presence of distressing symptoms and develop a standard of care to address the comfort needs of adolescents.

Keywords:
metastatic or progressive cancer; comfort experience; adolescents
Repository Posting Date:
22-Oct-2013
Date of Publication:
22-Oct-2013 ; 22-Oct-2013
Conference Date:
2013
Conference Name:
24th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Prague, Czech Republic
Description:
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.language.isoenen
dc.type.categoryFull-texten
dc.typePresentationen
dc.titleExploring the Comfort Experience of Adolescents with Metastatic Canceren
dc.contributor.authorMauricio, Rizaen
dc.contributor.authorBinder, Brenda K.en
dc.contributor.authorSymes, Leneen
dc.contributor.authorCesario, Sandraen
dc.contributor.authorMejia, Rodrigoen
dc.contributor.departmentBeta Betaen
dc.author.detailsRiza Mauricio, PhD, RN, rmauricio@mdanderson.org; Brenda K. Binder, PhD, RN, PNP; Lene Symes, PhD, RN; Sandra Cesario, PhD, RNC, FAAN; Rodrigo Mejia, MD;en
dc.identifier.urihttp://hdl.handle.net/10755/304103-
dc.description.abstract<p>Session presented on: Friday, July 26, 2013</p><b>Purpose: </b> <p>Adolescents with cancer are challenged not only by the biophysical and emotional changes of a normally developing person; also pain and distress from their treatment affecting their quality of life.<b> </b>Most of our knowledge about adolescent comfort experience is derived from parent and staff perspectives. Parents cannot speak everything about their children. There is more to know about them being the least investigated age group. This study explored the meaning and significance of comfort experienced by adolescents with metastatic or progressive cancer.' <p><b>Methods: </b> <p>Descriptive phenomenology was used to uncover the comfort experience of adolescents with metastatic or progressive cancer. This qualitative study utilized purposive sampling to recruit patients who were 15-21 years old, undergoing treatment for their disease in a children's cancer hospital of a large tertiary cancer institution. Kolcaba's comfort theory was used as the framework of the study. A questionnaire identified the demographics of the participants. Semi-structured interview questionnaire designed by the research team guided the interviews and explored the depth and breadth of the participants' lived experience. <p><b>Results: </b> <p>Van Manen's method was used to analyze data from thirteen ethnically diverse middle and late adolescents who mostly had progressive disease. Eight broad themes emerged from their statements. They reported distorted body image, shock from the diagnosis, uncertain future, isolation from friends, help from Higher Being, existential well -being, social support from family, friends, health providers, and the uniquely adolescent environment. Their experiences fit the definition of comfort in Kolcaba's theory. Comfort improved their wellbeing and helped them cope with the debilitating effects of cancer.' <p><b>Conclusion: </b> <p>Comfort is significant to these adolescents because it gave them hope, motivation, and the will power to live. Healthcare staff should be sensitive for the presence of distressing symptoms and develop a standard of care to address the comfort needs of adolescents.en
dc.subjectmetastatic or progressive canceren
dc.subjectcomfort experienceen
dc.subjectadolescentsen
dc.date.available2013-10-22T20:29:10Z-
dc.date.issued2013-10-22-
dc.date.issued2013-10-22en
dc.date.accessioned2013-10-22T20:29:10Z-
dc.conference.date2013en
dc.conference.name24th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationPrague, Czech Republicen
dc.description24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.en
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