Hospital Experiences of Children with Intelletual Disabilities: Child, Parent and Nurse Perspectives

2.50
Hdl Handle:
http://hdl.handle.net/10755/304140
Category:
Full-text
Type:
Presentation
Title:
Hospital Experiences of Children with Intelletual Disabilities: Child, Parent and Nurse Perspectives
Author(s):
Aston, Megan; MacLeod, Emily F.; Breau, Lynn
Lead Author STTI Affiliation:
Non-member
Author Details:
Megan Aston, RN, PhD, Megan.Aston@Dal.Ca; Emily F. MacLeod, MA, BACS; Lynn Breau, PhD, R. Psych;
Abstract:

Session presented on: Monday, July 22, 2013

Purpose: Children with intellectual disabilities (ID) have higher rates of hospital admission and experience longer hospital stays than typically developing children. 'Their reduced intellectual and social capacity can hinder their ability to communicate their needs and creates a unique hospital experience that is often invisible. There are few research studies that include the voices of children with ID with respect to hospital experiences. The purpose of this study was to explore hospital experiences from the perspective of children with ID, their parents and nurses who cared for them.

Methods: Feminist poststructuralist methodology was used throughout all stages of the research. Data collection included qualitative semi structured face to face interviews with 12 nurses, 17 parents and 8 children with ID in Halifax Nova Scotia Canada. Discourse analysis examined beliefs, values and practices of all participants in the context of personal, social and institutional discourses. Relations of power then helped to frame participant's experiences that were both unique and similar. Emerging themes were also compared across groups to identify common themes.

Results: The five themes that emerged were 1) Labels: What's in a name? 2) The impact of ID on relationship establishment 3) Role Negotiation: Who's the expert? 4) ID Documentation: Supplemental or foundational? 5) Reducing stigma through education and knowledge.

Conclusion: Institutional and social discourses regarding children with ID informed the hospital experiences of children with ID, their parents, and the nurses who cared for them.' Such discourses were also challenged by many participants. Ongoing discussion between health care professionals and families regarding roles such as 'expert' and 'caregiver' can help to minimize conflict and tension that exists when assumptions are made regarding these roles.' Additional knowledge and education will help to reduce negative labels associated with ID. Documentation of ID information should be further explored and understood.

Keywords:
Hospital experiences; Qualitative; Children with intellectual disabilities
Repository Posting Date:
22-Oct-2013
Date of Publication:
22-Oct-2013 ; 22-Oct-2013
Conference Date:
2013
Conference Name:
24th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Prague, Czech Republic
Description:
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.language.isoenen
dc.type.categoryFull-texten
dc.typePresentationen
dc.titleHospital Experiences of Children with Intelletual Disabilities: Child, Parent and Nurse Perspectivesen
dc.contributor.authorAston, Meganen
dc.contributor.authorMacLeod, Emily F.en
dc.contributor.authorBreau, Lynnen
dc.contributor.departmentNon-memberen
dc.author.detailsMegan Aston, RN, PhD, Megan.Aston@Dal.Ca; Emily F. MacLeod, MA, BACS; Lynn Breau, PhD, R. Psych;en
dc.identifier.urihttp://hdl.handle.net/10755/304140-
dc.description.abstract<p>Session presented on: Monday, July 22, 2013</p><b>Purpose: </b>Children with intellectual disabilities (ID) have higher rates of hospital admission and experience longer hospital stays than typically developing children. 'Their reduced intellectual and social capacity can hinder their ability to communicate their needs and creates a unique hospital experience that is often invisible. There are few research studies that include the voices of children with ID with respect to hospital experiences. The purpose of this study was to explore hospital experiences from the perspective of children with ID, their parents and nurses who cared for them. <p><b>Methods: </b>Feminist poststructuralist methodology was used throughout all stages of the research. Data collection included qualitative semi structured face to face interviews with 12 nurses, 17 parents and 8 children with ID in Halifax Nova Scotia Canada. Discourse analysis examined beliefs, values and practices of all participants in the context of personal, social and institutional discourses. Relations of power then helped to frame participant's experiences that were both unique and similar. Emerging themes were also compared across groups to identify common themes. <p><b>Results: </b>The five themes that emerged were 1) Labels: What's in a name? 2) The impact of ID on relationship establishment 3) Role Negotiation: Who's the expert? 4) ID Documentation: Supplemental or foundational? 5) Reducing stigma through education and knowledge. <p><b>Conclusion: </b> Institutional and social discourses regarding children with ID informed the hospital experiences of children with ID, their parents, and the nurses who cared for them.' Such discourses were also challenged by many participants. Ongoing discussion between health care professionals and families regarding roles such as 'expert' and 'caregiver' can help to minimize conflict and tension that exists when assumptions are made regarding these roles.' Additional knowledge and education will help to reduce negative labels associated with ID. Documentation of ID information should be further explored and understood.en
dc.subjectHospital experiencesen
dc.subjectQualitativeen
dc.subjectChildren with intellectual disabilitiesen
dc.date.available2013-10-22T20:29:51Z-
dc.date.issued2013-10-22-
dc.date.issued2013-10-22en
dc.date.accessioned2013-10-22T20:29:51Z-
dc.conference.date2013en
dc.conference.name24th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationPrague, Czech Republicen
dc.description24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.en
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