2.50
Hdl Handle:
http://hdl.handle.net/10755/304201
Category:
Abstract
Type:
Presentation
Title:
Neonatal Palliative Care Development in Portugal
Author(s):
Mendes, Joana Catarina da Cruz
Lead Author STTI Affiliation:
Non-member
Author Details:
Joana Catarina da Cruz Mendes, BSN, MS, PhD, joanaccmendes@hotmail.com
Abstract:

Session presented on: Monday, July 22, 2013

Purpose: There are presently no programs for Palliative care for neonates in Portugal. Infants often receive technological life extending interventions even when they have a life limiting condition. The purpose of this study was to assess physician readiness to build an end of life protocol that they would accept and practice.

Methods: The Delphi Study is a replication of that conducted in the United States in 2002 by Catlin and Carter. Fifty seven Portuguese neonatologists completed the questions in an on line Delphi method over a year's time. There were three rounds of questions that repeated until 80% consensus was obtained. Content analysis and descriptive statistics were used for analysis.

Results: Areas of consensus were reached to create a protocol for Portugal. Physicians agreed upon the planning needed (medical education, resources and local), prenatal palliative care principles, working with parents, medical needs at the end of life, and pain and symptom management.

Conclusion: Prognostic uncertainty and ethical dilemmas make planning a palliative care program for neonates in Portugal an arduous process. This first step will improve the conditions for dying infants and their parents. More research in this area is warranted.

Keywords:
neonatal; end of life; Portugal
Repository Posting Date:
22-Oct-2013
Date of Publication:
22-Oct-2013
Conference Date:
2013
Conference Name:
24th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Prague, Czech Republic
Description:
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleNeonatal Palliative Care Development in Portugalen_GB
dc.contributor.authorMendes, Joana Catarina da Cruzen_GB
dc.contributor.departmentNon-memberen_GB
dc.author.detailsJoana Catarina da Cruz Mendes, BSN, MS, PhD, joanaccmendes@hotmail.comen_GB
dc.identifier.urihttp://hdl.handle.net/10755/304201-
dc.description.abstract<p>Session presented on: Monday, July 22, 2013</p><b>Purpose: </b>There are presently no programs for Palliative care for neonates in Portugal. Infants often receive technological life extending interventions even when they have a life limiting condition. The purpose of this study was to assess physician readiness to build an end of life protocol that they would accept and practice. <p><b>Methods: </b>The Delphi Study is a replication of that conducted in the United States in 2002 by Catlin and Carter. Fifty seven Portuguese neonatologists completed the questions in an on line Delphi method over a year's time. There were three rounds of questions that repeated until 80% consensus was obtained. Content analysis and descriptive statistics were used for analysis. <p><b>Results: </b>Areas of consensus were reached to create a protocol for Portugal. Physicians agreed upon the planning needed (medical education, resources and local), prenatal palliative care principles, working with parents, medical needs at the end of life, and pain and symptom management. <p><b>Conclusion: </b>Prognostic uncertainty and ethical dilemmas make planning a palliative care program for neonates in Portugal an arduous process. This first step will improve the conditions for dying infants and their parents. More research in this area is warranted.en_GB
dc.subjectneonatalen_GB
dc.subjectend of lifeen_GB
dc.subjectPortugalen_GB
dc.date.available2013-10-22T20:31:04Z-
dc.date.issued2013-10-22-
dc.date.accessioned2013-10-22T20:31:04Z-
dc.conference.date2013en_GB
dc.conference.name24th International Nursing Research Congressen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationPrague, Czech Republicen_GB
dc.description24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.en_GB
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.en_GB
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