2.50
Hdl Handle:
http://hdl.handle.net/10755/304446
Category:
Abstract
Type:
Presentation
Title:
Lessons Learned from a Life with Type 1 Diabetes: Adult Perspectives
Author(s):
Freeborn, Donna; Dyches, Tina; Olsen Roper, Susanne; Mandleco, Barbara L.
Lead Author STTI Affiliation:
Iota Iota
Author Details:
Donna Freeborn, PhD, FNP, CNM, donnafreeborn@byu.edu; Tina Dyches, PhD; Susanne Olsen Roper, PhD; Barbara L. Mandleco, PhD, RN;
Abstract:

Poster presented on: Thursday, July 25, 2013, Wednesday, July 24, 2013

Purpose: The study aims were to gain a better understanding of the experience of growing up and living with type 1 diabetes (T1DM) from adults who have had T1DM.

Methods: This qualitative study, using the biographical method, consisted of two in-depth interviews of adults with T1DM. The first interview allowed participants to answer the prompt “tell me about growing up and living with type 1 diabetes” in his/her own words. The second interview focused on answering the following questions about their diagnosis, challenges, self-management, family interaction, and advice for children/adolescents with T1DM and their parents. Interviews were transcribed verbatim, entered into NVivo version 9, and coded independently by two to three researchers. Participant age at diagnosis ranged from 2 years to 48 years; they had lived with T1DM for 1 to 54 years.

Results: Six major themes related to participant experiences living with T1DM emerged:  1) it’s not who you are; 2) don’t let it limit you; 3) get involved in diabetes support groups; 4) it’s going to be OK; 5) teach them, don’t scare them; 6) don’t single kids out. Each theme included pearls of advice including: don’t let it take over your life; don’t be hard on yourself; you can do anything; be independent; you are not alone; taking care of it makes it better; and, celebrate your diagnosis day.

Conclusion:

Adults with T1DM have a perspective that children/adolescents with the disease do not have. They have lived through the challenges of diagnosis, life-style changes, childhood/adolescent experiences, and adulthood and have learned valuable lessons. Nurses and nurse practitioners who care for patients with T1DM should talk with their adult patients living with T1DM and share these insights and lessons with young patients with T1DM and their parents.

Keywords:
diabetes education; type 1 diabetes
Repository Posting Date:
22-Oct-2013
Date of Publication:
22-Oct-2013
Conference Date:
2013
Conference Name:
24th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Prague, Czech Republic
Description:
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleLessons Learned from a Life with Type 1 Diabetes: Adult Perspectivesen_GB
dc.contributor.authorFreeborn, Donnaen_GB
dc.contributor.authorDyches, Tinaen_GB
dc.contributor.authorOlsen Roper, Susanneen_GB
dc.contributor.authorMandleco, Barbara L.en_GB
dc.contributor.departmentIota Iotaen_GB
dc.author.detailsDonna Freeborn, PhD, FNP, CNM, donnafreeborn@byu.edu; Tina Dyches, PhD; Susanne Olsen Roper, PhD; Barbara L. Mandleco, PhD, RN;en_GB
dc.identifier.urihttp://hdl.handle.net/10755/304446-
dc.description.abstract<p>Poster presented on: Thursday, July 25, 2013, Wednesday, July 24, 2013</p><b>Purpose: </b>The study aims were to gain a better understanding of the experience of growing up and living with type 1 diabetes (T1DM) from adults who have had T1DM. <p><b>Methods: </b>This qualitative study, using the biographical method, consisted of two in-depth interviews of adults with T1DM. The first interview allowed participants to answer the prompt “tell me about growing up and living with type 1 diabetes” in his/her own words. The second interview focused on answering the following questions about their diagnosis, challenges, self-management, family interaction, and advice for children/adolescents with T1DM and their parents. Interviews were transcribed verbatim, entered into NVivo version 9, and coded independently by two to three researchers. Participant age at diagnosis ranged from 2 years to 48 years; they had lived with T1DM for 1 to 54 years. <p><b>Results: </b>Six major themes related to participant experiences living with T1DM emerged:  1) it’s not who you are; 2) don’t let it limit you; 3) get involved in diabetes support groups; 4) it’s going to be OK; 5) teach them, don’t scare them; 6) don’t single kids out. Each theme included pearls of advice including: don’t let it take over your life; don’t be hard on yourself; you can do anything; be independent; you are not alone; taking care of it makes it better; and, celebrate your diagnosis day. <p><b>Conclusion: </b> <p>Adults with T1DM have a perspective that children/adolescents with the disease do not have. They have lived through the challenges of diagnosis, life-style changes, childhood/adolescent experiences, and adulthood and have learned valuable lessons. Nurses and nurse practitioners who care for patients with T1DM should talk with their adult patients living with T1DM and share these insights and lessons with young patients with T1DM and their parents.en_GB
dc.subjectdiabetes educationen_GB
dc.subjecttype 1 diabetesen_GB
dc.date.available2013-10-22T20:36:01Z-
dc.date.issued2013-10-22-
dc.date.accessioned2013-10-22T20:36:01Z-
dc.conference.date2013en_GB
dc.conference.name24th International Nursing Research Congressen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationPrague, Czech Republicen_GB
dc.description24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.en_GB
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.en_GB
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