African-American Parents' Experiences Accessing Health Care for their Children with Special Health Care Needs – Special Families Project

2.50
Hdl Handle:
http://hdl.handle.net/10755/307934
Category:
Abstract
Type:
Presentation
Title:
African-American Parents' Experiences Accessing Health Care for their Children with Special Health Care Needs – Special Families Project
Author(s):
Mendes, Michele A.
Lead Author STTI Affiliation:
Beta Nu
Author Details:
Michele A. Mendes, PhD, RN, CPN, mendesm@ecu.edu
Abstract:

Poster presented on: Saturday, November 16, 2013, Sunday, November 17, 2013

The National Survey of Children with Special Health Care Needs revealed that approximately 1.7 million CSHCN were identified as Black, non-Hispanic.  This survey also identified many health disparities experienced by this group including unmet service and equipment needs, lack of effective care coordination and parents needing to decrease work hours or stop working to care for their child (Child and Adolescent Health Measurement Initiative, 2011).  The purpose of the Special Families Project is to describe the social and environmental factors that contribute to the health disparities experienced by African-American CSHCN.   The project, based on the principles of engaged scholarship (Sandmann, 2006), is a campus/community partnership aimed at promoting health equity.

The project employs a qualitative descriptive design to examine African-American parents’ of CSHCN perceptions of the factors that facilitate or hamper their ability to obtain the services that their children need.  Preliminary data analysis revealed that parents described the support of friends and family, supportive health care professionals and environmental factors that help parents’ access care for their CSHCN.  Institutional procedures, transportation difficulties and lack of assistance to navigate the system (eg. applications for Medicaid) were described as factors that hamper parents’ efforts to access care for their children.

To date five mothers and one grandmother of young school age children have participated.  The project is ongoing with recruitment of participants from a broader age range (pre- and middle school).   Project findings will be used to plan sustainable, community-based participatory programs to address health disparities in this group of children and their families.

Keywords:
Health disparities; Engaged scholarship; children with special health care needs
Repository Posting Date:
19-Dec-2013
Date of Publication:
19-Dec-2013
Conference Date:
2013
Conference Name:
42nd Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Indianapolis, Indiana, USA
Description:
42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriott
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleAfrican-American Parents' Experiences Accessing Health Care for their Children with Special Health Care Needs – Special Families Projecten_GB
dc.contributor.authorMendes, Michele A.en_GB
dc.contributor.departmentBeta Nuen_GB
dc.author.detailsMichele A. Mendes, PhD, RN, CPN, mendesm@ecu.eduen_GB
dc.identifier.urihttp://hdl.handle.net/10755/307934-
dc.description.abstract<p>Poster presented on: Saturday, November 16, 2013, Sunday, November 17, 2013</p>The National Survey of Children with Special Health Care Needs revealed that approximately 1.7 million CSHCN were identified as Black, non-Hispanic.  This survey also identified many health disparities experienced by this group including unmet service and equipment needs, lack of effective care coordination and parents needing to decrease work hours or stop working to care for their child (Child and Adolescent Health Measurement Initiative, 2011).  The purpose of the Special Families Project is to describe the social and environmental factors that contribute to the health disparities experienced by African-American CSHCN.   The project, based on the principles of engaged scholarship (Sandmann, 2006), is a campus/community partnership aimed at promoting health equity. <p>The project employs a qualitative descriptive design to examine African-American parents’ of CSHCN perceptions of the factors that facilitate or hamper their ability to obtain the services that their children need.  Preliminary data analysis revealed that parents described the support of friends and family, supportive health care professionals and environmental factors that help parents’ access care for their CSHCN.  Institutional procedures, transportation difficulties and lack of assistance to navigate the system (eg. applications for Medicaid) were described as factors that hamper parents’ efforts to access care for their children. <p>To date five mothers and one grandmother of young school age children have participated.  The project is ongoing with recruitment of participants from a broader age range (pre- and middle school).   Project findings will be used to plan sustainable, community-based participatory programs to address health disparities in this group of children and their families.en_GB
dc.subjectHealth disparitiesen_GB
dc.subjectEngaged scholarshipen_GB
dc.subjectchildren with special health care needsen_GB
dc.date.available2013-12-19T17:24:20Z-
dc.date.issued2013-12-19-
dc.date.accessioned2013-12-19T17:24:20Z-
dc.conference.date2013en_GB
dc.conference.name42nd Biennial Conventionen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationIndianapolis, Indiana, USAen_GB
dc.description42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriotten_GB
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.en_GB
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