Nurse-Led Initiatives for Quality Improvement: Facilitating Healthcare Decision Making in the Intellectual / Developmental Disability Community

2.50
Hdl Handle:
http://hdl.handle.net/10755/308028
Category:
Abstract
Type:
Presentation
Title:
Nurse-Led Initiatives for Quality Improvement: Facilitating Healthcare Decision Making in the Intellectual / Developmental Disability Community
Author(s):
Artnak, Kathryn; Baugh, Mimi H.
Lead Author STTI Affiliation:
Delta Alpha
Author Details:
Kathryn Artnak, PhD, RN, MA, CNS, kathryn.artnak@angelo.edu; Mimi H. Baugh, MSN, RN
Abstract:

Poster presented on: Monday, November 18, 2013, Tuesday, November 19, 2013

This quality improvement project aimed to develop an interdisciplinary process for facilitating communication preferences for medical treatment and healthcare decision-making in a population of individuals with intellectual and developmental disabilities living outside of an institutional setting. Although capable of living quite independently in group homes, these persons often lack a qualified surrogate to assist healthcare personnel with medical decisions when they are too sick or injured to communicate treatment preferences [D’Haene, et al, 2010]. In fact, some are ‘never capacitated’ to fully participate to the degree required to ensure informed consent. The lack of information to inform medical treatment decision-making for this population, particularly at the end of life, is a source of moral distress among healthcare professionals, especially nurses [Li & Ng, 2008].

Facilitated by nurses, representatives from service providers, acute care facilities, outpatient clinics, and directors and staff from group residential homes met to discuss responsibilities, obligations, and goals. Current processes were reviewed for obtaining family /next-of-kin information and for identifying legitimate decision making authority in accordance with legal statutes and codes. Revisions were made to existing documents and procedures with the goal of ensuring - to the best of our collective abilities - that this special population be afforded the opportunity to have their preferences for medical treatment respected, whether communicated directly by the individual or on their behalf by a legitimate surrogate or proxy.

Using research methodologies meeting institutional policies and compliance standards defined by the Health Information Portability and Accountability Act [HIPAA] a records review was conducted to evaluate intervention effectiveness. Results demonstrated the value of interdisciplinary collaboration for more effective and safer care, and for meeting the justice considerations inherent in the definition of quality to treat similarly situated patients the same [Donebedian, 1980].

Keywords:
Intellectual and Developmental Disabilities; Nursing Leadership; Quality Improvement
Repository Posting Date:
19-Dec-2013
Date of Publication:
19-Dec-2013
Conference Date:
2013
Conference Name:
42nd Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Indianapolis, Indiana, USA
Description:
42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriott
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleNurse-Led Initiatives for Quality Improvement: Facilitating Healthcare Decision Making in the Intellectual / Developmental Disability Communityen_GB
dc.contributor.authorArtnak, Kathrynen_GB
dc.contributor.authorBaugh, Mimi H.en_GB
dc.contributor.departmentDelta Alphaen_GB
dc.author.detailsKathryn Artnak, PhD, RN, MA, CNS, kathryn.artnak@angelo.edu; Mimi H. Baugh, MSN, RNen_GB
dc.identifier.urihttp://hdl.handle.net/10755/308028-
dc.description.abstract<p>Poster presented on: Monday, November 18, 2013, Tuesday, November 19, 2013</p>This quality improvement project aimed to develop an interdisciplinary process for facilitating communication preferences for medical treatment and healthcare decision-making in a population of individuals with intellectual and developmental disabilities living outside of an institutional setting. Although capable of living quite independently in group homes, these persons often lack a qualified surrogate to assist healthcare personnel with medical decisions when they are too sick or injured to communicate treatment preferences [D’Haene, et al, 2010]. In fact, some are ‘never capacitated’ to fully participate to the degree required to ensure informed consent. The lack of information to inform medical treatment decision-making for this population, particularly at the end of life, is a source of moral distress among healthcare professionals, especially nurses [Li & Ng, 2008]. <p>Facilitated by nurses, representatives from service providers, acute care facilities, outpatient clinics, and directors and staff from group residential homes met to discuss responsibilities, obligations, and goals. Current processes were reviewed for obtaining family /next-of-kin information and for identifying legitimate decision making authority in accordance with legal statutes and codes. Revisions were made to existing documents and procedures with the goal of ensuring - to the best of our collective abilities - that this special population be afforded the opportunity to have their preferences for medical treatment respected, whether communicated directly by the individual or on their behalf by a legitimate surrogate or proxy. <p>Using research methodologies meeting institutional policies and compliance standards defined by the Health Information Portability and Accountability Act [HIPAA] a records review was conducted to evaluate intervention effectiveness. Results demonstrated the value of interdisciplinary collaboration for more effective and safer care, and for meeting the justice considerations inherent in the definition of quality to treat similarly situated patients the same [Donebedian, 1980].en_GB
dc.subjectIntellectual and Developmental Disabilitiesen_GB
dc.subjectNursing Leadershipen_GB
dc.subjectQuality Improvementen_GB
dc.date.available2013-12-19T17:25:35Z-
dc.date.issued2013-12-19-
dc.date.accessioned2013-12-19T17:25:35Z-
dc.conference.date2013en_GB
dc.conference.name42nd Biennial Conventionen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationIndianapolis, Indiana, USAen_GB
dc.description42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriotten_GB
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.en_GB
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