Needs of patients suffering from Dementia with Lewy Bodies (DLB) and their families

2.50
Hdl Handle:
http://hdl.handle.net/10755/308247
Category:
Abstract
Type:
Presentation
Title:
Needs of patients suffering from Dementia with Lewy Bodies (DLB) and their families
Author(s):
Yumoto, Akiyo; Suwa, Sayuri
Lead Author STTI Affiliation:
N/A
Author Details:
Akiyo Yumoto, RN,PHN,MSN, yumoto@chiba-u.jp; Sayuri Suwa, RN,PHN,PhD
Abstract:

Poster presented on: Sunday, November 17, 2013, Saturday, November 16, 2013

DLB is a progressive form of dementia that was first presented at an international workshop in 1995. Its core symptoms are changes in cognitive function, visual hallucinations with specific content, and idiopathic symptoms of Parkinson’s. Other symptoms seen include REM sleep-behavior disorder and hypersensitivity to antipsychotic drugs. Therefore it is anticipated that DLB patients and their families have unique needs in their daily lives.

  The purpose of this study is to clarify the needs of patients suffering DLB who are living at home while receiving outpatient care, and the needs of their family in order for them to continue living at home, and to obtain implications for care.

  Semi-structured interviews were conducted with 7 groups of DLB patients and their families. The patients were living at home and able to verbally express themselves when their condition was good. A qualitative, inductive analysis was carried out.

  The results revealed 6 final categories of patient needs, including “desire to know the cause of worsening physical condition,” “confusion at the onset of DLB symptoms,” “desire for improvement of symptoms using appropriate medications,” as well as 7 final categories of family needs, including “desire for information regarding improving symptoms and the cause of worsening physical condition,” “lack of understanding of how to handle DLB symptoms,” “desire for improvement of symptoms using appropriate medications,” and “desire to be freed from loneliness and continue care in a mentally and physically stable state.”

  The above findings suggest the need for providing sufficient information and psychological support to help patients and their families accept and cope with DLB, as well as to alleviate the care burden of families. Moreover giving advice on appropriate medications and assisting for information sharing with physicians are also considered to be important for patients living at home and their families.

Keywords:
needs; patients living at home; Dementia with Lewy Bodies(DLB)
Repository Posting Date:
19-Dec-2013
Date of Publication:
19-Dec-2013
Conference Date:
2013
Conference Name:
42nd Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Indianapolis, Indiana, USA
Description:
42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriott
Note:
This is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen_GB
dc.type.categoryAbstracten_GB
dc.typePresentationen_GB
dc.titleNeeds of patients suffering from Dementia with Lewy Bodies (DLB) and their familiesen_GB
dc.contributor.authorYumoto, Akiyoen_GB
dc.contributor.authorSuwa, Sayurien_GB
dc.contributor.departmentN/Aen_GB
dc.author.detailsAkiyo Yumoto, RN,PHN,MSN, yumoto@chiba-u.jp; Sayuri Suwa, RN,PHN,PhDen_GB
dc.identifier.urihttp://hdl.handle.net/10755/308247-
dc.description.abstract<p>Poster presented on: Sunday, November 17, 2013, Saturday, November 16, 2013</p>DLB is a progressive form of dementia that was first presented at an international workshop in 1995. Its core symptoms are changes in cognitive function, visual hallucinations with specific content, and idiopathic symptoms of Parkinson’s. Other symptoms seen include REM sleep-behavior disorder and hypersensitivity to antipsychotic drugs. Therefore it is anticipated that DLB patients and their families have unique needs in their daily lives.<sup></sup><p align="left">  The purpose of this study is to clarify the needs of patients suffering DLB who are living at home while receiving outpatient care, and the needs of their family in order for them to continue living at home, and to obtain implications for care. <p>  Semi-structured interviews were conducted with 7 groups of DLB patients and their families. The patients were living at home and able to verbally express themselves when their condition was good. A qualitative, inductive analysis was carried out. <p>  The results revealed 6 final categories of patient needs, including “desire to know the cause of worsening physical condition,” “confusion at the onset of DLB symptoms,” “desire for improvement of symptoms using appropriate medications,” as well as 7 final categories of family needs, including “desire for information regarding improving symptoms and the cause of worsening physical condition,” “lack of understanding of how to handle DLB symptoms,” “desire for improvement of symptoms using appropriate medications,” and “desire to be freed from loneliness and continue care in a mentally and physically stable state.” <p>  The above findings suggest the need for providing sufficient information and psychological support to help patients and their families accept and cope with DLB, as well as to alleviate the care burden of families. Moreover giving advice on appropriate medications and assisting for information sharing with physicians are also considered to be important for patients living at home and their families.en_GB
dc.subjectneedsen_GB
dc.subjectpatients living at homeen_GB
dc.subjectDementia with Lewy Bodies(DLB)en_GB
dc.date.available2013-12-19T17:28:48Z-
dc.date.issued2013-12-19-
dc.date.accessioned2013-12-19T17:28:48Z-
dc.conference.date2013en_GB
dc.conference.name42nd Biennial Conventionen_GB
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen_GB
dc.conference.locationIndianapolis, Indiana, USAen_GB
dc.description42nd Biennial Convention 2013 Theme: Give Back to Move Forward. Held at the JW Marriotten_GB
dc.description.noteThis is an abstract-only submission. If the author has submitted a full-text item based on this abstract, you may find it by browsing the Virginia Henderson Global Nursing e-Repository by author. If author contact information is available in this abstract, please feel free to contact him or her with your queries regarding this submission.en_GB
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