The Lived Experience of Caregivers Providing Home Care for Terminal Cancer Patients: A Phenomenological Study

2.50
Hdl Handle:
http://hdl.handle.net/10755/601889
Category:
Full-text
Format:
Text-based Document
Type:
Presentation
Title:
The Lived Experience of Caregivers Providing Home Care for Terminal Cancer Patients: A Phenomenological Study
Other Titles:
Impacting the Caregivers: End-of-Life Nursing Care [Session]
Author(s):
Mohamed, Fatima Saleh
Lead Author STTI Affiliation:
Non-member
Author Details:
Fatima Saleh Mohamed, RN, alahwathy@gmail.com
Abstract:
Session presented on Sunday, July 26, 2015: Purpose: The aim of the study was to explore the lived experience of caregivers providing home care for terminal cancer patients with the objectives of documenting their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.'' Methods: 'The study adopted qualitative, Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was collected through one to one, in depth semi-structured interviews and analyzed using Interpretative Phenomenological Analysis.' Results: Three main themes emerged; Burdens of Care; Comforts; and Coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens combined with lack of professional support. The collective experience was infused with intense emotions given the lack of adequate support that often forced caregivers to manage caregiving on their own which eventually led to negative effects in caregivers' well-being. Nevertheless, caregivers tried to maintain comforts for patients at home. They changed the home arrangement, arranged resources to ease caring and provided spiritual care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members. Conclusion: Caregivers were not prepared for home care and a recommendation from the study findings is that training should be given on nursing care before patients discharge. In addition, home nursing care and hospice services need to be established to improve the supportive services for caregivers. The findings of the study will hopefully lay the foundation for the development of palliative care services which will ease the burden of care on caregivers in Bahrain.
Keywords:
Family caregivers; End of Life Care EOL; Palliative care
Repository Posting Date:
17-Mar-2016
Date of Publication:
17-Mar-2016 ; 17-Mar-2016
Other Identifiers:
INRC15K15
Conference Date:
2015
Conference Name:
26th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
San Juan, Puerto Rico
Description:
Research Congress 2015 Theme: Question Locally, Engage Regionally, Apply Globally. Held at the Puerto Rico Convention Center.

Full metadata record

DC FieldValue Language
dc.language.isoenen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePresentationen
dc.titleThe Lived Experience of Caregivers Providing Home Care for Terminal Cancer Patients: A Phenomenological Studyen
dc.title.alternativeImpacting the Caregivers: End-of-Life Nursing Care [Session]en
dc.contributor.authorMohamed, Fatima Salehen
dc.contributor.departmentNon-memberen
dc.author.detailsFatima Saleh Mohamed, RN, alahwathy@gmail.comen
dc.identifier.urihttp://hdl.handle.net/10755/601889-
dc.description.abstractSession presented on Sunday, July 26, 2015: Purpose: The aim of the study was to explore the lived experience of caregivers providing home care for terminal cancer patients with the objectives of documenting their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.'' Methods: 'The study adopted qualitative, Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was collected through one to one, in depth semi-structured interviews and analyzed using Interpretative Phenomenological Analysis.' Results: Three main themes emerged; Burdens of Care; Comforts; and Coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens combined with lack of professional support. The collective experience was infused with intense emotions given the lack of adequate support that often forced caregivers to manage caregiving on their own which eventually led to negative effects in caregivers' well-being. Nevertheless, caregivers tried to maintain comforts for patients at home. They changed the home arrangement, arranged resources to ease caring and provided spiritual care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members. Conclusion: Caregivers were not prepared for home care and a recommendation from the study findings is that training should be given on nursing care before patients discharge. In addition, home nursing care and hospice services need to be established to improve the supportive services for caregivers. The findings of the study will hopefully lay the foundation for the development of palliative care services which will ease the burden of care on caregivers in Bahrain.en
dc.subjectFamily caregiversen
dc.subjectEnd of Life Care EOLen
dc.subjectPalliative careen
dc.date.available2016-03-17T12:58:14Zen
dc.date.issued2016-03-17-
dc.date.issued2016-03-17en
dc.date.accessioned2016-03-17T12:58:14Zen
dc.conference.date2015en
dc.conference.name26th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationSan Juan, Puerto Ricoen
dc.descriptionResearch Congress 2015 Theme: Question Locally, Engage Regionally, Apply Globally. Held at the Puerto Rico Convention Center.en
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