Dignity and the Meaning of Life: The Life Experience of Spinal Muscular Atrophy Patients

2.50
Hdl Handle:
http://hdl.handle.net/10755/602058
Category:
Full-text
Format:
Text-based Document
Type:
Poster
Title:
Dignity and the Meaning of Life: The Life Experience of Spinal Muscular Atrophy Patients
Author(s):
Ho, Hsin-Mei; Chou, Fan-Hao
Lead Author STTI Affiliation:
Non-member
Author Details:
Hsin-Mei Ho, MSN, RN, 890210@ms.kmuh.org.tw; Fan-Hao Chou, PhD, RN
Abstract:
Session presented on Saturday, July 25, 2015: Purpose: The purpose of this study was to explore the experience of patients who suffer from Spinal muscular atrophy (SMA). Methods: Qualitative approach was adopted by conducting in-depth interview with 9 cases that were recruited from one medical center in southern Taiwan, to collect information from their experiences. The transcripts of the interview data were analyzed by using Colaizzi's (1978) phenomenological methodology. Content analysis was used to conclude and identify these four main themes out of the 9 interviews.'' Results: Through the interview,there are four common themses which respectively are loss of control, breakthrough the limitation, pursue the dignity and regain the hope.' Conclusion: The results of this study can develop an effective life adjustment from the psychological process of the patient suffer from SMA. To face their life in positive way, even when they were exhausting. Moreover, the findings can be clinically applied as evidence based, and medical staff can assist the patients and their family by understanding the disease progression. Finally, we can help the client to integrate themselves and regain their hope.
Keywords:
Life experience; Spinal Muscular Atrophy; Qualitative Research
CINAHL Headings:
Life�Experiences; Muscular Atrophy, Spinal--Psychosocial Factors
Repository Posting Date:
17-Mar-2016
Date of Publication:
17-Mar-2016 ; 17-Mar-2016
Other Identifiers:
INRC15PST244
Conference Date:
2015
Conference Name:
26th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
San Juan, Puerto Rico
Description:
Research Congress 2015 Theme: Question Locally, Engage Regionally, Apply Globally. Held at the Puerto Rico Convention Center.

Full metadata record

DC FieldValue Language
dc.language.isoenen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePosteren
dc.titleDignity and the Meaning of Life: The Life Experience of Spinal Muscular Atrophy Patientsen
dc.contributor.authorHo, Hsin-Meien
dc.contributor.authorChou, Fan-Haoen
dc.contributor.departmentNon-memberen
dc.author.detailsHsin-Mei Ho, MSN, RN, 890210@ms.kmuh.org.tw; Fan-Hao Chou, PhD, RNen
dc.identifier.urihttp://hdl.handle.net/10755/602058-
dc.description.abstractSession presented on Saturday, July 25, 2015: Purpose: The purpose of this study was to explore the experience of patients who suffer from Spinal muscular atrophy (SMA). Methods: Qualitative approach was adopted by conducting in-depth interview with 9 cases that were recruited from one medical center in southern Taiwan, to collect information from their experiences. The transcripts of the interview data were analyzed by using Colaizzi's (1978) phenomenological methodology. Content analysis was used to conclude and identify these four main themes out of the 9 interviews.'' Results: Through the interview,there are four common themses which respectively are loss of control, breakthrough the limitation, pursue the dignity and regain the hope.' Conclusion: The results of this study can develop an effective life adjustment from the psychological process of the patient suffer from SMA. To face their life in positive way, even when they were exhausting. Moreover, the findings can be clinically applied as evidence based, and medical staff can assist the patients and their family by understanding the disease progression. Finally, we can help the client to integrate themselves and regain their hope.en
dc.subjectLife experienceen
dc.subjectSpinal Muscular Atrophyen
dc.subjectQualitative Researchen
dc.subject.cinahlLife�Experiencesen
dc.subject.cinahlMuscular Atrophy, Spinal--Psychosocial Factorsen
dc.date.available2016-03-17T13:02:54Zen
dc.date.issued2016-03-17-
dc.date.issued2016-03-17en
dc.date.accessioned2016-03-17T13:02:54Zen
dc.conference.date2015en
dc.conference.name26th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationSan Juan, Puerto Ricoen
dc.descriptionResearch Congress 2015 Theme: Question Locally, Engage Regionally, Apply Globally. Held at the Puerto Rico Convention Center.en
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.