How Parents Discuss Dying with Their Child with a Life-Limiting Illness Who Require Long-Term Ventilation

2.50
Hdl Handle:
http://hdl.handle.net/10755/602774
Category:
Full-text
Format:
Text-based Document
Type:
Poster
Title:
How Parents Discuss Dying with Their Child with a Life-Limiting Illness Who Require Long-Term Ventilation
Author(s):
Crisp, Cheryl
Lead Author STTI Affiliation:
Alpha
Author Details:
Cheryl Crisp, RN, PCNS-BC, CHPPN, CRRN, Ccrisp@iupuc.edu
Abstract:
Session presented on Saturday, November 7, 2015 and Sunday, November 8, 2015: The purpose of this presentation is: 1) describe the ethical issues surrounding palliative care in children with life-limiting illness requiring long-term ventilation and their families, and 2) to explain the importance of discussing dying with children with a life-limiting illness who require long-term ventilation and their families. Major advancements in the field of medical technology have significantly improved the lifespan of children in this very unique population. As those advancements continue and children survive, questions begin to arise about what happens when the child who requires long-term ventilation is nearing the end-of-life. What types of discussions need to happen? Who makes the medical decisions for the child? Is the child included in crucial conversations about end-of-life, or does anyone even discuss dying with them.Families often do not know what to do. Should they tell their child? Should the child be allowed to participate in these discussions? Do children want to leave a legacy for when they are no longer present? This presentation invites the learner to think about these questions. It also provides information on the importance of discussing dying with children with life-limiting illness who require long-term ventilation and their families. Some suggestions about how to elicit these conversations is also provided. Importance to the science of nursing: Technology continues to improve and with it the possibilities of extending life are rapidly expanding. As more people live sustained by technology, more ethical issues about end of life care and decision-making will also increase. It is important for nurses to be proactive in their thinking about these types of issues. It is also important for nurses to provide support for the children and families facing these issues. Families often turn to their nurses when they need answers, and as nurses we must be prepared to assist these children and families to have some of these difficult discussions as the child nears the end-of-life to maintain the best life possible for the child and family even unto death.
Keywords:
pediatrics; end of life care
Repository Posting Date:
21-Mar-2016
Date of Publication:
21-Mar-2016
Other Identifiers:
CONV15SC1.8
Conference Date:
2015
Conference Name:
43rd Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Las Vegas, Nevada, USA
Description:
43rd Biennial Convention 2015 Theme: Serve Locally, Transform Regionally, Lead Globally.`

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePosteren
dc.titleHow Parents Discuss Dying with Their Child with a Life-Limiting Illness Who Require Long-Term Ventilationen
dc.contributor.authorCrisp, Cherylen
dc.contributor.departmentAlphaen
dc.author.detailsCheryl Crisp, RN, PCNS-BC, CHPPN, CRRN, Ccrisp@iupuc.eduen
dc.identifier.urihttp://hdl.handle.net/10755/602774en
dc.description.abstractSession presented on Saturday, November 7, 2015 and Sunday, November 8, 2015: The purpose of this presentation is: 1) describe the ethical issues surrounding palliative care in children with life-limiting illness requiring long-term ventilation and their families, and 2) to explain the importance of discussing dying with children with a life-limiting illness who require long-term ventilation and their families. Major advancements in the field of medical technology have significantly improved the lifespan of children in this very unique population. As those advancements continue and children survive, questions begin to arise about what happens when the child who requires long-term ventilation is nearing the end-of-life. What types of discussions need to happen? Who makes the medical decisions for the child? Is the child included in crucial conversations about end-of-life, or does anyone even discuss dying with them.Families often do not know what to do. Should they tell their child? Should the child be allowed to participate in these discussions? Do children want to leave a legacy for when they are no longer present? This presentation invites the learner to think about these questions. It also provides information on the importance of discussing dying with children with life-limiting illness who require long-term ventilation and their families. Some suggestions about how to elicit these conversations is also provided. Importance to the science of nursing: Technology continues to improve and with it the possibilities of extending life are rapidly expanding. As more people live sustained by technology, more ethical issues about end of life care and decision-making will also increase. It is important for nurses to be proactive in their thinking about these types of issues. It is also important for nurses to provide support for the children and families facing these issues. Families often turn to their nurses when they need answers, and as nurses we must be prepared to assist these children and families to have some of these difficult discussions as the child nears the end-of-life to maintain the best life possible for the child and family even unto death.en
dc.subjectpediatricsen
dc.subjectend of life careen
dc.date.available2016-03-21T16:36:27Zen
dc.date.issued2016-03-21en
dc.date.accessioned2016-03-21T16:36:27Zen
dc.conference.date2015en
dc.conference.name43rd Biennial Conventionen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationLas Vegas, Nevada, USAen
dc.description43rd Biennial Convention 2015 Theme: Serve Locally, Transform Regionally, Lead Globally.`en
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