Engaging the Community to Deliver Educational Programming for Young Breast Cancer Survivors

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Hdl Handle:
http://hdl.handle.net/10755/603105
Category:
Full-text
Format:
Text-based Document
Type:
Presentation
Title:
Engaging the Community to Deliver Educational Programming for Young Breast Cancer Survivors
Other Titles:
Women Affected with Cancer: Research and Practice [Session]
Author(s):
Nolan, Timiya S.; Meneses, Karen; Camata, Silvia Gisiger; Meneses, Karen; Camata, Silvia Gisiger
Lead Author STTI Affiliation:
Nu
Author Details:
Timiya S. Nolan, CRNP, ANP-BC, sharel44@uab.edu; Karen Meneses, RN; Silvia Gisiger Camata, RN
Abstract:
Session presented on Sunday, November 8, 2015: Background: In the United States, about 5% of breast cancer survivors are premenopausal (young) at diagnosis. Young breast cancer survivors (YBCS) have greater health disparities than older survivors: higher incidence of advanced disease, mortality, and poorer quality of life. YBCS report age-specific survivorship needs (e.g. managing children and family relationships, sexuality, cognitive demands, and work) in addition to general survivorship needs. The Young Breast Cancer Survivorship Network (led by trained oncology nurses) is adapted from an evidence-based survivorship tool that addresses age-specific needs by educating, supporting, and networking among YBCS and community stakeholders. Using the community-based participatory research (CBPR) model in the context of young breast cancer survivorship in central Alabama, the Network engaged equitable partners to design and disseminate age-specific education within four outreach components: (1) survivorship service referral; (2) monthly education and support seminars; (3) annual workshop; and (4) electronic education via website and Facebook. Methods: Partners (YBCS and other community stakeholders) completed surveys after each seminar and workshop. Data were analyzed for age-specific needs.  A YBCS advisory board met to validate identified themes that were subsequently adapted for dissemination in the Network’s components. Component data were tracked. Results:In 2 years, the Network referred 83 YBCS for services and provided 16 seminars to 149 attendees. On a 1-10 scale, attendees highly rated helpfulness (9.7) and meeting survivorship needs (9.8). Participants stated that their objectives were met (99%) and information was useful (100%). The Network’s 2 annual workshops educated 173 YBCS, families, and healthcare providers with high helpfulness and satisfaction ratings. The Network website, housing 46 electronic tip-sheets and community partners links, and Facebook page respectively had 290 daily visits and 165 likes. Discussion:  Age-specific survivorship education was disseminated through partner engagement. Further study of YBCS using CBPR can improve education delivery and decrease health disparities among YBCS. Future directions of the Network include expansion of dissemination through internet and social media presence.
Keywords:
breast cancer; survivorship; community-based education
Repository Posting Date:
21-Mar-2016
Date of Publication:
21-Mar-2016
Other Identifiers:
CONV15B25
Conference Date:
2015
Conference Name:
43rd Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Las Vegas, Nevada, USA
Description:
43rd Biennial Convention 2015 Theme: Serve Locally, Transform Regionally, Lead Globally.`

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePresentationen
dc.titleEngaging the Community to Deliver Educational Programming for Young Breast Cancer Survivorsen
dc.title.alternativeWomen Affected with Cancer: Research and Practice [Session]en
dc.contributor.authorNolan, Timiya S.en
dc.contributor.authorMeneses, Karenen
dc.contributor.authorCamata, Silvia Gisigeren
dc.contributor.authorMeneses, Karenen
dc.contributor.authorCamata, Silvia Gisigeren
dc.contributor.departmentNuen
dc.author.detailsTimiya S. Nolan, CRNP, ANP-BC, sharel44@uab.edu; Karen Meneses, RN; Silvia Gisiger Camata, RNen
dc.identifier.urihttp://hdl.handle.net/10755/603105en
dc.description.abstractSession presented on Sunday, November 8, 2015: Background: In the United States, about 5% of breast cancer survivors are premenopausal (young) at diagnosis. Young breast cancer survivors (YBCS) have greater health disparities than older survivors: higher incidence of advanced disease, mortality, and poorer quality of life. YBCS report age-specific survivorship needs (e.g. managing children and family relationships, sexuality, cognitive demands, and work) in addition to general survivorship needs. The Young Breast Cancer Survivorship Network (led by trained oncology nurses) is adapted from an evidence-based survivorship tool that addresses age-specific needs by educating, supporting, and networking among YBCS and community stakeholders. Using the community-based participatory research (CBPR) model in the context of young breast cancer survivorship in central Alabama, the Network engaged equitable partners to design and disseminate age-specific education within four outreach components: (1) survivorship service referral; (2) monthly education and support seminars; (3) annual workshop; and (4) electronic education via website and Facebook. Methods: Partners (YBCS and other community stakeholders) completed surveys after each seminar and workshop. Data were analyzed for age-specific needs.  A YBCS advisory board met to validate identified themes that were subsequently adapted for dissemination in the Network’s components. Component data were tracked. Results:In 2 years, the Network referred 83 YBCS for services and provided 16 seminars to 149 attendees. On a 1-10 scale, attendees highly rated helpfulness (9.7) and meeting survivorship needs (9.8). Participants stated that their objectives were met (99%) and information was useful (100%). The Network’s 2 annual workshops educated 173 YBCS, families, and healthcare providers with high helpfulness and satisfaction ratings. The Network website, housing 46 electronic tip-sheets and community partners links, and Facebook page respectively had 290 daily visits and 165 likes. Discussion:  Age-specific survivorship education was disseminated through partner engagement. Further study of YBCS using CBPR can improve education delivery and decrease health disparities among YBCS. Future directions of the Network include expansion of dissemination through internet and social media presence.en
dc.subjectbreast canceren
dc.subjectsurvivorshipen
dc.subjectcommunity-based educationen
dc.date.available2016-03-21T16:43:25Zen
dc.date.issued2016-03-21en
dc.date.accessioned2016-03-21T16:43:25Zen
dc.conference.date2015en
dc.conference.name43rd Biennial Conventionen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationLas Vegas, Nevada, USAen
dc.description43rd Biennial Convention 2015 Theme: Serve Locally, Transform Regionally, Lead Globally.`en
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