The Hidden Morbidity of Cancer: An Exploratory Study of Burden in Caregivers of Cancer Patients with Brain Metastases

2.50
Hdl Handle:
http://hdl.handle.net/10755/621198
Category:
Full-text
Format:
Text-based Document
Type:
Dissertation
Level of Evidence:
Cross-Sectional Study
Research Approach:
Pilot/Exploratory Study
Title:
The Hidden Morbidity of Cancer: An Exploratory Study of Burden in Caregivers of Cancer Patients with Brain Metastases
Author(s):
Saria, Marlon Garzo
Additional Author Information:
Marlon Garzo Saria, PhD, RN
Advisors:
Maliski, Sally Louise; Nyamathi, Adeline M.; Phillips, Linda R.; Stanton, Annette Louise
Degree:
PhD
Degree Year:
2016
Grantor:
University of California, Los Angeles
Abstract:

Caregiving is a highly individualized experience. While numerous papers have been published on caregiver burden in the context of a variety of diagnoses and conditions, this paper presents the unique features of caregiving in cancer patients with brain metastases. Improved long-term survival of patients, concerns about disease recurrence or progression, the mileposts of the cancer experience (initial diagnosis, treatment, survivorship, recurrence, progression, and end of life), and the increasing complexity of cancer treatments add to the demands placed upon the caregiver of patients with brain metastases.

The aim of this dissertation was to explore the antecedents and outcomes of caregiver burden within the context of brain metastases using the Comprehensive Health Seeking and Coping Paradigm as a framework to describe the highly interactive iii relationship among the variables. The first paper derived from this dissertation is a literature review that describes the challenges of caring for a patient with brain metastases and highlights the implications for healthcare professionals. The second paper presents the analysis of the relationships between caregiver burden and the affective disorders anxiety and depression. It describes the higher risk of screening positive for anxiety and depression for caregivers who report increased schedule burden. The third paper examines the impact of the patient’s cognitive impairment on caregiver resilience and caregiver coping strategies. This paper reports the significant correlation found between the coping strategy acceptance and the two dimensions of the patient’s cognitive/behavioral status, i.e., patient’s memory problems and disruptive
behavior. 

Caregivers of patients with brain metastases are the hidden morbidity of cancer. While the healthcare industry has consistently recognized the contributions of caregivers, we have fallen behind in identifying and managing their needs. Healthcare providers need to continue to be perceptive of caregiver burden and be ready to administer the appropriate interventions that must be as unique and individualized as their experiences.

Keywords:
caregiver burden; cancer patient caregivers; caregiver challenges; mood disorders caregivers
CINAHL Headings:
Caregiver Burden; Caregivers; Caregivers--Psychosocial Factors; Cancer Patients; Neoplasm Metastasis; Brain Neoplasms
Sponsors:
The DAISY Foundation
Description:
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 10124939; ProQuest document ID: 1796359045. The author still retains copyright.
Note:
This item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
Repository Posting Date:
2017-01-27T20:10:03Z
Date of Publication:
2017-01-27

Full metadata record

DC FieldValue Language
dc.contributor.advisorMaliski, Sally Louiseen
dc.contributor.advisorNyamathi, Adeline M.en
dc.contributor.advisorPhillips, Linda R.en
dc.contributor.advisorStanton, Annette Louiseen
dc.contributor.authorSaria, Marlon Garzoen
dc.date.accessioned2017-01-27T20:10:03Z-
dc.date.available2017-01-27T20:10:03Z-
dc.date.issued2017-01-27-
dc.identifier.isbn9781339830346-
dc.identifier.urihttp://hdl.handle.net/10755/621198-
dc.descriptionThis dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 10124939; ProQuest document ID: 1796359045. The author still retains copyright.en
dc.description.abstract<p>Caregiving is a highly individualized experience. While numerous papers have been published on caregiver burden in the context of a variety of diagnoses and conditions, this paper presents the unique features of caregiving in cancer patients with brain metastases. Improved long-term survival of patients, concerns about disease recurrence or progression, the mileposts of the cancer experience (initial diagnosis, treatment, survivorship, recurrence, progression, and end of life), and the increasing complexity of cancer treatments add to the demands placed upon the caregiver of patients with brain metastases.</p> <p>The aim of this dissertation was to explore the antecedents and outcomes of caregiver burden within the context of brain metastases using the Comprehensive Health Seeking and Coping Paradigm as a framework to describe the highly interactive iii relationship among the variables. The first paper derived from this dissertation is a literature review that describes the challenges of caring for a patient with brain metastases and highlights the implications for healthcare professionals. The second paper presents the analysis of the relationships between caregiver burden and the affective disorders anxiety and depression. It describes the higher risk of screening positive for anxiety and depression for caregivers who report increased schedule burden. The third paper examines the impact of the patient’s cognitive impairment on caregiver resilience and caregiver coping strategies. This paper reports the significant correlation found between the coping strategy acceptance and the two dimensions of the patient’s cognitive/behavioral status, i.e., patient’s memory problems and disruptive<br />behavior. </p> <p>Caregivers of patients with brain metastases are the hidden morbidity of cancer. While the healthcare industry has consistently recognized the contributions of caregivers, we have fallen behind in identifying and managing their needs. Healthcare providers need to continue to be perceptive of caregiver burden and be ready to administer the appropriate interventions that must be as unique and individualized as their experiences.</p>en
dc.description.sponsorshipThe DAISY Foundationen
dc.formatText-based Documenten
dc.language.isoen_USen
dc.subjectcaregiver burdenen
dc.subjectcancer patient caregiversen
dc.subjectcaregiver challengesen
dc.subjectmood disorders caregiversen
dc.titleThe Hidden Morbidity of Cancer: An Exploratory Study of Burden in Caregivers of Cancer Patients with Brain Metastasesen_US
dc.typeDissertationen
thesis.degree.grantorUniversity of California, Los Angelesen
thesis.degree.levelPhDen
dc.description.noteThis item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.en
dc.primary-author.detailsMarlon Garzo Saria, PhD, RNen
thesis.degree.year2016en
dc.type.categoryFull-texten
dc.evidence.levelCross-Sectional Studyen
dc.research.approachPilot/Exploratory Studyen
dc.subject.cinahlCaregiver Burdenen
dc.subject.cinahlCaregiversen
dc.subject.cinahlCaregivers--Psychosocial Factorsen
dc.subject.cinahlCancer Patientsen
dc.subject.cinahlNeoplasm Metastasisen
dc.subject.cinahlBrain Neoplasmsen
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