2.50
Hdl Handle:
http://hdl.handle.net/10755/621610
Category:
Full-text
Format:
Text-based Document
Type:
Poster
Level of Evidence:
N/A
Research Approach:
N/A
Title:
"Hope" for People With Motor Neurone Disease in Japan
Author(s):
Nagase, Masako
Lead Author STTI Affiliation:
Non-member
Author Details:
Masako Nagase, PhD, RN, PHN, Professional Experience: 2016-present -- Senior Associate professor, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2012-2016 -- Associate professor, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2008-2012 -- Lecturer, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2001-2006 -- Assisstant Professor, School of Health Sciences, Tokai University, Kanagawa. 1994-2000 -- Nurse as discharge support and home visitting nursing in Hiratsuka Kyosai Hospita. Author Summary: My specialties are nursing in chronic illnesses/conditions and the sociology of health and illness. I have been interested in the health care system, advance care planning, and the high quality of care for patients of intractable neurological diseases.
Abstract:

Purpose:  In this study, we present materials to examine the “hope” harbored by patients with intractable neurological diseases. This study is part of research on the nature of the care system focused on end-of-life care for patients with intractable neurological diseases in Japan. 

Methods:  We conducted an interdisciplinary study using academic papers from various fields including nursing, psychology, and philosophy. 

Results:  Since the 1950s, “hope” has mainly been defined in the context of social science and there have been various attempts at measuring it. However, exploring a unified view of the concept of “hope” is a difficult task. Nekolaichuk writes in her discussion on the nature of “hope” that hope is categorized into seven themes on which it is based: universality, dimensionality, certainty, temporality, predictability, value, and reality.

In the discussion of universality, Nekolaichuk writes how differences can be seen in philosophical standpoints, such as how we perceive “hope” as an ultimate, universal concept, and how we perceive “hope” as a socially constructed concept. The positivism of the former standpoint explores the objective reality and develops a detailed description and unified framework for the concept, whereas the social constructionism of the latter standpoint attempts to understand the various significances formed by multiple people.

The discussion of dimensionality explores whether “hope” is perceived as a one-dimensional or multi-dimensional concept. If the conceptual framework is reliable (certainty), measurement, i.e. observation, should be possible. Snyder and Herth each developed hope indices, but from completely different standpoints. Snyder expands on the one-dimensional theory of Stotland who emphasized goal achievement, and defines “hope” as being composed of cognitive components that recognize pathways and agency. Herth, on the other hand, conceptualizes “hope” in a multi-dimensional framework composed of temporality and future, positive readiness and expectancy, and interconnectedness. However, the experience of “hope” is composed of both visible and invisible elements, which means that while both measuring tools are capable of measuring reliable elements, they do not succeed in understanding the internal, uncertain experience of “hope.”

Studies of “hope” have been conducted in various subjects including elderly people, terminal patients, suicidal patients, caregivers and patients with chronic diseases. These studies have revealed that relationships with significant others and a strong connection with transcendental beings such as God and Buddha influence “hope.” Existential problems also have a deep connection with “hope.” Affirming one’s value, feeling happy about one’s own existence, sensing the significance and development of life, and other ways of thinking all strengthen “hope.” Meanwhile, events that reduce “hope” include threatening perceptions, distress, conflict, sense of loss, and sense of despair.

From the standpoint of the Cognitive Metaphor Theory of linguistics, “hope” is a concept understood through expressions rich in temporal and spatial changes and signifies “a current feeling of happiness towards the good future.” Meanwhile, the similar concept of “desire” signifies “the possibility that a good future will occur” and encapsulates prospects and expectations for the future. Both words are based on the assumption of “a good future.” However, in terms of prognoses for intractable neurological diseases, it is difficult for patients to have “a good future” or “bright prospects.” The “hope” held by patients with intractable neurological diseases is therefore thought to include context-dependent elements.

Conclusion:  Some argue that “hope” is defined in two ways: one that is synonymous with expectation and another that is separate from expectation. “Hope” does not merely signify optimism for the future, but is also based on concepts such as vitality and unconditional love. “Hope” is therefore not limited to clear achievement of goals for the future; it is based on the assumption of trust in an undetermined future.

Meanwhile, in exploring the concept of “hope” in end-of-life care based, the concept of “hope” in cancer and nursing literature is internal and therefore invisible in situations based on the premise of death, and is perceived as having a so-called metaphysical nature. This involves seeking healing and survival, or seeking something separate from healing, while expecting healing to be difficult and anticipating death.

So, what is “hope” to patients with intractable neurological diseases? What are the consequences of supporting patients in finding and maintaining “hope”? To answer these questions, we need to clarify the “hope” held by patients with different conditions including motor neuron disease, multiple sclerosis and Parkinson’s disease.

Keywords:
MND; Care System; Hope
Repository Posting Date:
29-Jun-2017
Date of Publication:
29-Jun-2017
Other Identifiers:
INRC17PST
Conference Date:
2017
Conference Name:
28th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International
Conference Location:
Dublin, Ireland
Description:
Event Theme: Influencing Global Health Through the Advancement of Nursing Scholarship

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePosteren
dc.evidence.levelN/Aen
dc.research.approachN/Aen
dc.title"Hope" for People With Motor Neurone Disease in Japanen_US
dc.contributor.authorNagase, Masakoen
dc.contributor.departmentNon-memberen
dc.author.detailsMasako Nagase, PhD, RN, PHN, Professional Experience: 2016-present -- Senior Associate professor, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2012-2016 -- Associate professor, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2008-2012 -- Lecturer, Faculty of Health Care and Nursing, Juntendo University, Chiba. 2001-2006 -- Assisstant Professor, School of Health Sciences, Tokai University, Kanagawa. 1994-2000 -- Nurse as discharge support and home visitting nursing in Hiratsuka Kyosai Hospita. Author Summary: My specialties are nursing in chronic illnesses/conditions and the sociology of health and illness. I have been interested in the health care system, advance care planning, and the high quality of care for patients of intractable neurological diseases.en
dc.identifier.urihttp://hdl.handle.net/10755/621610-
dc.description.abstract<div class="sectionbox"> <div class="section paperreviewdisplay paperdefaultdisplay reviewdisplay defaultdisplay"> <div class="columnwrapper"> <div class="displayinfo leftcolumn"> <div class="section"> <div class="item"> <p><span lang="EN-GB"><strong>Purpose: </strong> In this study, we present materials to examine the “hope” harbored by patients with intractable neurological diseases. This study is part of research on the nature of the care system focused on end-of-life care for patients with intractable neurological diseases in Japan. </span></p> <p><span lang="EN-GB"><strong>Methods: </strong> We conducted an interdisciplinary study using academic papers from various fields including nursing, psychology, and philosophy. </span></p> <p><span lang="EN-GB"><strong>Results: </strong> Since the 1950s, “hope” has mainly been defined in the context of social science and there have been various attempts at measuring it. However, exploring a unified view of the concept of “hope” is a difficult task. Nekolaichuk writes in her discussion on the nature of “hope” that hope is categorized into seven themes on which it is based: universality, dimensionality, certainty, temporality, predictability, value, and reality.</span></p> <p><span lang="EN-GB">In the discussion of universality, Nekolaichuk writes how differences can be seen in philosophical standpoints, such as how we perceive “hope” as an ultimate, universal concept, and how we perceive “hope” as a socially constructed concept. The positivism of the former standpoint explores the objective reality and develops a detailed description and unified framework for the concept, whereas the social constructionism of the latter standpoint attempts to understand the various significances formed by multiple people.</span></p> <p><span lang="EN-GB">The discussion of dimensionality explores whether “hope” is perceived as a one-dimensional or multi-dimensional concept. If the conceptual framework is reliable (certainty), measurement, i.e. observation, should be possible. Snyder and Herth each developed hope indices, but from completely different standpoints. Snyder expands on the one-dimensional theory of Stotland who emphasized goal achievement, and defines “hope” as being composed of cognitive components that recognize pathways and agency. Herth, on the other hand, conceptualizes “hope” in a multi-dimensional framework composed of temporality and future, positive readiness and expectancy, and interconnectedness. However, the experience of “hope” is composed of both visible and invisible elements, which means that while both measuring tools are capable of measuring reliable elements, they do not succeed in understanding the internal, uncertain experience of “hope.”</span></p> <p><span lang="EN-GB">Studies of “hope” have been conducted in various subjects including elderly people, terminal patients, suicidal patients, caregivers and patients with chronic diseases. These studies have revealed that relationships with significant others and a strong connection with transcendental beings such as God and Buddha influence “hope.” Existential problems also have a deep connection with “hope.” Affirming one’s value, feeling happy about one’s own existence, sensing the significance and development of life, and other ways of thinking all strengthen “hope.” Meanwhile, events that reduce “hope” include threatening perceptions, distress, conflict, sense of loss, and sense of despair.</span></p> <p><span lang="EN-GB">From the standpoint of the Cognitive Metaphor Theory of linguistics, “hope” is a concept understood through expressions rich in temporal and spatial changes and signifies “a current feeling of happiness towards the good future.” Meanwhile, the similar concept of “desire” signifies “the possibility that a good future will occur” and encapsulates prospects and expectations for the future. Both words are based on the assumption of “a good future.” However, in terms of prognoses for intractable neurological diseases, it is difficult for patients to have “a good future” or “bright prospects.” The “hope” held by patients with intractable neurological diseases is therefore thought to include context-dependent elements.</span></p> <p><span lang="EN-GB"><strong>Conclusion: </strong> Some argue that “hope” is defined in two ways: one that is synonymous with expectation and another that is separate from expectation. “Hope” does not merely signify optimism for the future, but is also based on concepts such as vitality and unconditional love. “Hope” is therefore not limited to clear achievement of goals for the future; it is based on the assumption of trust in an undetermined future.</span></p> <p><span lang="EN-GB">Meanwhile, in exploring the concept of “hope” in end-of-life care based, the concept of “hope” in cancer and nursing literature is internal and therefore invisible in situations based on the premise of death, and is perceived as having a so-called metaphysical nature. This involves seeking healing and survival, or seeking something separate from healing, while expecting healing to be difficult and anticipating death.</span></p> <p><span lang="EN-GB">So, what is “hope” to patients with intractable neurological diseases? What are the consequences of supporting patients in finding and maintaining “hope”? To answer these questions, we need to clarify the “hope” held by patients with different conditions including motor neuron disease, multiple sclerosis and Parkinson’s disease.</span></p> </div> </div> </div> </div> </div> </div>en
dc.subjectMNDen
dc.subjectCare Systemen
dc.subjectHopeen
dc.date.available2017-06-29T19:22:04Z-
dc.date.issued2017-06-29-
dc.date.accessioned2017-06-29T19:22:04Z-
dc.conference.date2017en
dc.conference.name28th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau Internationalen
dc.conference.locationDublin, Irelanden
dc.descriptionEvent Theme: Influencing Global Health Through the Advancement of Nursing Scholarshipen
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