Perspectives of People Living With HIV Toward Healthcare Providers: Insights Into Multicultural Health Literacy

2.50
Hdl Handle:
http://hdl.handle.net/10755/621650
Category:
Full-text
Format:
Text-based Document
Type:
Presentation
Level of Evidence:
N/A
Research Approach:
N/A
Title:
Perspectives of People Living With HIV Toward Healthcare Providers: Insights Into Multicultural Health Literacy
Other Titles:
Provider Perceptions of the HIV Patient
Author(s):
Long-Middleton, Ellen R.; Nicholas, Patrice Kenneally; Corless, Inge B.; Portillo, Carmen J.; Webel, Allison R.; Rivero-Mendez, Marta; Holzemer, William L.; Mogobe, Keitshokile Dintle; Kemppainen, Jeanne; Nokes, Kathleen M.; Cuca, Yvette; Reid, Paula; Eller, Lucille Sanzero; Wantland, Dean; Sabone, Motshedisi B.; Solis-Baez, Solymar; Gakumo, C. Ann; Fortinsky, Rachel; Dawson-Rose, Carol
Lead Author STTI Affiliation:
Kappa Tau
Author Details:
Ellen R. Long-Middleton, PhD, RN, FNP, FNAP, Professional Experience: Ellen Long-Middleton is an Associate Professor at the University of Vermont, and a Fellow in the National Academies of Practice. She is a Family Nurse Practitioner and has taught and practiced extensively. Her program of research centers on HIV prevention in adolescent young women. Author Summary: Dr. Long-Middleton is an Associate Professor at the University of Vermont College of Nursing and Health Sciences, and a member of the International Nursing Network for HIV/AIDS Research. Her program of research centers on HIV prevention in adolescent young women. Having practiced over several decades as a family nurse practitioner, her practice has informed her research and passion for HIV research.
Abstract:

Purpose: To further our understanding about relationship influences that impact health literacy, the purpose of this study was to characterize the perspectives of a culturally diverse group of people living with HIV (PLWH) toward their health care providers. Health literacy is the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate decisions related to their health. Low health literacy is associated with poor health outcomes. Use of preventive services, knowledge about medical conditions and treatment, rates of hospitalization, health status, and health care costs are all linked to health literacy. Although low health literacy can occur in any population, the burden of low health literacy disproportionately affects racial and ethnic minorities and individuals with low income levels. For PLWH, lower health literacy is associated with lower CD4 cell counts, higher viral loads, and a decreased likelihood of taking antiretroviral medication. Adequate health literacy is critical for treatment adherence and for promoting healthy behaviors in the daily lives of PLWH. In order to achieve and maintain HIV viral suppression, adherence to HIV treatment regimens requires a constant, near-perfect medication adherence rate for many medications. Further, the ability to seek and sustain treatment is contingent on one’s ability to navigate a complex health care system. Proficiency in health literacy skills is critical to this process.

Methods: Twenty-eight focus groups consisting of people living with HIV were conducted in eight sites representing multicultural backgrounds in the United States, Puerto Rico and Botswana. Responses from audio-recorded focus group interviews were analyzed using content analysis.

Results: Five themes emerged from the data that exemplified characteristics and relationship qualities valued by the participants living with HIV in their health care providers – partnership, knowledgeable health care provider, understandable language, respect, and knowing the person. Participants valued respectful partnership relationships with a knowledgeable health care provider who used understandable language and regarded them as a person of worth.

Conclusion: Relationship quality between patients and health care providers was central to facilitating and enhancing the health literacy of PLWH and likely their retention in care.

Keywords:
HIV; Health Literacy; Multicultural
Repository Posting Date:
5-Jul-2017
Date of Publication:
5-Jul-2017
Other Identifiers:
INRC17R06
Conference Date:
2017
Conference Name:
28th International Nursing Research Congress
Conference Host:
Sigma Theta Tau International
Conference Location:
Dublin, Ireland
Description:
Event Theme: Influencing Global Health Through the Advancement of Nursing Scholarship

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePresentationen
dc.evidence.levelN/Aen
dc.research.approachN/Aen
dc.titlePerspectives of People Living With HIV Toward Healthcare Providers: Insights Into Multicultural Health Literacyen_US
dc.title.alternativeProvider Perceptions of the HIV Patienten
dc.contributor.authorLong-Middleton, Ellen R.en
dc.contributor.authorNicholas, Patrice Kenneallyen
dc.contributor.authorCorless, Inge B.en
dc.contributor.authorPortillo, Carmen J.en
dc.contributor.authorWebel, Allison R.en
dc.contributor.authorRivero-Mendez, Martaen
dc.contributor.authorHolzemer, William L.en
dc.contributor.authorMogobe, Keitshokile Dintleen
dc.contributor.authorKemppainen, Jeanneen
dc.contributor.authorNokes, Kathleen M.en
dc.contributor.authorCuca, Yvetteen
dc.contributor.authorReid, Paulaen
dc.contributor.authorEller, Lucille Sanzeroen
dc.contributor.authorWantland, Deanen
dc.contributor.authorSabone, Motshedisi B.en
dc.contributor.authorSolis-Baez, Solymaren
dc.contributor.authorGakumo, C. Annen
dc.contributor.authorFortinsky, Rachelen
dc.contributor.authorDawson-Rose, Carolen
dc.contributor.departmentKappa Tauen
dc.author.detailsEllen R. Long-Middleton, PhD, RN, FNP, FNAP, Professional Experience: Ellen Long-Middleton is an Associate Professor at the University of Vermont, and a Fellow in the National Academies of Practice. She is a Family Nurse Practitioner and has taught and practiced extensively. Her program of research centers on HIV prevention in adolescent young women. Author Summary: Dr. Long-Middleton is an Associate Professor at the University of Vermont College of Nursing and Health Sciences, and a member of the International Nursing Network for HIV/AIDS Research. Her program of research centers on HIV prevention in adolescent young women. Having practiced over several decades as a family nurse practitioner, her practice has informed her research and passion for HIV research.en
dc.identifier.urihttp://hdl.handle.net/10755/621650-
dc.description.abstract<p><strong><strong>Purpose: </strong></strong><span>To further our understanding about relationship influences that impact health literacy, the purpose of this study was to characterize the perspectives of a culturally diverse group of people living with HIV (PLWH) toward their health care providers. Health literacy is the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate decisions related to their health. Low health literacy is associated with poor health outcomes. Use of preventive services, knowledge about medical conditions and treatment, rates of hospitalization, health status, and health care costs are all linked to health literacy. Although low health literacy can occur in any population, the burden of low health literacy disproportionately affects racial and ethnic minorities and individuals with low income levels. For PLWH, lower health literacy is associated with lower CD4 cell counts, higher viral loads, and a decreased likelihood of taking antiretroviral medication. Adequate health literacy is critical for treatment adherence and for promoting healthy behaviors in the daily lives of PLWH. In order to achieve and maintain HIV viral suppression, adherence to HIV treatment regimens requires a constant, near-perfect medication adherence rate for many medications. Further, the ability to seek and sustain treatment is contingent on one’s ability to navigate a complex health care system. Proficiency in health literacy skills is critical to this process.</span></p> <p><strong>Methods: </strong>Twenty-eight focus groups consisting of people living with HIV were conducted in eight sites representing multicultural backgrounds in the United States, Puerto Rico and Botswana. Responses from audio-recorded focus group interviews were analyzed using content analysis.</p> <p><strong>Results: </strong>Five themes emerged from the data that exemplified characteristics and relationship qualities valued by the participants living with HIV in their health care providers – partnership, knowledgeable health care provider, understandable language, respect, and knowing the person. Participants valued respectful partnership relationships with a knowledgeable health care provider who used understandable language and regarded them as a person of worth.</p> <p><strong>Conclusion: </strong>Relationship quality between patients and health care providers was central to facilitating and enhancing the health literacy of PLWH and likely their retention in care.</p>en
dc.subjectHIVen
dc.subjectHealth Literacyen
dc.subjectMulticulturalen
dc.date.available2017-07-05T17:26:31Z-
dc.date.issued2017-07-05-
dc.date.accessioned2017-07-05T17:26:31Z-
dc.conference.date2017en
dc.conference.name28th International Nursing Research Congressen
dc.conference.hostSigma Theta Tau Internationalen
dc.conference.locationDublin, Irelanden
dc.descriptionEvent Theme: Influencing Global Health Through the Advancement of Nursing Scholarshipen
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