Partnering with Families to Validate Questionnaires Assessing Unmet Needs of Children, Adolescents, and Parents/Caregivers at the End of Cancer Treatment

2.50
Hdl Handle:
http://hdl.handle.net/10755/622552
Category:
Full-text
Format:
Text-based Document
Type:
Poster
Level of Evidence:
Other
Research Approach:
Qualitative Research
Title:
Partnering with Families to Validate Questionnaires Assessing Unmet Needs of Children, Adolescents, and Parents/Caregivers at the End of Cancer Treatment
Author(s):
Conway, Mary; King, Courtney; Hart, Leigh; Needham, Andrew; Holden, Elizabeth; Ruiz, Tiffany; Lucas, Ruth
Lead Author STTI Affiliation:
Mu
Author Details:
Mary Conway, MSN, RN, CPHON, Mu Chapter, e-mail:mxconway@connecticutchildrens.org; Courtney King, RN, CPON; Leigh Hart BSN, RN, CPON; Andrew Needham, BSN, RN; Elizabeth Holden, BSN, RN, CPHON; Tiffany Ruiz, BSN, RN; Ruth Lucas PhD, RN, Mu Chapter
Abstract:

Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament.  After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.

The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.

The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.

Keywords:
children; parents; instrument development/instrument validation; cancer; adolescent
CINAHL Headings:
Instrument Validation; Needs Assessment; Cancer Patients; Cancer Patients--In Infancy and Childhood; Cancer Patients--In Adolescence; Caregivers; Parents; Parents--Psychosocial Factors
Repository Posting Date:
30-Aug-2017
Date of Publication:
30-Aug-2017
Conference Date:
2017
Conference Name:
Building Brighter Futures: Advances in Pediatric and Neonatal Care 2017
Conference Host:
Connecticut Children's Medical Center
Conference Location:
Groton, Connecticut, USA
Sponsors:
The DAISY Foundation
Description:
This research was funded by a J. Patrick Barnes Nursing Research Grant, provided by the DAISY Foundation
Note:
This work has been approved through a peer-review process prior to its posting in the Virginia Henderson Global Nursing e-Repository.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePosteren
dc.evidence.levelOtheren
dc.research.approachQualitative Researchen
dc.titlePartnering with Families to Validate Questionnaires Assessing Unmet Needs of Children, Adolescents, and Parents/Caregivers at the End of Cancer Treatmenten_US
dc.contributor.authorConway, Maryen
dc.contributor.authorKing, Courtneyen
dc.contributor.authorHart, Leighen
dc.contributor.authorNeedham, Andrewen
dc.contributor.authorHolden, Elizabethen
dc.contributor.authorRuiz, Tiffanyen
dc.contributor.authorLucas, Ruthen
dc.contributor.departmentMuen
dc.author.detailsMary Conway, MSN, RN, CPHON, Mu Chapter, e-mail:mxconway@connecticutchildrens.org; Courtney King, RN, CPON; Leigh Hart BSN, RN, CPON; Andrew Needham, BSN, RN; Elizabeth Holden, BSN, RN, CPHON; Tiffany Ruiz, BSN, RN; Ruth Lucas PhD, RN, Mu Chapteren
dc.identifier.urihttp://hdl.handle.net/10755/622552-
dc.description.abstract<p>Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament.  After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.</p> <p>The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.</p> <p>The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.</p>en
dc.subjectchildrenen
dc.subjectparentsen
dc.subjectinstrument development/instrument validationen
dc.subjectcanceren
dc.subjectadolescenten
dc.subject.cinahlInstrument Validationen
dc.subject.cinahlNeeds Assessmenten
dc.subject.cinahlCancer Patientsen
dc.subject.cinahlCancer Patients--In Infancy and Childhooden
dc.subject.cinahlCancer Patients--In Adolescenceen
dc.subject.cinahlCaregiversen
dc.subject.cinahlParentsen
dc.subject.cinahlParents--Psychosocial Factorsen
dc.date.available2017-08-30T16:13:25Z-
dc.date.issued2017-08-30-
dc.date.accessioned2017-08-30T16:13:25Z-
dc.conference.date2017en
dc.conference.nameBuilding Brighter Futures: Advances in Pediatric and Neonatal Care 2017en
dc.conference.hostConnecticut Children's Medical Centeren
dc.conference.locationGroton, Connecticut, USAen
dc.description.sponsorshipThe DAISY Foundationen
dc.descriptionThis research was funded by a J. Patrick Barnes Nursing Research Grant, provided by the DAISY Foundationen
dc.description.noteThis work has been approved through a peer-review process prior to its posting in the Virginia Henderson Global Nursing e-Repository.-
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