Rare Epilepsy Network: A PCORnet Study to Engage Patients in Research

2.50
Hdl Handle:
http://hdl.handle.net/10755/623251
Category:
Full-text
Format:
Text-based Document
Type:
Presentation
Level of Evidence:
N/A
Research Approach:
N/A
Title:
Rare Epilepsy Network: A PCORnet Study to Engage Patients in Research
Other Titles:
Conducting Patient-Centered Comparative Effectiveness Research: Exemplars From the Field [Symposium]
Author(s):
Buelow, Janice
Lead Author STTI Affiliation:
Alpha
Author Details:
Janice Buelow, PhD - School of Nursing, Department of Community Health Nursing, Indiana University, Indianapolis, IN, USA
Abstract:

The Rare Epilepsy Network is a data base built for and by people/families with a rare epilepsy. It is part of PCORnet and is designed to provide a place for patients and researchers to design studies important to those with the diagnosis of a rare epilepsy.

Keywords:
PCORnet; Patient Engagement; Rare Epilepsy
Repository Posting Date:
13-Oct-2017
Date of Publication:
13-Oct-2017
Other Identifiers:
CONV17G19
Conference Date:
2017
Conference Name:
44th Biennial Convention
Conference Host:
Sigma Theta Tau International, the Honor Society of Nursing
Conference Location:
Indianapolis, Indiana, USA
Description:
44th Biennial Convention 2017 Theme: Influence Through Action: Advancing Global Health, Nursing, and Midwifery.
Note:
This record is part of an event symposium session. To locate other records associated with this symposium session, search the repository using the session key labeled as “Other Identifiers” in this record, or search by the symposium title. Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.type.categoryFull-texten
dc.formatText-based Documenten
dc.typePresentationen
dc.evidence.levelN/Aen
dc.research.approachN/Aen
dc.titleRare Epilepsy Network: A PCORnet Study to Engage Patients in Researchen_US
dc.title.alternativeConducting Patient-Centered Comparative Effectiveness Research: Exemplars From the Field [Symposium]en
dc.contributor.authorBuelow, Janiceen
dc.contributor.departmentAlphaen
dc.author.detailsJanice Buelow, PhD - School of Nursing, Department of Community Health Nursing, Indiana University, Indianapolis, IN, USAen
dc.identifier.urihttp://hdl.handle.net/10755/623251-
dc.description.abstract<p><span>The Rare Epilepsy Network is a data base built for and by people/families with a rare epilepsy. It is part of PCORnet and is designed to provide a place for patients and researchers to design studies important to those with the diagnosis of a rare epilepsy.</span></p>en
dc.subjectPCORneten
dc.subjectPatient Engagementen
dc.subjectRare Epilepsyen
dc.date.available2017-10-13T19:39:49Z-
dc.date.issued2017-10-13-
dc.date.accessioned2017-10-13T19:39:49Z-
dc.conference.date2017en
dc.conference.name44th Biennial Conventionen
dc.conference.hostSigma Theta Tau International, the Honor Society of Nursingen
dc.conference.locationIndianapolis, Indiana, USAen
dc.description44th Biennial Convention 2017 Theme: Influence Through Action: Advancing Global Health, Nursing, and Midwifery.en
dc.description.noteThis record is part of an event symposium session. To locate other records associated with this symposium session, search the repository using the session key labeled as “Other Identifiers” in this record, or search by the symposium title. Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.-
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.